dangermouse
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Hi My names Donna i am new here.
I think i am experiencing aura's & nocturnal seizures.
I would appreciate anyone's advice, help or own experiences on what i have been experiencing.
For a long while i was suffering from choking episodes and a sensation of not being able to breath, waking up with a rapid heart rate, feeling like i was going to pass out and snoring, waking up with a snort & having weird dreams that always tended to have a theme around me choking, holding my breath under water, or in a building with smoke and having to hold my breath.
I started video recording myself whilst sleeping at night.
Although not every night i was having obstructed breathing and it's clear to see.
I went to my doctor about it and i was fobbed off saying that i can't have a sleep apnoea as i am skinny, don't drink smoke and a women etc.
Took me a long while to get a sleep study as they said i don't fit criteria the for it of something like that.
Went for a study but only sleep four hrs.
I was not well at the time and although i was snoring the obstructed breathing did not happen there, typical isn't it.
The doctor said to classed as be sleep apnoea it has to happen a certain amount of times and for a certain duration.
Anyhow i was not going to let this go as i knew i did have a problem so i produced the video of myself sleeping and he could see there was something going on. Although i didn't get diagnosed with classic sleep apnoea i got a diagnosis of sleep related upper airway obstruction & prescribed a Mandibular Advancement splint to keep my airway open during the night.
Now latly i having been feeling very tired and experiencing what i believe to be aura's although i have had them for yrs they have become more frequent. This is what i experience, deja vu & like something is very familiar. Also i keep on smelling different things some of which give me the deja vu feeling.
I had strong smell of smoke before i went to bed once, and feeling that something bad was going to happen. Of late i keep smelling what seems to be like the smell of alcohol, almost like when it fruit ferments and turns into alcohol. It gave me the deja vu feeling & it reminded me of when my dad used to make home made wine. This one has happened several times in the last week or so.
This may sound weird but i would put it how it feels or seemed to me.
I went to bed and although i was asleep i remember this sensation in my body of it almost tighntening up, going stiff and jerking around i could feel myself and my body moving.
I was aware but i couldn't do anything to stop it or wake up. I could feel one of my legs was really stiff and tight and almost felt in the air and my body was close to falling of the bed.
I recall a seeing my dog or a hazy distorted vision of her standing by the side of the bed, i remember i think tried to call out.
Although i thought i may of been a dream in a way it didn't feel just like a dream. It felt like i was watching what was happening to myself, i was aware what was going on but could not control it.
I could see myself in the bed and what was going on. Hope that makes sense although asleep.
Then another night i went to bed i recall having what was a dream type sensation a lady held my wrist and said i am going to make you pass out and pressed a part in my wrist and i did. I could feel my eyes rolling back and i was trying to open my eyes to wake up but i couldn't.
Then last night i went to sleep i remember waking up briefly several times and later on in the night i had another dream type sensation that i had a seizure & i could feel one of my legs went really tight and stiff and almost hanging in mid air but i could not do anything to stop it.
I have begun to video tape myself again sleep because i feel that strange deja vu sensation, smells and the other stuff i have been expriencing.
I have noticed from the recordings that i have alot of muscles twithces, arms hands, shoulders, face, lips & mouth not always at the same time, not noticed my legs doing it on the video as i have had the camera focusing on the top half of my body.
Sudden jerks of hand, arm, shoulder, finger twitches and or the face, throwing my head back or to the side. The mouth/lip movements are strange my lips pull back and upwards, almost like a dog bares it's teeth when angry, actually i do bare my teeth or my mouth or lips jerk off to the side.
I have not been able to catch the violent twitching of my whole body or legs as that must of happened later when the tape ran out, again typical.
I do go to see a neurologist as i have M.E CFS i want to mention this to her but feel that i am not going to be taken seriously or if i go for test they wont show anything and they will say there's nothing wrong when i know there is. I am trying to get my video evidence like i did before.
My instinct & subcouncious told me before that something was going on in my sleep and i believe it's happening again.
Has anyone else experience anything like what i am experiencing, does this sound like nocturnal seizures?
Any input or experiences of your own that are like what's happening with me would be appreciated.
Many thanks i look forward hearing from anyone who replies to me.
