It looks like you and I are in the same boat! I thought the same thing when they told me my eeg result was abnormal. They told me though, that people who don't have epilepsy or seizures will only show signs of being tired and grouchy.
I don't know what happened for you, but for me I had 2 during the hyperventilation portion of the test. The only thing that let me know that something was wrong was when I would think I needed more air and try to take it in, I would really be too full of air and need to let it out or vice versa. the tech would ask me "what was that tremor?" and I wouldn't have an answer. I even had a pretty major one on the way out the door when I wasn't even hooked up to anything anymore! I was almost sent to the ER! (not that they could have done much....) They made me go home with my husband and rest and then go to my doctor.
No sleep is awful. I hated that part. I'm one who typically goes to bed at around 10:30 every night. But not only that, I had a lot of stress from: Wrecking my car on Thursday night (not seizure related, I hydroplaned), Having my parents tear me apart over it(my mom was so mad that she told me she didn't want to even know me anymore, she didn't mean it, but I thought she did at the time), the guy called me RIGHT before I went in to the room for the test and alluded to the fact that he was suing me although his wheel well was only dented and he told the cop and he wasn't hurt and drove off He got hit at about 15mph, and already being freaked out over not knowing what I was to expect from the test.
I was primed to have a reaction. Which turned out to be a good thing, because now they have the proof they need and gave me medicine to stop the problem.
I saw my specialist yesterday. After he asked me a bunch of questions about my life and how things have happened, he told me that my eeg was not normal. That I was most certainly having seizures. He gave me Lamicatl in this little month starter pack and then gave me the rundown of what to expect and about potential side effects. He then told me I have a 65% chance of never having another seizure if I take my medicine and work on my stress control.
He gave me a sheet of paper explaining the laws in Georgia.
Its not so bad.
Its going to be somewhat of a pain since I live 30 miles from where I work and 25 from where I go to school. There is no public transit to get me to either place... but its okay. My husband will be helping me I have a couple of friends who said they would help me if I get in a pinch, and my parents said I can stay at their house 4 days a week and they will drive me to work and school.
I think the biggest thing that I have learned from this experience is that it means you have to reach out and connect with the people around you, even if it means a new taxi driver.
Other than transportation, it doesn't feel like my independence has been compromised much, although I am still new to this... Living on your own will make it a bit harder because you don't have someone in your house to say "hey, can you help me get to...." But you aren't alone. The internet has proven to be a great source for me and it seems for everyone on this board. So you have people here you can talk to, and I'm here learning right along beside you... you can always talk to me. I'm near your age (25) and I'm going through almost the same things at the same time. It seems that we are only 1 day apart in most things involving these test and the results.
And even if your family lives far away, there is still emails and phone calls....
They may not be right next to you, but they will probably be supportive.
I feel like you are one step ahead. You acknowledge that there are things you will need to ask. I didn't even do that. I kept denying that I was having seizures, and then saying well, they are probably Nonepileptic ones.... but when I heard that I was indeed epileptic, I almost felt relieved. It meant a diagnosis and a way to treat the problem so I can move on. I just didn't know what all it was going to mean in the end.
My advice (because I wish I had done this) is to take a pen and paper with you. Write down the important things.
I realized yesterday that I have been given medicine but I didn't know when I was to start taking it! And with an MRI coming was I supposed to wait to take it? He told me when, but I was so overwhelmed that I forgot.... :-\
I hope all goes well for you today
Try to get someone to drive you.
~*Meredith*~
