Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer



Reply
 
LinkBack Thread Tools
  #1  
Old 01-03-2012, 03:31 PM
New Here
 
Join Date: Jan 2012
Location: Canada
Posts: 4
Thanks: 0
Thanked 0 Times in 0 Posts

New here and Looking for support


Hello

The name is April, I'm 20 years and live in Canada.

Epilepsy is fairly new to me, after a serve head injury after being assaulted in October 2010. In December 2010 one night while asleep (had a friend staying over) my friend heard me making a mouth smacking noise and my legs were shaking. She thought I was annoyed and came over to tell me she was going to bed. It was then when she noticed I was having a seizure. She called in my parents, who in turn called an ambulance. I was taking to the local hospital where I was observed for a couple hourse and sent home. About an hour later in my sleep I suffered the same seizure again and was taken to another local hospital where I was kept in for observation.

I came to the next day and do not remember a THING. All I knew was my tongue was bitten, all my muscles were sore, and I had a big headache and the story from what my friend and family told me.

Next month I had my sleep EEG and other tests with my neurologist. She prescribed my Valproic Acid 3 times a day and Elavil to relax me before I sleep.

I had little tiny minor seizures maybe twice a month after that in my sleep but nothing major but in June I went away to England for a month where half way through the trip I had another major seizure in my sleep. I bit my tongue, shook, the works. Nothing changed medwise or sleep wise besides the time change.

Most recently on December 31st, while alseep around 10am I had another major seizure while asleep. My parents called the ambulance but this time I would NOT leave my bed. I refused to go and apparently even told the paramedic to eff off (I swear I don't remember doing that.) the paramedics left and apparently I was looking at my cell phone when I flew back, smashed my head off the wall and started having another seizure. I was all tensed up in the body and face and was shaking everywhere.

This time I apparently went to the hospital because I was so out of it. I came to in the hospital bed when we arrived at the hospital.

I just wanted somewhere to share my experiences and see if anyone else knows what I am going through. It really is terrifying that these happen in my sleep and I have no clue. I'm scared one day I may choke and loose consiousness.

I'm also interested in switching medication, I feel like what I take isn't right.
Reply With Quote
  #2  
Old 01-03-2012, 04:39 PM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Posts: 4,500
Thanks: 406
Thanked 1,308 Times in 939 Posts

Welcome April


Yaaay, another Canadian. There's a few of us on this site.

I was born with my seizures and even having them for so long I know how weird it is to not remember anything. Mine aren't convulsive but I often don't know if part of the seizure was cut out from my memory.

Meanwhile, make yourself at home & check out the rest of the site.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Reply With Quote
  #3  
Old 01-03-2012, 06:09 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,380
Thanks: 938
Thanked 7,290 Times in 5,376 Posts
Hi missapril, welcome to CWE!

It sounds like your current medications need to be re-evaluated. Have you talked to your neurologist about adjusting the doses, or trying a different med?

It can also help to keep a seizure diary where you track not only your seizures, but any other things that might be potential triggers. These can include fatigue, alcohol, issues with metabolism/nutrition, low blood sugar, low blood pressure, fluctuating hormones, infections, food sensitivities, emotional stress, flashing lights... Triggers can occur right before a seizure, or as much as 24 hours beforehand. They can be discrete incidents or a cumulative effect.

There's more good info to get you started here: http://www.coping-with-epilepsy.com/...epilepsy-1254/

Best,
Nakamova
Reply With Quote
  #4  
Old 01-03-2012, 08:48 PM
New Here
 
Join Date: Jan 2012
Location: Canada
Posts: 4
Thanks: 0
Thanked 0 Times in 0 Posts
Thank you!

I have a feeling like my medication is not right but I have an appointment with a brand new neurologist next since my last moved 6 hours away (eek)

I've never thought about keeping a journal but I definitely think I'm going to give it a try!

I will check out the site, thank you
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Utah Epilepsy Support Group / or any support group Bluesbrkr The Kitchen 0 08-19-2011 05:06 PM
Support and information flinnigan Riva's Memorial 0 02-05-2011 06:53 PM
I need some support Superman1988 Lemonade Stand 11 02-03-2011 07:17 PM
New...and in need of support wendy The Foyer 7 07-10-2009 05:42 PM
Mom of 7, here for support Sevenup The Foyer 6 04-24-2009 06:59 AM


All times are GMT -5. The time now is 03:35 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.