Coping With Epilepsy The Enhancement Institute
10% off neurofeedback training for CWE members - Houston, TX
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Library



Reply
 
LinkBack Thread Tools
  #1  
Old 08-04-2006, 01:10 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984

feeling so so down!


hi all i am feeling so down at the momet!
i will expline to you!

1.on thursday my friend came for the night and on firday she went home! that was ok felt fine about that becouse she comign next week on thursday or firday!

2. next thing i phoned my boyfriend and he was saying well i what to come and se you well i said well i what jenna to come and i had not seen her a a long time. not for a good old chat anyrode!
so that relly upset me. :x


then on sunday well that was the bigger! i got feel relly good and then i went down stairs and me and mum where chatting about diffitn things she was saying about a trip on the 31st of aug and i said well i have a hostpal appment on the 1st of septmber and then she said well ryan (boyfriend ) was coming to the appment now and i said well you cannot get anything out of him! lol but jenna and tracy my 2 friends are really good! and then she said well you have northing wrong with you!!!! but then i thought yeah there is i could have epilepsy!

and then eveysence then i just been so mad and really upset. and then agian today ryan had a noter go at me i not feeling very well today i had a seizure in my sleep so feel so tiyed going just watch tv and read a book tongith

caroline please somone chat to me!!!!! :wink: so upset! at the momet!
Reply With Quote
  #2  
Old 08-04-2006, 01:18 PM
Joined the Party
 
Join Date: Aug 2006
Location: Bournemouth, England
Posts: 53
Thanks: 0
Thanked 0 Times in 0 Posts
Sorry your feeling so low at the moment.

When you go to the neurologist just make sure you take someone who will support you.
__________________
Rachel
Reply With Quote
  #3  
Old 08-04-2006, 01:31 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984
i just think i am await for long time and i making me so down!!!
caroline
Reply With Quote
  #4  
Old 08-04-2006, 01:36 PM
Joined the Party
 
Join Date: Aug 2006
Location: Bournemouth, England
Posts: 53
Thanks: 0
Thanked 0 Times in 0 Posts
You do seem to have waited a long time, but like you said it;s next month. So you are nearly there Keep going, your doctor will be professional and you must ask as many questions as YOU need to and if he has to explain it a few times, then that's not a problem either. This is why you have to take someone with you.
__________________
Rachel
Reply With Quote
  #5  
Old 08-04-2006, 02:05 PM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,514
Thanks: 769
Thanked 2,285 Times in 815 Posts
Whew! Slow down girl!

I'm not sure I understood most of your post, but I know that Stacy always had more seizure activity when she got excited (for good or bad reasons).

People's opinions do not change reality. I try not to worry about what everyone thinks. The truth comes out eventually.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
  #6  
Old 08-05-2006, 07:26 AM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984
how do you mean slow down sorry about my spelling i got a few prolims and that why it not that clear!

why am i waiting so long i feel that i am wating for long time and i have more syons now and no one belives me it doing my head in that mum dont belive me.
caroline help
Reply With Quote
  #7  
Old 08-05-2006, 11:01 AM
Joined the Party
 
Join Date: Aug 2006
Location: Bournemouth, England
Posts: 53
Thanks: 0
Thanked 0 Times in 0 Posts
Now you've had the letter for you to ring for an appointment that must make you feel a bit better. You will then at least have a date.

Like I've said before your mum is probably struggling to come to terms with the fact that you have something wrong with you, perhaps she's just trying to block it out. After you've seen the specialist and had your eeg you will have something to show your mum. She will support you, but at the moment your both in limbo aren't you. Just not sure what's wrong and she's probably really worried about you.

I'm sure all this worrying you are doing is not helping how you are feeling.

My husband has serious health problems and the only way we can deal with it, is to life each day at a time and worry when you HAVE to worry and try not to worry if you don't have to. It takes time to feel that way, but when you can it will really help.

I'm so sorry your feeling so low at the moment. It will get better but it might just take some time.
__________________
Rachel
Reply With Quote
  #8  
Old 08-05-2006, 11:56 AM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984
Originally Posted by Rachel :
Now you've had the letter for you to ring for an appointment that must make you feel a bit better. You will then at least have a date.

Like I've said before your mum is probably struggling to come to terms with the fact that you have something wrong with you, perhaps she's just trying to block it out. After you've seen the specialist and had your eeg you will have something to show your mum. She will support you, but at the moment your both in limbo aren't you. Just not sure what's wrong and she's probably really worried about you.

I'm sure all this worrying you are doing is not helping how you are feeling.

My husband has serious health problems and the only way we can deal with it, is to life each day at a time and worry when you HAVE to worry and try not to worry if you don't have to. It takes time to feel that way, but when you can it will really help.

I'm so sorry your feeling so low at the moment. It will get better but it might just take some time.
hi there!
yeah having the letter thought makes it a bit better!
she just sims like she dont thinks thee anything wrong with me becouse there happing in the day. but there really bad becouse the can happed when people aare not there.
it could be that becouse she said dont tell my nanna becouse she get worried about me and keep asking i think thats nice when people ask how you are?

yeah you prolim write there i am just fint it really hard i dont like waiting for things to come.

i can go about 2wks and then i have a nother seizure.
caroline
Reply With Quote
  #9  
Old 08-05-2006, 02:57 PM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,514
Thanks: 769
Thanked 2,285 Times in 815 Posts
Hi Caz, you sounded very anxious in your first post on this thread. By 'slow down', I meant take a deep breath and try to calm yourself. Release the stress as best you can - it's not good for you.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
  #10  
Old 08-05-2006, 04:09 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984
yeah i now what you mean i am just very worring becouse for neal a yeah now i been like off clour!

caroline
Reply With Quote
  #11  
Old 10-05-2006, 01:58 PM
New Here
 
Join Date: Oct 2006
Posts: 1
Thanks: 0
Thanked 0 Times in 0 Posts

Feeling down too!!!


I read your thoughts, and it reminds me of what I go through. I think that there are certain people always there for me, but I find when I need them the most, (when I'm feeling down) they are not there. People just don't understand, the comments of there is nothing wrong or it will get better soon.... I just want to scream at them and sometimes honeslty I want to hit them.

I am feeling really down right now and very afraid as the docs can't seem to get my meds on track and I am always really tired or feel like I am sooo drunk I can't function. I am starting a new job soon and that scares me even more but it makes me feel really down more than anything. I have already lost a job of almost 12 years when I was diagnosed almost 4 years ago and am afraid it is going to happen again. I can't get the fear of what has happened in the past out of my head.
Reply With Quote
  #12  
Old 10-06-2006, 08:57 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,514
Thanks: 769
Thanked 2,285 Times in 815 Posts
Hi tk, I think people make those comments a lot of the time because they don't know what else to say and want to be positive/comforting. It's almost a coping reflex for situations where they are helpless.

It can take a while for meds to titrate to therapeutic doses and the body to adapt to them. It can take even longer to find the right drug or drugs to achieve the right balance of seizure control and minimal side effects. In the meantime, you might try asking your docs about the modified atkin's diet. Preliminary studies have been positive with regards to seizure control and it won't make you drowsy/drunk.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
feeling low!! kittykat2009 The Lounge 6 08-05-2006 08:49 AM


All times are GMT -5. The time now is 07:57 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.