Hello,
I wanted to share this. I do not know what happened, would Lennox-Gestaut return, but I think it is necessary to inform audience. Perhaps somebody had similar case. Perhaps this will help somebody else.
My 8.5 yrs old daughter suffered from Lennox-Gastaut after she was 7 yrs seizure free. It started cca two weeks after minor gastrointestinal upset, and it worsened by hyperventilation. We were not able to stop seizures, she had 20-40 per day. We stopped counting.
A year after, still with seizures, she got several infections respiratory and gastrointestinal, a week after week: virus, bacteria... She had fever several times. She was on antibiotics, and due to her bad condition I put her on herbal remedies also: herbal tees, homemade cough syrup, garlic extract, olea leaf extract... At one point she stopped responding, she had lost ability to swallow... It was so bad... It lasted I think almost four weeks.
When she recovered, there were no seizures anymore. Her EEG is almost normal.
After rethinking what happened last year, I came to conclusion (which could be wrong) that she suffered from undiagnosed infection which was not possible to prove by normal diagnostic methods. Only symptoms she had were: "fewer" 37-37.3 oC from time to time - which disappeared immediately after drinking (she was not dehydrated), bad aromatic smell from the mouth at beginning, polyclonal antibodies in CSF and I suspect headaches.
She is reacting differently on diazepam now: instead of jumping around without control of her limbs, she is sleeping.
I wanted to share this. I do not know what happened, would Lennox-Gestaut return, but I think it is necessary to inform audience. Perhaps somebody had similar case. Perhaps this will help somebody else.
My 8.5 yrs old daughter suffered from Lennox-Gastaut after she was 7 yrs seizure free. It started cca two weeks after minor gastrointestinal upset, and it worsened by hyperventilation. We were not able to stop seizures, she had 20-40 per day. We stopped counting.
A year after, still with seizures, she got several infections respiratory and gastrointestinal, a week after week: virus, bacteria... She had fever several times. She was on antibiotics, and due to her bad condition I put her on herbal remedies also: herbal tees, homemade cough syrup, garlic extract, olea leaf extract... At one point she stopped responding, she had lost ability to swallow... It was so bad... It lasted I think almost four weeks.
When she recovered, there were no seizures anymore. Her EEG is almost normal.
After rethinking what happened last year, I came to conclusion (which could be wrong) that she suffered from undiagnosed infection which was not possible to prove by normal diagnostic methods. Only symptoms she had were: "fewer" 37-37.3 oC from time to time - which disappeared immediately after drinking (she was not dehydrated), bad aromatic smell from the mouth at beginning, polyclonal antibodies in CSF and I suspect headaches.
She is reacting differently on diazepam now: instead of jumping around without control of her limbs, she is sleeping.
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