Hi everyone, I hope you are all well
I was wondering if anyone has occipital lobe epilepsy? What do you see? How were you diagnosed? Do you have any other seizures along with it?
I'm being investigated or epilepsy and migraine, I never get migraine headaches. I've had an EEG done and waiting for an MRI.
Since June 2014, I began seeing lights, after images of objects in bright neon colours (blue,yellow,pink,purple). I've since realised this is palinopsia. Something, like a computer screen or a window or even a person would appear repeatedly in my vision, glowing in a bright colour and multiplying.
Sometimes a room starts humming with bright colours, outlines of objects and people shine bright blue or pink. I see multiples of objects everywhere I look. If I'm having an episode & I move my hand it looks like slow motion, after images of my hand trail behind. Same with lights- like a long exposure effect on a camera.
I sometimes see shimmering lines and balls, spinning circles, waves of light moving across my eyes. Sometimes objects appear to move in and out, or ripple, or move further away from me.
More infrequently I see a face on a wall, like a photo, or I'll see a cat jumping where there is no cat. I see something move out the corner of my eye, like an animal or a person. I've seen little black dots crawl all over the wall, once a bright green net took up my entire vision, everything I saw was trapped behind it.
About 3 times I've been stopped in my tracks and sucked into a memory, watching it play out in front of me. I can smell the air & hear the sounds of the memory. This is incredibly intense.
I have other weird things like twitching, absences, rising feeling, confusion, memory loss, intense nausea, loss of consciousness, hearing weird sounds, odd sensations on the skin etc & while they are frequent the lights, after images, lights & colours I see every single day. They've only gotten stronger since June & they are baffling. The doctors don't say much about them, but seem confused & intrigued.
I'm guessing this is rare? Does anyone here suffer from occipital lobe epilepsy & does it sound like this? I'm desperate to understand what is happening to my brain! It happens for hours a day & its exhausting to ignore & even more exhausting to understand.
I had my sleep deprivation EEG done yesterday, I had lots of twitches and plenty of visual seizures so I hope they caught something.
It would be wonderful to talk to someone who has equally odd visual symptoms!
Thanks all xx
I was wondering if anyone has occipital lobe epilepsy? What do you see? How were you diagnosed? Do you have any other seizures along with it?
I'm being investigated or epilepsy and migraine, I never get migraine headaches. I've had an EEG done and waiting for an MRI.
Since June 2014, I began seeing lights, after images of objects in bright neon colours (blue,yellow,pink,purple). I've since realised this is palinopsia. Something, like a computer screen or a window or even a person would appear repeatedly in my vision, glowing in a bright colour and multiplying.
Sometimes a room starts humming with bright colours, outlines of objects and people shine bright blue or pink. I see multiples of objects everywhere I look. If I'm having an episode & I move my hand it looks like slow motion, after images of my hand trail behind. Same with lights- like a long exposure effect on a camera.
I sometimes see shimmering lines and balls, spinning circles, waves of light moving across my eyes. Sometimes objects appear to move in and out, or ripple, or move further away from me.
More infrequently I see a face on a wall, like a photo, or I'll see a cat jumping where there is no cat. I see something move out the corner of my eye, like an animal or a person. I've seen little black dots crawl all over the wall, once a bright green net took up my entire vision, everything I saw was trapped behind it.
About 3 times I've been stopped in my tracks and sucked into a memory, watching it play out in front of me. I can smell the air & hear the sounds of the memory. This is incredibly intense.
I have other weird things like twitching, absences, rising feeling, confusion, memory loss, intense nausea, loss of consciousness, hearing weird sounds, odd sensations on the skin etc & while they are frequent the lights, after images, lights & colours I see every single day. They've only gotten stronger since June & they are baffling. The doctors don't say much about them, but seem confused & intrigued.
I'm guessing this is rare? Does anyone here suffer from occipital lobe epilepsy & does it sound like this? I'm desperate to understand what is happening to my brain! It happens for hours a day & its exhausting to ignore & even more exhausting to understand.
I had my sleep deprivation EEG done yesterday, I had lots of twitches and plenty of visual seizures so I hope they caught something.
It would be wonderful to talk to someone who has equally odd visual symptoms!
Thanks all xx