Hello, have just joined as I could really do with some support and wisdom from others who are going through the same things.
My son who is 8 was diagnosed with focal seizures in July 2017 and it's been a rollercoaster few months. They're trying to get his medication right, he started on Lamotrgine but that hasn't worked so he's now on Keppra but that is horrendous so far. Not sure what drug will be next???!
He is also being assessed for autism (Aspergers) so life sure ain't dull lol. His school are supportive to a point but have called us in for a meeting next week due to his behaviour which I think is a result of the Keppra.
We as parents constantly feel on edge waiting for the next seizure and making plans for events is difficult which then affects our 11year old daughter.
Hoping 2018 will be better!!
My son who is 8 was diagnosed with focal seizures in July 2017 and it's been a rollercoaster few months. They're trying to get his medication right, he started on Lamotrgine but that hasn't worked so he's now on Keppra but that is horrendous so far. Not sure what drug will be next???!
He is also being assessed for autism (Aspergers) so life sure ain't dull lol. His school are supportive to a point but have called us in for a meeting next week due to his behaviour which I think is a result of the Keppra.
We as parents constantly feel on edge waiting for the next seizure and making plans for events is difficult which then affects our 11year old daughter.
Hoping 2018 will be better!!