My 16 year old son was diagnosed with Generalized Epilepsy (Tonic clonic) and in the past year has had 7 Seizures. Most where initially are around 1 month apart.
He was then placed on Epilim Chrono 500mg x 2 per day and we thought it may have stopped or at least reduced as he did not have one for 4 months.
After the 4 months it was 2 months then one month. So now feels like it's not working.
Each time it happens is in the evening time (18:00-21:00) when he is relaxing in his bedroom.
What is very strange is he has these all of these after a exciting/anxious day. For example Christmas Day (exciting). Last week I took him shopping for a new suit for higher college (exciting). At a Friends Birthday Party (Exciting). Getting ready for Cinema (excited). After he returned from Hospital appointments (anxious).
Is this normal ?
We have next hospital appointment in November I suspect they will up his medication from 1000mg a day.
It does not seem like the Medication is working. However I would not know.
Also my Son NEVER misses his medication However sometimes the times are out for example when in School he takes first one at 8:00am and when off school he may not get up till 10:30am so could be 11:00am, Could these few hour difference have any affect? Evening time he may take it anytime from 6:00 - 8:00pm. So we have to remind him.
Any advice appreciated.
Regards
Patrick
He was then placed on Epilim Chrono 500mg x 2 per day and we thought it may have stopped or at least reduced as he did not have one for 4 months.
After the 4 months it was 2 months then one month. So now feels like it's not working.
Each time it happens is in the evening time (18:00-21:00) when he is relaxing in his bedroom.
What is very strange is he has these all of these after a exciting/anxious day. For example Christmas Day (exciting). Last week I took him shopping for a new suit for higher college (exciting). At a Friends Birthday Party (Exciting). Getting ready for Cinema (excited). After he returned from Hospital appointments (anxious).
Is this normal ?
We have next hospital appointment in November I suspect they will up his medication from 1000mg a day.
It does not seem like the Medication is working. However I would not know.
Also my Son NEVER misses his medication However sometimes the times are out for example when in School he takes first one at 8:00am and when off school he may not get up till 10:30am so could be 11:00am, Could these few hour difference have any affect? Evening time he may take it anytime from 6:00 - 8:00pm. So we have to remind him.
Any advice appreciated.
Regards
Patrick
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