Coping With Epilepsy VNS Message Board
Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer



Closed Thread
 
LinkBack Thread Tools
  #1  
Old 02-16-2007, 07:14 PM
New Here
 
Join Date: Feb 2007
Location: Boston, MA
Posts: 1
Thanks: 0
Thanked 0 Times in 0 Posts

New to the area...


how are ya?

I have mild epilepsy; that is to say i've had less than a dozen was diagnosed with it 20 years ago when i was a lad.
It's re-appeared recently: at christmas! it was great. good times.

I've been on Tegretol XR 400for about 10 years? And a lot of the recent seizures, the afore-mentioned one and one six mos ago have been related to low-sodium/hyponatremia. Which i think was not being helped by the sodium-sucking tegretol.

so the neurologist switched me to keppra 750 twice daily. I'm in the middle of the transition now and the sched was to taper off the tegr.XR. The first few days were dicey as the neurologist told me it would make me feel "loopy".

Anybody out there who has anything to share good or otherwise about Keppra? The causual internet research ice done has generally good things to say other than the ominous sounding "keppra rage".

thanks,

Tim
  #2  
Old 02-17-2007, 08:37 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,514
Thanks: 769
Thanked 2,285 Times in 815 Posts
Hi Tim, welcome to the forum.

Stacy has not tried Keppra, so we don't have any personal experience with it.

Your point about the Tegretol robbing the body of sodium is so important. Most anti-epileptic drugs deplete the body of something and it is important to offset those effects with supplements.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
  #3  
Old 02-18-2007, 10:45 AM
Brain Surgery Experience
 
Join Date: Jul 2006
Location: Missouri
Posts: 578
Thanks: 0
Thanked 3 Times in 3 Posts
Hi Tim -- I was on Keppra for some time - sorry, can't remember the dosage now - and did not have any of the "rage". I don't think I had any side effect with that stuff.
(Now I'm taking 1200 mg Trileptal and 300 mg Topamax so I want to sleep all day)
Good luck with yours.
  #4  
Old 02-18-2007, 03:24 PM
RG RG is offline
New Here
 
Join Date: Feb 2007
Location: Iowa
Posts: 6
Thanks: 0
Thanked 0 Times in 0 Posts

Re: New to the area...


Hi Tim,
I just joined this forum.
My neurologist slowly increased Keppra to 4 tablets 3 times a day. I am also on Trileptal. I'm hoping to get off that one eventually now that I have the VNS implant. Trileptal also reduces sodium levels. Mine went so low that it caused a prolonged seizure. I haven't had any side effects with Keppra, in fact it improved my mood and ability to think clearly. ~RG

Originally Posted by timcamera :
how are ya?

I have mild epilepsy; that is to say i've had less than a dozen was diagnosed with it 20 years ago when i was a lad.
It's re-appeared recently: at christmas! it was great. good times.

I've been on Tegretol XR 400for about 10 years? And a lot of the recent seizures, the afore-mentioned one and one six mos ago have been related to low-sodium/hyponatremia. Which i think was not being helped by the sodium-sucking tegretol.

so the neurologist switched me to keppra 750 twice daily. I'm in the middle of the transition now and the sched was to taper off the tegr.XR. The first few days were dicey as the neurologist told me it would make me feel "loopy".

Anybody out there who has anything to share good or otherwise about Keppra? The causual internet research ice done has generally good things to say other than the ominous sounding "keppra rage".

thanks,

Tim
  #5  
Old 02-18-2007, 03:30 PM
RG RG is offline
New Here
 
Join Date: Feb 2007
Location: Iowa
Posts: 6
Thanks: 0
Thanked 0 Times in 0 Posts
Hi Nancy,
Topamax and I did not get along well at all. I had more seizures with it, couldn't think clearly and couldn't stay awake. It affected my ability to think clearly at work so I asked to be taken off of it. Hope it works better for you. ~RG

Originally Posted by Nancy :
Hi Tim -- I was on Keppra for some time - sorry, can't remember the dosage now - and did not have any of the "rage". I don't think I had any side effect with that stuff.
(Now I'm taking 1200 mg Trileptal and 300 mg Topamax so I want to sleep all day)
Good luck with yours.
  #6  
Old 02-18-2007, 09:32 PM
Brain Surgery Experience
 
Join Date: Jul 2006
Location: Missouri
Posts: 578
Thanks: 0
Thanked 3 Times in 3 Posts
RG -- I started Topamax the day it was available :shock: That was .... hmmmmmmm ... how many years ago?? I did start it too fast and crashed with weight so I had to quickly stop taking it then very slowly increase the dosage back up.
And, oh, how I wish it would help my weight now - lol - I quit smoking 16 months ago and I've gained a ton. I was a chain smoker and now I'm a chain eater.
I think it's the Trileptal that makes me so very sleepy. Who knows?
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On



All times are GMT -5. The time now is 07:54 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.