thornton8000
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Hello everyone!
I'm new to here, my neuro sent me to an epi and she said I prob, have PNES, but after talking to my neuroand explaining about my seizuresthat I get after making love to my wife he's now confused my epi didn't want want to address those seizures, or talk about the seizure I had in her officeshe made up her mind and that was that, I dont fit into the PNES definiton they haven't changed over time, they've been the same, my stress level is the lowest its been in years regardless of my current situation, and then she tried to tell me that 4 sodas over a 7am to 11pm day is to much when I used to drink 5x that much and never had as many seizures as I do now, and never had night seizures with urination like I do now.
My neuro is stumped on why the epi wouldnt listen to me, after my night seizures I'm tired, sore and have a migraine that last most of the dayand I'm tired 75-90& of the day. He's talking about adding Keppra to my topamax after he reads my seizure journal that I gave the epi doc and I like my neuro but I didnt care for my epi doc and my neuro said he'll look over all the info and make his own diagnosis and get back to me soon. Anyone here with a simialar issue please chime back please, and let me know what you went through!
Thanks!
Mike
I'm new to here, my neuro sent me to an epi and she said I prob, have PNES, but after talking to my neuroand explaining about my seizuresthat I get after making love to my wife he's now confused my epi didn't want want to address those seizures, or talk about the seizure I had in her officeshe made up her mind and that was that, I dont fit into the PNES definiton they haven't changed over time, they've been the same, my stress level is the lowest its been in years regardless of my current situation, and then she tried to tell me that 4 sodas over a 7am to 11pm day is to much when I used to drink 5x that much and never had as many seizures as I do now, and never had night seizures with urination like I do now.
My neuro is stumped on why the epi wouldnt listen to me, after my night seizures I'm tired, sore and have a migraine that last most of the dayand I'm tired 75-90& of the day. He's talking about adding Keppra to my topamax after he reads my seizure journal that I gave the epi doc and I like my neuro but I didnt care for my epi doc and my neuro said he'll look over all the info and make his own diagnosis and get back to me soon. Anyone here with a simialar issue please chime back please, and let me know what you went through!
Thanks!
Mike