Hey all --
I'm the father of an excellent little 15-month old daughter. She has been having seizures since she was nine months, and in that time has had 10 big seizures (grand mal type) and countless little absence seizes (my wife and I call them "space outs"). Her development to date is excellent, she is meeting all of her milestones, and is even quite ahead on some (such as verbal). She is smiley and energetic, playful, engaging and fun. So I guess all things considered, so far so good. But her big seizures are usually static, so I worry a lot about harm from those, and our neurologist has thrown around a lot of possibilities that feel pretty scary to me right now (Rett, Dravet's, etc.). When I read up on those, our daughter doesn't seem to fit the profiles, but nonetheless I'm constantly on the lookout for possible regression.
Anyway, just thought I'd get involved here for a little support and to learn from others' experiences. Thanks.
T's Dad
I'm the father of an excellent little 15-month old daughter. She has been having seizures since she was nine months, and in that time has had 10 big seizures (grand mal type) and countless little absence seizes (my wife and I call them "space outs"). Her development to date is excellent, she is meeting all of her milestones, and is even quite ahead on some (such as verbal). She is smiley and energetic, playful, engaging and fun. So I guess all things considered, so far so good. But her big seizures are usually static, so I worry a lot about harm from those, and our neurologist has thrown around a lot of possibilities that feel pretty scary to me right now (Rett, Dravet's, etc.). When I read up on those, our daughter doesn't seem to fit the profiles, but nonetheless I'm constantly on the lookout for possible regression.
Anyway, just thought I'd get involved here for a little support and to learn from others' experiences. Thanks.
T's Dad