Hello my name is Jimmy. I had my first seizure at 18 months old. I've had partial and tonic-clonic seizures my whole life. I was recently diagnosed with left temporal medial sclerosis. My doctor wants me to consider having a temporal lobectamy. He says that there is a very good chance I'll never have another seizure again if I have it done. I was wondering if anyone else had done it and what their experience was with surgery. I'm a little scared of surgery . I've taken different drugs throughout my life from phinabarbatal to Dilantin to tegratol to now I'm on oxcarbazepime and keppra. I'm not thrilled with surgery but a week ago my wife had to call 911 two times in one night. Both seizures lasted about 15 minutes and I chewed my tongue into hamburger. So now I'm seriously considering the surgery. I would appreciate any ones feedback that's been in similar situation. Thank you very much.
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My god do they still do lobotomy..I have temporal lobe aswell I take lamotrgine and colbazam I have taken same as you over the years but this best combo I had.hAve you had second third fourth opinions.
Some what you talking is first generation medicine I think I want more tests opinions.is your doc neurological or epilepsy doc..
Your doc use word chance I want 100% aCurvy .there are some. On here had operations for some very happy but not always the case..Maybe Bernard tell you what pages to go to read response.
I hope you get answer you need Jimmy good luck
Some what you talking is first generation medicine I think I want more tests opinions.is your doc neurological or epilepsy doc..
Your doc use word chance I want 100% aCurvy .there are some. On here had operations for some very happy but not always the case..Maybe Bernard tell you what pages to go to read response.
I hope you get answer you need Jimmy good luck
Hi, Jimmy and welcome to CWE!
I have never had brain surgery, but several members here have. Some have had successful surgery and some have had only partial success, but I don't know the specifics on the types of surgeries. I'm sure some of these people will respond soon. Good luck in reaching your decision!
I have never had brain surgery, but several members here have. Some have had successful surgery and some have had only partial success, but I don't know the specifics on the types of surgeries. I'm sure some of these people will respond soon. Good luck in reaching your decision!
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Hi Jimmy --
It can be difficult to guarantee a seizure-free outcome from brain surgery, so I would be a bit wary of your doctor's advice. Some folks become seizure-free, some continue to have seizures but fewer of them, some eventually require an additional surgery. Most need to continue on anti-seizure medication. Below are a few threads by CWE members discussing their surgeries and the results.
http://www.coping-with-epilepsy.com/forums/f41/almost-time-11741/
http://www.coping-with-epilepsy.com/forums/f41/looking-ahead-surgery-but-fear-setting-18981/
http://www.coping-with-epilepsy.com/forums/f20/epilepsy-surgery-12382/
http://www.coping-with-epilepsy.com/forums/f41/epilepsy-brain-surgery-natashas-story-24310/
http://www.coping-with-epilepsy.com/forums/tags/brain+surgery.html
It can be difficult to guarantee a seizure-free outcome from brain surgery, so I would be a bit wary of your doctor's advice. Some folks become seizure-free, some continue to have seizures but fewer of them, some eventually require an additional surgery. Most need to continue on anti-seizure medication. Below are a few threads by CWE members discussing their surgeries and the results.
http://www.coping-with-epilepsy.com/forums/f41/almost-time-11741/
http://www.coping-with-epilepsy.com/forums/f41/looking-ahead-surgery-but-fear-setting-18981/
http://www.coping-with-epilepsy.com/forums/f20/epilepsy-surgery-12382/
http://www.coping-with-epilepsy.com/forums/f41/epilepsy-brain-surgery-natashas-story-24310/
http://www.coping-with-epilepsy.com/forums/tags/brain+surgery.html
Hunter Dave
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My Heart goes out to you first off . Please Pray . Prayer will Strengthen you . After all you've gone through , you don't want any frequency to increase . Maybe the surgery is the way to go . My brother who has Parkinson's had Surgery and has no more shaking of the hands . I know that it is a Scary Issue to consider this , do your Homework get 2nd , 3rd and 4th opinions . If it's a complete success , you're Seizure Free . Learn All that you can about both sides of the coin and how life on either side would be . You will be in my Prayers Jimmy .