Stacy,
I truely understand that you want to be off all Meds and seizure free. But, from the posts that have been put in your Dairy it seems that you need some MORE meds. I know that is not something that you want to hear, but it very well may be the truth. ( it doesn't have to be forever)
You have a much better chance of getting off of med if you get your seizures totally under control first. Seizures have a snowball effect. Once they start rolling they just keep getting bigger and better.
I would suggest that you add something to your Dilantin as well as do the other stuff that you do. Once your seizures are under control for a couple of years then you can try taking some of your meds away.
If you continue to seize the way you are now, they are just going to get worse.
Have you ever tried Lamictal? It is like Dilantin in the aspect that it covers a wide range of seizure types. I liked the drug on a whole, and thought that it had much fewer side effects then Dilantin. My only issue with it was facial pain, and headaches. But, most people do very well with it.
I truely understand that you want to be off all Meds and seizure free. But, from the posts that have been put in your Dairy it seems that you need some MORE meds. I know that is not something that you want to hear, but it very well may be the truth. ( it doesn't have to be forever)
You have a much better chance of getting off of med if you get your seizures totally under control first. Seizures have a snowball effect. Once they start rolling they just keep getting bigger and better.
I would suggest that you add something to your Dilantin as well as do the other stuff that you do. Once your seizures are under control for a couple of years then you can try taking some of your meds away.
If you continue to seize the way you are now, they are just going to get worse.
Have you ever tried Lamictal? It is like Dilantin in the aspect that it covers a wide range of seizure types. I liked the drug on a whole, and thought that it had much fewer side effects then Dilantin. My only issue with it was facial pain, and headaches. But, most people do very well with it.