Thats kinda why Im stuck as Im not sure where we fall. I was hoping the experts to give me a nudge in the correct direction. I know my son responded to wheat, yeast, gluten a few years ago. Dairy doesnt seem to be an issue. We had him tested but it was before the E showed up.
joan*
I am looking for more information on "acquired" gluten sensitivity. Mine is from antibiotics damaging my digestive tract-can no longer make all the enzymes needed for proper digestion. Even if your son doesn't test out as having celiac disease or gluten intolerance, he may still be gluten intolerant.
There's more solid information on Dr. Lewey's site about this.
I posted somewhere else a study showing that it may develop in children if gluten containing foods are introduced into their diet at too young an age. There are so many factors to consider in this. We just have to keep exploring 'til we find what works.
It is difficult to stay with any of these diets, for adults as well as kids. I did pretty well on the specific carbohydrate diet, though found it a bit too restrictive for me. I hear it has been useful for others who did not respond well to the gluten free diet. The SCD may be the best shot for those with more symptoms. The key, for me, was to plan well in advance on the diet. I needed to have my meals and take along snacks all figured out and made up on schedule to keep with the diet. Otherwise, I get so hungry I'll end up eating food that isn't good for me. Donna Korn has a book out on celiac disease and kids with a lot of suggestions you may find useful, whichever diet you decide to use. I found it in the library.
Something to keep in mind if you are having your son tested; if he goes on a low or gluten free diet, it may ease his symptoms and then any testing won't show up that he has the gluten sensitivity.
I'm being an information junkie tonight. This abstract below is from a new research study on seizures and gluten intolerance.
:mrt:
1: J Gastrointestin Liver Dis. 2008 Dec;17(4):379-82.
How frequent is celiac disease among epileptic patients?
Emami MH, Taheri H, Kohestani S, Chitsaz A, Etemadifar M, Karimi S, Eshagi MA,
Hashemi M.
Isfahan University of Medical Sciences (UMS) and Poursina Hakim Institute (PHRI),
Isfahan, Iran; Email:
taheri@edc.mui.ac.ir.
BACKGROUND. A variety of neurological disorders have been reported in association
with celiac disease (CD) including epilepsy, ataxia, neuropathy and multifocal
leucoencephalopathy. The purpose of this study was to assess the prevalence of CD
among epileptic patients. METHODS. Our study population consisted of 108
consecutive unexplained epileptic patients from Epilepsy Clinics. Patients who
were able to give informed consent were invited to undergo screening for CD in a
gastroenterology clinic. The diagnosis of CD was determined by IgA anti-tissue
transglutaminase (t-TG) antibodies and by small intestine biopsy. Histopathologic
changes were interpreted according to the Marsh classification. RESULTS. A total
of 108 consecutive epileptic patients (72 females, 36 males) ranging from 2-64
years (mean: 23.44, SD: 12.1) were studied. Positive IgA anti t-TG were detected
in 4 of 108 epileptic patients (3.7%), while the known prevalence of CD in the
study area was 0.6%.The intestinal biopsy confirmed the diagnosis of CD in three
patients and was interpreted as Marsh I. In the other patient, small intestinal
biopsy indicated only slightly increased number of intraepithelial lymphocytes.
There was a significant difference between patients with CD and without CD for
two symptoms: diarrhea and aphtous lesions (p<0.05). CONCLUSION. Prevalence of CD
was increased among patients with epilepsy of unknown etiology. It is important
to investigate CD in any patient with idiopathic epilepsy even in the absence of
digestive symptoms.
PMID: 19104696 [PubMed - in process]
http://www.ncbi.nlm.nih.gov/pubmed/...nel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum