Hello everyone,
I am really new to this lifestyle...while I have been on topamax for over two years for Chiari type 2 malformation which caused stroke type migraines that was the worst of my symptoms. I am a mom of two boys 8 and 13 a wife of a wonderful workaholic husband who will not stop till we all have everything we want and desire I have yet to have a complaint in life. I would run a mile a day spend each Friday out if the house for mommys day and Monday thru Thursday I worked from home in the afternoon and spent time after the boys got home from school going to this and that sport function after doing homework...
All that is over sad to say..I am still in good spirits I expect nothing but to be able to return..I want my life back and I fight for it EVERYDAY!!!
On Halloween on a simple trip to Walmart with my family and my niece I had a massive (what We thought was a seizure) in the car. I was aware the entire time my husband pulled to the side of the road put my seat down took off my seatbelt all the necessary things to ensure I didn't hurt myself...it went on for your normal two minutes or so but afterwards I couldn't regain control over my movements...straight to the ER we went...kept tellin the doctors it was a seizure not knowing it wasn't they gave me a dose of benedryl that made the first seizure look like I was playing around...they had to put pads on my bed hold me on the bed so I didnt fall off and eventually inject me with something to knock me out...
Later I find out that the cold or virus I had a couple weeks before had attacked my nervous system and did permanent damage..for the next three weeks day in day out I convulsed every hour non stop..we went to doctor after doctor..no one knew what to do they looked at me and looked helpless...finally I heard about the Mayo Clinic and called but they are booked til Feb of next year the same day I called them I reciever a call from a movement doctor in town who said he could help me..they got me in the next day and got me on Keppra...I can't say enough about this drug I am now only convulsing when I am active and I am only on 250 mg. Last night I uped my dosage to 500 mg.
I am experiecing hip and leg cramps that keep me up at night and wonder if anyone else is out there like me?
I know my odds of a normal life but I am a strong person...
I am really new to this lifestyle...while I have been on topamax for over two years for Chiari type 2 malformation which caused stroke type migraines that was the worst of my symptoms. I am a mom of two boys 8 and 13 a wife of a wonderful workaholic husband who will not stop till we all have everything we want and desire I have yet to have a complaint in life. I would run a mile a day spend each Friday out if the house for mommys day and Monday thru Thursday I worked from home in the afternoon and spent time after the boys got home from school going to this and that sport function after doing homework...
All that is over sad to say..I am still in good spirits I expect nothing but to be able to return..I want my life back and I fight for it EVERYDAY!!!
On Halloween on a simple trip to Walmart with my family and my niece I had a massive (what We thought was a seizure) in the car. I was aware the entire time my husband pulled to the side of the road put my seat down took off my seatbelt all the necessary things to ensure I didn't hurt myself...it went on for your normal two minutes or so but afterwards I couldn't regain control over my movements...straight to the ER we went...kept tellin the doctors it was a seizure not knowing it wasn't they gave me a dose of benedryl that made the first seizure look like I was playing around...they had to put pads on my bed hold me on the bed so I didnt fall off and eventually inject me with something to knock me out...
Later I find out that the cold or virus I had a couple weeks before had attacked my nervous system and did permanent damage..for the next three weeks day in day out I convulsed every hour non stop..we went to doctor after doctor..no one knew what to do they looked at me and looked helpless...finally I heard about the Mayo Clinic and called but they are booked til Feb of next year the same day I called them I reciever a call from a movement doctor in town who said he could help me..they got me in the next day and got me on Keppra...I can't say enough about this drug I am now only convulsing when I am active and I am only on 250 mg. Last night I uped my dosage to 500 mg.
I am experiecing hip and leg cramps that keep me up at night and wonder if anyone else is out there like me?
I know my odds of a normal life but I am a strong person...