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Hi,
I am Srini.
1) My son name is Gautham Narayanan and his date of birth is 20-April-2009
2) NOT a Pre-mature baby. It was a C-Section and NOT a normal delivery. The chord was around his neck 3 times. But he cried well and the movement score was also good.
3) On the second day of this birth, he had Neonatal Jaundice. On the same day he had one episode of Tonic Clonice Seizures and diagnosed with Hypocalcemia, Hypoglacemia etc
4) He was in the NICU for almost 10 days. A CT Scan was taken during that time and as per that he had Cerebral Edema. Was started with Gardenal Syrup.
5) He was doing well after that, He was on only one medicine Gardenal. He Started Smiling, His Head control was somewhat good.
6) In June 2009 (3rd Month), he had one Clonic Seizure Episode and was hospitalized for 5 days.
7) Valparin was added at this time ( Gardenal / Valparin)
8) He was doing good after that with this medicines. We continued the medicines.
9) His growth was good, Rolled over in the 6th Month. The dosage of Valparin was increased accordingly to his weight. We were doing regular SGPT and Valparin Level test.
10) He was cooing well, head control was pretty good, he smiled very well, was able to recognize me and wife. Used to cry if some one else is trying to take him etc. His development was pretty good.
11) In Feb 2010, he started having Myoclonice Seizures / Jerks. Used to be 10-15 / day
12) Lonazep 0.25 mg was added, Valparin was increased. JERKS CONTINUED (Gardenal, Valparin, Lonazep).
13) He started having milestone regression, he stopped smiling, stopped roll over, not interested in any thing.
14) Later Gardenal was brought down and stopped.
15) When the seizures were not getting controlled and regression continued. Keppra / Benadon was added. (Valparin, Lonazep .25mg, Keppra/Benadon)
16) Still he had seizures and regression. By April 10 ACTH Injection was (Daily - 15days, Alternate Days-14 days, Once in 3 days - 14days, Once in 5 days-14days, Once in a week 14days, Once in 10days-30 months. Total duration of ACTH 3 and half months. Dosage 27IU to 30 IU).
17) With ACTH course, he started smiling a little, seizures came down but not getting stopped fully.
18) After ACTH was stopped, Emsolene mg was started ( 0.5 tab - 15 days, 1 tab - 60days, 0.5 tab - 30 days. Total duration was 3 and half months)
19) Keppra / Benadon was also stopped as it was not giving any significant improvment.
20) With Valparin, Lonazep, Emsolene he was responding well to the medicines and was back on growth track.
21) Emsolene was slowly brought down and stopped as it is a steroid. His seizures started increasing. Another medicine Sabril 500mg was added.
Valparin, Lonazep, Sabril continued. But still seizures continued.
22) In Dec 2010 one more round of Oral Steroid Wysolene was give for 30 days. Sabril was slowly brought down, as it was not working for him.
23) Seizure came down a little, but did not stop. Wysolene was brought down, Topamac 25mg was added and slowly increased.
24) Wysolene was stopped completely and Topamac reached max dosage. (Valparin, Lonazep .25mg, Topamac Continued)
25) Still seizures did not stop. Lamictor was added (Valparin, Lonazep .25mg, Topamac 25mg, Lamictor 25mg)
Current Dosage
Anti Epileptic Drugs
1) Valparin ( 3-3-3)
2) Lonazep 0.25 mg ( 1-1-1)
3) Topamac 25mg ( 1-0-1)
4) Lamictor 25mg (1-0-1)
Supplements
1) Calcium BB24 - 5ml
2) Carnisure - 4ml
3) Norma Brain - 5ml
As of now he is getting Myoclonic Seizures ( 15-20 Jerks / Day). After starting Lamictor we could see some improvement. He started smiling back, able to sit without support.
We have done EEG and MRI Scan.
1) MRI Scan implies --> Periventricular Leukomalacia
2) EEG is very much abnormal. Generic seizures.
We are very much worried about the his development, seizures and the side affects as well
Regd
Srini
I am Srini.
