I'm new to the forum and had a question . To give a little background my 8 year old son has had E since he was 2 years old and been on several meds to stop them but they dont stop them completly he will go several weeks without have one then he may have 5 or 6 in one day. just curious if it is possible to stop them completly with the right meds so he can live a normal life.
meds
- Thread starter lukesdad
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epileric
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Hi & welcome
I've been diagnosed with seizures when I was 3 years old (I'll be 50 next month) so I've got that in common with your son.
From what I've read, about 1/3 epileptics can't control their seizures totally despite medication. You may reach a time when they are totally controlled & then they might start up again.
Mine have never been totally controlled, I have partial seizures almost daily though I often go through spurts where I'll only have 2 or 3 a week. Despite that, I live what I consider a fairly normal life. I've never driven so I've never had to get used to losing that privilege, it's just a part of life that I've learned to compensate for. The hardest thing for me to adapt to is usually the side-effects of new medications.
There are various alternative therapies that some people have had luck with, especially the neurofeedback which you might want to try.
http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments
I've been diagnosed with seizures when I was 3 years old (I'll be 50 next month) so I've got that in common with your son.
From what I've read, about 1/3 epileptics can't control their seizures totally despite medication. You may reach a time when they are totally controlled & then they might start up again.
Mine have never been totally controlled, I have partial seizures almost daily though I often go through spurts where I'll only have 2 or 3 a week. Despite that, I live what I consider a fairly normal life. I've never driven so I've never had to get used to losing that privilege, it's just a part of life that I've learned to compensate for. The hardest thing for me to adapt to is usually the side-effects of new medications.
There are various alternative therapies that some people have had luck with, especially the neurofeedback which you might want to try.
http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments
dfwtexas
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I am 49 years old and got diagnosed with E a little over 2 years ago. I have been thur several adjustments on my Keppra. I know it is frustrating...I can go months with no seizures and then WHAM get hit by one out of the blue. I talked with my neuro about it and he said getting the meds at the proper level is one of the most frustrating aspects of E for both the doc and the patient.
I know it can be different for kids...but then again, E is so different from person to person. Try to identify those triggers that are key to your child is important and I am sure as he grows, his triggers could change too.
This is a great forum for information and support
jenn
I know it can be different for kids...but then again, E is so different from person to person. Try to identify those triggers that are key to your child is important and I am sure as he grows, his triggers could change too.
This is a great forum for information and support
jenn
Hello. I have had seizures all my life I am 55. I am on 3 meds and still not under full control, but i have gone for 5 months without a seizure. I have found out that not haveing stress has helped me alot. I do not drive and have never driven, so i will not miss giving that up. I can not see driving and have a seizure and maybe kill a person or yourself if you had a seizure.