Donna aka Dangermouse
I think i am experiencing aura's & nocturnal seizures.
I would appreciate anyone's advice, help or own experiences on what i have been experiencing.
For a long while i was suffering from choking episodes and a sensation of not being able to breath, waking up with a rapid heart rate, feeling like i was going to pass out and snoring, waking up with a snort & having weird dreams that always tended to have a theme around me choking, holding my breath under water, or in a building with smoke and having to hold my breath.
I started video recording myself whilst sleeping at night.
Although not every night i was having obstructed breathing and it's clear to see.
I went to my doctor about it and i was fobbed off saying that i can't have a sleep apnoea as i am skinny, don't drink smoke and a women etc.
Took me a long while to get a sleep study as they said i don't fit criteria the for it of something like that.
Went for a study but only sleep four hrs.
I was not well at the time and although i was snoring the obstructed breathing did not happen there, typical isn't it.
The doctor said to classed as be sleep apnoea it has to happen a certain amount of times and for a certain duration.
Anyhow i was not going to let this go as i knew i did have a problem so i produced the video of myself sleeping and he could see there was something going on. Although i didn't get diagnosed with classic sleep apnoea i got a diagnosis of sleep related upper airway obstruction & prescribed a Mandibular Advancement splint to keep my airway open during the night.
Now latly i having been feeling very tired and experiencing what i believe to be aura's although i have had them for yrs they have become more frequent. This is what i experience, deja vu & like something is very familiar. Also i keep on smelling different things some of which give me the deja vu feeling.
I had strong smell of smoke before i went to bed once, and feeling that something bad was going to happen. Of late i keep smelling what seems to be like the smell of alcohol, almost like when it fruit ferments and turns into alcohol. It gave me the deja vu feeling & it reminded me of when my dad used to make home made wine. This one has happened several times in the last week or so.
This may sound weird but i would put it how it feels or seemed to me.
I went to bed and although i was asleep i remember this sensation in my body of it almost tighntening up, going stiff and jerking around i could feel myself and my body moving.
I was aware but i couldn't do anything to stop it or wake up. I could feel one of my legs was really stiff and tight and almost felt in the air and my body was close to falling of the bed.
I recall a seeing my dog or a hazy distorted vision of her standing by the side of the bed, i remember i think tried to call out.
Although i thought i may of been a dream in a way it didn't feel just like a dream. It felt like i was watching what was happening to myself, i was aware what was going on but could not control it.
I could see myself in the bed and what was going on. Hope that makes sense although asleep.
Then another night i went to bed i recall having what was a dream type sensation a lady held my wrist and said i am going to make you pass out and pressed a part in my wrist and i did. I could feel my eyes rolling back and i was trying to open my eyes to wake up but i couldn't.
Then last night i went to sleep i remember waking up briefly several times and later on in the night i had another dream type sensation that i had a seizure & i could feel one of my legs went really tight and stiff and almost hanging in mid air but i could not do anything to stop it.
I have begun to video tape myself again sleep because i feel that strange deja vu sensation, smells and the other stuff i have been expriencing.
I have noticed from the recordings that i have alot of muscles twithces, arms hands, shoulders, face, lips & mouth not always at the same time, not noticed my legs doing it on the video as i have had the camera focusing on the top half of my body.
Sudden jerks of hand, arm, shoulder, finger twitches and or the face, throwing my head back or to the side. The mouth/lip movements are strange my lips pull back and upwards, almost like a dog bares it's teeth when angry, actually i do bare my teeth or my mouth or lips jerk off to the side.
I have not been able to catch the violent twitching of my whole body or legs as that must of happened later when the tape ran out, again typical.
I do go to see a neurologist as i have M.E CFS i want to mention this to her but feel that i am not going to be taken seriously or if i go for test they wont show anything and they will say there's nothing wrong when i know there is. I am trying to get my video evidence like i did before.
My instinct & subcouncious told me before that something was going on in my sleep and i believe it's happening again.
Has anyone else experience anything like what i am experiencing, does this sound like nocturnal seizures?
Any input or experiences of your own that are like what's happening with me would be appreciated.
Many thanks i look forward hearing from anyone who replies to me.
Donna aka Dangermouse