Oh god, I can't tell you how much of a relief finding this forum has been. I've been having problems since I was 12 or 13, and before meds my seizures kept me in a near constant state of hallucenation and terror (weirdly no one thought to send me to the doctor when I'd run screaming from class or was found on the floor of the girls room unable to move or speak) I was too scared to go to a doctor until an old boss of mine forced me to go or be fired, and when I did I was given a schizophrenia diagnosis. I was put on antipsychotics which only helped a little, a thing which confirmed my family's opinion that I was faking it. It took years before the doctor revised her diagnosis to possible epilepsy and changed my meds, but she didn't tell me I had a new diagnosis. I found out when I needed her to write a letter to the unemployment office about my work problems. It said 'seizure disorder' and 'partial complex seizures.' I was eventually sent to a neurologist, who ran several expensive tests and didn't tell me anything about what was going on or what to expect.
I've been so ashamed of my problem and half convinced I'm somehow subconciously faking it like my family says, because my seizures were so strange. I finally got online and looked up what exactly seizure disorder was when I began having problems at my new job. None of it made me feel any better, until I found this forum and read what people were posting and realized I understood what they were talking about. It's not just me being crazy or unconciously faking it to get out of work. It's actually something and it has a name and other people have it to. Whew. That is such a load off my mind.
*rambling* Anyway! So glad to find this place. Hello everyone ^_^
I've been so ashamed of my problem and half convinced I'm somehow subconciously faking it like my family says, because my seizures were so strange. I finally got online and looked up what exactly seizure disorder was when I began having problems at my new job. None of it made me feel any better, until I found this forum and read what people were posting and realized I understood what they were talking about. It's not just me being crazy or unconciously faking it to get out of work. It's actually something and it has a name and other people have it to. Whew. That is such a load off my mind.
*rambling* Anyway! So glad to find this place. Hello everyone ^_^