Phyllis posted a link to a list of epi docs recommended by people with epilepsy. See this string:
http://www.coping-with-epilepsy.com...sts-neurosurgeons-pediatric-d-9275/#post94194
Finding a good doctor is HARD. I've been through 2 so far. My ideal doc would have the following:
- have a deep level respect for their patients and show that in their interaction,
- be blazingly smart and up on all the latest stuff,
- willing to consider and discuss all the aspects of the disorder including lifestyle, supplements, alternative treatments, the affect of other health issues on the epilepsy, etc.
- open to considering new ideas,
- is a good advocate for their patient with insurance, disability, workplace, etc,
- has a policy on maximum time for returning phone calls, and is available to return phone calls in a timely manner (especially during times of crisis),
- spends plenty of time with the patient and always makes the patient feel welcome to come in when they need to
- has great communication skills, both listening and explaining, and takes the time to do it.
I'm not asking them to be perfect on all this, just be above a certain minimum of competence on each of these things. Haven't found him/her yet.
I wish all doctors had a philosophy of care statement in writing or on the web that we could read ahead of time, that addressed all these areas. It would help weed out the bunch so we could choose who we want to see.