1) My son name is Gautham Narayanan and his date of birth is 20-April-2009
2) NOT a Pre-mature baby. It was a C-Section and NOT a normal delivery. The chord was around his neck 3 times. But he cried well and the movement score was also good.
3) On the second day of this birth, he had Neonatal Jaundice. On the same day he had one episode of Tonic Clonice Seizures and diagnosed with Hypocalcemia, Hypoglacemia etc
4) He was in the NICU for almost 10 days. A CT Scan was taken during that time and as per that he had Cerebral Edema. Was started with Gardenal Syrup.
5) He was doing well after that, He was on only one medicine Gardenal. He Started Smiling, His Head control was somewhat good.
6) In June 2009 (3rd Month), he had one Clonic Seizure Episode and was hospitalized for 5 days.
7) Valparin was added at this time ( Gardenal / Valparin)
8) He was doing good after that with this medicines. We continued the medicines.
9) His growth was good, Rolled over in the 6th Month. The dosage of Valparin was increased accordingly to his weight. We were doing regular SGPT and Valparin Level test.
10) He was cooing well, head control was pretty good, he smiled very well, was able to recognize me and wife. Used to cry if some one else is trying to take him etc. His development was pretty good.
11) In Feb 2010, he started having Myoclonice Seizures / Jerks. Used to be 10-15 / day
12) Lonazep 0.25 mg was added, Valparin was increased. JERKS CONTINUED (Gardenal, Valparin, Lonazep).
13) He started having milestone regression, he stopped smiling, stopped roll over, not interested in any thing.
14) Later Gardenal was brought down and stopped.
15) When the seizures were not getting controlled and regression continued. Keppra / Benadon was added. (Valparin, Lonazep .25mg, Keppra/Benadon)
16) Still he had seizures and regression. By April 10 ACTH Injection was (Daily - 15days, Alternate Days-14 days, Once in 3 days - 14days, Once in 5 days-14days, Once in a week 14days, Once in 10days-30 months. Total duration of ACTH 3 and half months. Dosage 27IU to 30 IU).
17) With ACTH course, he started smiling a little, seizures came down but not getting stopped fully.
18) After ACTH was stopped, Emsolene mg was started ( 0.5 tab - 15 days, 1 tab - 60days, 0.5 tab - 30 days. Total duration was 3 and half months)
19) Keppra / Benadon was also stopped as it was not giving any significant improvment.
20) With Valparin, Lonazep, Emsolene he was responding well to the medicines and was back on growth track.
21) Emsolene was slowly brought down and stopped as it is a steroid. His seizures started increasing. Another medicine Sabril 500mg was added.
Valparin, Lonazep, Sabril continued. But still seizures continued.
22) In Dec 2010 one more round of Oral Steroid Wysolene was give for 30 days. Sabril was slowly brought down, as it was not working for him.
23) Seizure came down a little, but did not stop. Wysolene was brought down, Topamac 25mg was added and slowly increased.
24) Wysolene was stopped completely and Topamac reached max dosage. (Valparin, Lonazep .25mg, Topamac Continued)
25) Still seizures did not stop. Lamictor was added (Valparin, Lonazep .25mg, Topamac 25mg, Lamictor 25mg)
Current Dosage
Anti Epileptic Drugs
1) Valparin ( 3-3-3)
2) Lonazep 0.25 mg ( 1-1-1)
3) Topamac 25mg ( 1-0-1)
4) Lamictor 25mg (1-0-1)
Supplements
1) Calcium BB24 - 5ml
2) Carnisure - 4ml
3) Norma Brain - 5ml
As of now he is getting Myoclonic Seizures ( 15-20 Jerks / Day). After starting Lamictor we could see some improvement. He started smiling back, able to sit without support.
We have done EEG and MRI Scan.
1) MRI Scan implies --> Periventricular Leukomalacia
2) EEG is very much abnormal. Generic seizures.
We are very much worried about the his development, seizures and the side affects as well
Regd
Srini
