LOL...my post have all been really long too..I guess we have a lot to say! LOL!
Thank you for sharing your information. I am on Topamax as well.
When I was about 9, I had an incident where I passed out on the merry-go-round and busted my four front teeth out. Then later that same year, I passed out again and fell down a very large flight of steep concrete steps. I had a very bad concussion from the fall. Both times, the doctor said that I passed out from unknown causes. This was back in 1983.
Nothing was ever done for me, but throughout school all of my teachers complained of me being daydreamy and inattentive in school...my grades were not very good. I just giggled my way through school because I was lost most of the time (but I thought everyone was...really!).
Then in 1997, I started having these episodes where I couldn't see. I saw a few doctors, they said that I was risk for stroke and told me to never ever take birth control pills. In 2003, I started having these numbing feelings on my face and down my arms. I would wake up and not know who I was, where I was or who my husband was. My husband would tell me that I would be making strange noises in my sleep and completely unresponsive to him...so in 2004...we went to the ER where I was diagnosed with a nighmare! Literally, they wrote that on the paper. I told the man that he insulted my intelligence and wasted my time. He scratched it out on my paper, but not on the one that went in my permanent record. So, in 2006, my episodes went from once every two years, to once every three months...to the point that I was waking for barely a minute and going right back into another seizure. I refused to go to the doctor though because I knew that they would diagnose me with anxiety or nightmares. My husband finally took me in and they put me in ICU. My EEG came back abnormal and I was diagnosed with epilepsy. My neurologist said that I have had it from birth, but that I have had partials and they have been undiagnosed.
I am not on a high enough dosage of topamax to help me though. I am only on 125 mg. From the research I have conducted...125 mg is what they recommend for the patients who have migrains...not seizures. So...I am going to try to get my doctor to up my meds. to see if I can gain some control as I still experience daily seizures at this point.
My memory is really bad; however, I think mine is due to the daily seizures more than the meds (at least right now). I will have to see if my memory problems increase as the meds increase. I have not tried Keppra. I am currently trying to find a new doctor.
Thank you for sharing your information. I am on Topamax as well.
When I was about 9, I had an incident where I passed out on the merry-go-round and busted my four front teeth out. Then later that same year, I passed out again and fell down a very large flight of steep concrete steps. I had a very bad concussion from the fall. Both times, the doctor said that I passed out from unknown causes. This was back in 1983.
Nothing was ever done for me, but throughout school all of my teachers complained of me being daydreamy and inattentive in school...my grades were not very good. I just giggled my way through school because I was lost most of the time (but I thought everyone was...really!).
Then in 1997, I started having these episodes where I couldn't see. I saw a few doctors, they said that I was risk for stroke and told me to never ever take birth control pills. In 2003, I started having these numbing feelings on my face and down my arms. I would wake up and not know who I was, where I was or who my husband was. My husband would tell me that I would be making strange noises in my sleep and completely unresponsive to him...so in 2004...we went to the ER where I was diagnosed with a nighmare! Literally, they wrote that on the paper. I told the man that he insulted my intelligence and wasted my time. He scratched it out on my paper, but not on the one that went in my permanent record. So, in 2006, my episodes went from once every two years, to once every three months...to the point that I was waking for barely a minute and going right back into another seizure. I refused to go to the doctor though because I knew that they would diagnose me with anxiety or nightmares. My husband finally took me in and they put me in ICU. My EEG came back abnormal and I was diagnosed with epilepsy. My neurologist said that I have had it from birth, but that I have had partials and they have been undiagnosed.
I am not on a high enough dosage of topamax to help me though. I am only on 125 mg. From the research I have conducted...125 mg is what they recommend for the patients who have migrains...not seizures. So...I am going to try to get my doctor to up my meds. to see if I can gain some control as I still experience daily seizures at this point.
My memory is really bad; however, I think mine is due to the daily seizures more than the meds (at least right now). I will have to see if my memory problems increase as the meds increase. I have not tried Keppra. I am currently trying to find a new doctor.
