Hi All,
I am new here and very happy to have found this formum.
Here is my story.
Three years ago, after recovering from a vicious strain of flu, I began fainting. In the beginning, it only happened 2 or 3 times a week. As time progressed, the fainting/falling steadily increased from a few times a week, then daily, then multiple times each day. I currently faint anywhere between 4 and 1O times each day.
Due to the chronic fainting, I had to stop working on my masters in education because I just couldn't get to class without fainting during the class. I also have had to rely on parents and friends for transportation. I am 3O.
I was originally diagnosed with Postural Orthostatic Hypotension/Neurocardiogenic syncope. (Basically, my blood pressure would plummet when standing causing me to fall to the floor.} The chronic fainting por falling has been going on for three years- I have seen 4 cardiologists- heart is ok. Several neurologists and so far very little has worked. I have had two regular EEGs and One 24 hour videotaped EEg. Unfortunately, most of my attacks occur when I am standing or sitting and we were unable to capture an episode on the EEG. I have spoken to my neuro and we are trying to get a 24 hour ambulatory EEG done to see if that will show anything.
I am 3O years old. In addition to the chronic fainting problem, I also have severe intractable migraines/New Daily persistent headache. I have an implanted occipital nerve stimulator to control the headaches and allow medications to work. Headaches became chronic at age 17.
The main problem is the fact that very few people with dysautonomia faint/fall as much as I do. I have heard of drop seizures in small children, and some of it looks an awful lot like what happens to me.
So far, the only things that have helped this at all are C-Pap at night, used for mild sleep apnea, Klonopin, and IV's of Depakan given to break a really bad headache. We are not sure what the diagnosis it- it doesn't seem to fit into any category very well, but it could be petit mal/drop seizures. I know I am grasping at straws here, but I would love to hear from anyone about this problem.
Any ideas?
Pain free days,
sconesail
I am new here and very happy to have found this formum.
Here is my story.
Three years ago, after recovering from a vicious strain of flu, I began fainting. In the beginning, it only happened 2 or 3 times a week. As time progressed, the fainting/falling steadily increased from a few times a week, then daily, then multiple times each day. I currently faint anywhere between 4 and 1O times each day.
Due to the chronic fainting, I had to stop working on my masters in education because I just couldn't get to class without fainting during the class. I also have had to rely on parents and friends for transportation. I am 3O.
I was originally diagnosed with Postural Orthostatic Hypotension/Neurocardiogenic syncope. (Basically, my blood pressure would plummet when standing causing me to fall to the floor.} The chronic fainting por falling has been going on for three years- I have seen 4 cardiologists- heart is ok. Several neurologists and so far very little has worked. I have had two regular EEGs and One 24 hour videotaped EEg. Unfortunately, most of my attacks occur when I am standing or sitting and we were unable to capture an episode on the EEG. I have spoken to my neuro and we are trying to get a 24 hour ambulatory EEG done to see if that will show anything.
I am 3O years old. In addition to the chronic fainting problem, I also have severe intractable migraines/New Daily persistent headache. I have an implanted occipital nerve stimulator to control the headaches and allow medications to work. Headaches became chronic at age 17.
The main problem is the fact that very few people with dysautonomia faint/fall as much as I do. I have heard of drop seizures in small children, and some of it looks an awful lot like what happens to me.
So far, the only things that have helped this at all are C-Pap at night, used for mild sleep apnea, Klonopin, and IV's of Depakan given to break a really bad headache. We are not sure what the diagnosis it- it doesn't seem to fit into any category very well, but it could be petit mal/drop seizures. I know I am grasping at straws here, but I would love to hear from anyone about this problem.
Any ideas?
Pain free days,
sconesail