Hi. I just found this forum and I thought I would join. I have a 14-year-old daughter that has been having epileptic seizures since June 2016. Almost all of her seizures have been grand mals.
Since June 2016, the longest time between seizures was 27/28 days. This only happened twice. Both times my wife and I were crushed when my daughter had a seizure. It was like going back to square one and starting over.
I think we are on our 5th medication (valproic acid). My daughter's neurologist was reluctant to put her on it due to the side effects but with no improvement with the other meds, we had to try it. Still don't seem to be having much effect.
The poor girl has suffered from skinned out knees, chin, broken tooth as well as dislocating her shoulders three times. The first time she dislocated her shoulder, it was the furthest thing from my mind. She was sleeping at the time so I knew she didn't fall. I took her to Emerg four days after due to having three seizures in a span of a couple of hours. After we found out the shoulder was dislocated, I did not feel very good as a father. Basically, let her suffer the pain. Again, a dislocated shoulder was totally out of this realm for me and my wife.
I guess I came to this site to maybe get insight/support/education? I talk to people at work (CDN military) but I don't think they are able to fully grasp having to cope with a child that has epilepsy.
This has been the longest introduction post I have ever made on a public forum.
Thank you
Since June 2016, the longest time between seizures was 27/28 days. This only happened twice. Both times my wife and I were crushed when my daughter had a seizure. It was like going back to square one and starting over.
I think we are on our 5th medication (valproic acid). My daughter's neurologist was reluctant to put her on it due to the side effects but with no improvement with the other meds, we had to try it. Still don't seem to be having much effect.
The poor girl has suffered from skinned out knees, chin, broken tooth as well as dislocating her shoulders three times. The first time she dislocated her shoulder, it was the furthest thing from my mind. She was sleeping at the time so I knew she didn't fall. I took her to Emerg four days after due to having three seizures in a span of a couple of hours. After we found out the shoulder was dislocated, I did not feel very good as a father. Basically, let her suffer the pain. Again, a dislocated shoulder was totally out of this realm for me and my wife.
I guess I came to this site to maybe get insight/support/education? I talk to people at work (CDN military) but I don't think they are able to fully grasp having to cope with a child that has epilepsy.
This has been the longest introduction post I have ever made on a public forum.
Thank you