sixpack
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:rose::rose:Hello, I've been perusing your forum for about a week now and finally decided to join the group. I'm a mother of 6 kids, hence the name sixpack:roflmao: My eldest daughter, Lindsay (21), is adopted from my sister and she is the reason for my being here. At 4 months old she was diagnosed with a rare brain abnormality called Unilateral Schizencephaly along with optic atrophy and hypoplasia. Wow that's a lot to take in. Not a lot is known about this abnormality especially in 1987. What we were told is that she'd likely never walk or talk and would likely have seizures by the time she turned 1. Well 21yrs later we have a child that has vision, motor, language, and cognitive disablities. She didn't start having seizures until she turned 13. She's a real mess but we love her loads. Her first seizure started as a complex partial but became generalized. She was on the school bus!!! For the first few years we were able to keep them fairly under control with a few complex partials or simple partials breaking through. In the last two years or so we've really started having scary changes in the seizure activity. We now see, in addition to cps and sp, tonic/clonic, tonic and the horrifying atonics. I say horrifying because three of the atonics have resulted in trips to the ER. I will say that we have a very caring neuro. He really works to help us. I actually have his cell phone number that he answers "hello" and not Dr. R.:woot: Anyway we are trying several things hoping to calm down the activity. We've added her third seizure med and will soon start Birth control Pill. We are hoping the BCP will allow us to wean her off one seizure med. She recently had an EEG and it did show changes from the previous EEG of 18mos earlier so we have some work to do. Anyway I'm impressed at the support you all have for each other and am looking forward to getting to know you all better.:banana: