Working to Spread Facts About E

[acshuman]

I work very closly with the Epilepsy Foundation of Minnesota(EFMN) as a volunteer. The main office(St. Paul) of the state Foundation asks me for my help in many different ways. I try to tell them what it is like to be the person w/E and what they can do to make their work be more helpful to people w/E.
I am on disability after a long working career! So I have made the decision to help people who are having with problems(not financial) dealing with their E( my brain still works fine). I am a Mentor and advisor to many people who need to talk with someone about their E.
This has been a very fulfilling undertaking for me! I have been able to help people w/E, but I have also learned soooo much about the different feelings that a person w/E may be holding inside of them and not releasing. The availability of having a person or site to vent on or to can be helpful to a person like this.
I learned this back on the farm as I was growing up. Many times my most soothing times were when I was on a tractor doing field work. This was because I could scream as loud as I wanted about any type of problem, and nobody could hear me screaming(thinking I was nuts). I felt much better after having one of these 'sessions with nature'.
Anytime anyone needs to vent send me a message and I will be totally accepting!

ACsHuman:hugs:

 

[Cint]

Keep it up. I've been working off and on with the Epilepsy Foundation for a long time. Years ago, my son was in elementary school, he went around the neighborhood collecting $$ for the golf tournament we had that year. And when he was in High School, he gave a speech about his mom and that she has E. He did it all on his own, I didn't have to ask him to do it.

 

[Bernard]

There are so many facets to the epilepsy experience. I can remember when I first created this site and started participating in every online epilepsy forum I could find. I had no idea how small a slice my wife's experience represented on the epilepsy patient spectrum. I've learned a lot from the great people who share their journeys here.