Ok so my Epilpsy began at age 12 the same day I had my colon removed. That surgery was the worse one so far left me with brain dammage and in a coma for 3 days. People told me if I had had that seizure anywhere else in the world I would be dead.
so that was like 19 years ago now. Since than I ahve tried multiple meds and about 10 years ago had my first video EEG where they determined that seizures move in my brain so removing seizure brain wasn't an option but I was a canditate for the VNS. I won't get into much detail but with the VNS and the meds I am on I am still not seizure free and my doctor wants me to have a video EEG again......and I don't want the few surgery options that didn't exists 10 years ago so I realize brains change with time....but I so would like some reasurance from someone not trying to make money off me having any surery or test that something they learn by doing the video EEG again will effect treatment in some way.
Currently very frustrated and stress about this and dealing with a lot of illnesses besides epilepsy.
so that was like 19 years ago now. Since than I ahve tried multiple meds and about 10 years ago had my first video EEG where they determined that seizures move in my brain so removing seizure brain wasn't an option but I was a canditate for the VNS. I won't get into much detail but with the VNS and the meds I am on I am still not seizure free and my doctor wants me to have a video EEG again......and I don't want the few surgery options that didn't exists 10 years ago so I realize brains change with time....but I so would like some reasurance from someone not trying to make money off me having any surery or test that something they learn by doing the video EEG again will effect treatment in some way.
Currently very frustrated and stress about this and dealing with a lot of illnesses besides epilepsy.