GraceyFace
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hey im grace
ok first off my confession
i have been registered for over a year, but chose not to post or really take any sort of involvement in this online community, because i had this idea in my head that if i did then i was labelling myself a victim. when i decided to get over it and realised that maybe talking to people that understand alot of what i go through, might help me,i started posting and replying.that was approximatly .5 seconds ago .
so who am i and whats my story, well im 20 and i had my first seizure when i was 14, the seizure was a result of an eating disorder i had hidden quite well up until the fact. i had all "those" tests that recognise that my brain is not too big for my head and i decided against drugs when it came time to decide a course of action. so i spent the next two years hopping from one homeopath to the next. when i got to sixteen, i had had enough, i wanted a "normal" teenage life, i wanted to drive, go to concerts, drink etc etc so i opted for drugs, got put onto epillim and have been on it ever since.my dosage has upped over the years and some things have changed, but the seizures havent ceased.
i now recognise that the main cause for my seizures are stress...any kind, physical , mental and especially emotional. as like most of you i experience the pre seizure de je vu, i take that as my warning sign, once that happens there are only two options, lie down , breathe deep and prevent a seizure, or collapse into a grand mal. i have had countless seizures wayy to many to remember and in some of the most innappropriate and unusual places you can think of. and i guess at the time i would get upset or depressed...
but my approach these days is a bit different, ive had epilepsy for a while, it dosnt seem to be going anywhere so i deal with it, epilepsy dosnt change my personality and it certainly dosnt stop me from doing anything i want to do, its just a challenge
hope i can help sum of u out wen ur in that lonely place and vice versa
ok first off my confession
i have been registered for over a year, but chose not to post or really take any sort of involvement in this online community, because i had this idea in my head that if i did then i was labelling myself a victim. when i decided to get over it and realised that maybe talking to people that understand alot of what i go through, might help me,i started posting and replying.that was approximatly .5 seconds ago .so who am i and whats my story, well im 20 and i had my first seizure when i was 14, the seizure was a result of an eating disorder i had hidden quite well up until the fact. i had all "those" tests that recognise that my brain is not too big for my head
and i decided against drugs when it came time to decide a course of action. so i spent the next two years hopping from one homeopath to the next. when i got to sixteen, i had had enough, i wanted a "normal" teenage life, i wanted to drive, go to concerts, drink etc etc so i opted for drugs, got put onto epillim and have been on it ever since.my dosage has upped over the years and some things have changed, but the seizures havent ceased.i now recognise that the main cause for my seizures are stress...any kind, physical , mental and especially emotional. as like most of you i experience the pre seizure de je vu, i take that as my warning sign, once that happens there are only two options, lie down , breathe deep and prevent a seizure, or collapse into a grand mal. i have had countless seizures wayy to many to remember and in some of the most innappropriate and unusual places you can think of. and i guess at the time i would get upset or depressed...
but my approach these days is a bit different, ive had epilepsy for a while, it dosnt seem to be going anywhere
so i deal with it, epilepsy dosnt change my personality and it certainly dosnt stop me from doing anything i want to do, its just a challenge hope i can help sum of u out wen ur in that lonely place and vice versa
