Coping With Epilepsy EEG Centre For Neurofeedback
10% off neurofeedback training for CWE members - Tyrone, NC
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Library



Reply
 
LinkBack Thread Tools
  #1  
Old 05-03-2012, 12:27 AM
qtowngirl's Avatar
CWE Supporter/E Hater
 
Join Date: Jun 2011
Location: northern British Columbia
Posts: 2,557
Thanks: 1,102
Thanked 1,946 Times in 1,048 Posts

When should surgery be considered?


For anyone with/interest in temporal lobe epilepsy Surgery and Mesial Temporal Sclerosis here's a must read. Sure filled in a few numbers for me.


http://www.cmaj.ca/cgi/content/full/172/9/1175
Reply With Quote
The Following 3 Users Say Thank You to qtowngirl For This Useful Post:
epileric (05-03-2012), Penny (06-23-2014), thecatcameback (07-18-2014)
  #2  
Old 05-03-2012, 06:56 AM
P-Funk's Avatar
Venerable Voice of CWE
 
Join Date: Apr 2012
Location: New England
Posts: 1,173
Thanks: 532
Thanked 1,108 Times in 618 Posts
I really found this part of the article comforting (in bold). It's nice to know there is a chance to regain that which was lost.

Although hippocampal resection can impair memory, it has long been known that the memory deficits related to continued complex partial seizures may actually be reversed, and overall cognitive function improved, if seizure-induced dysfunction of the contralateral hippocampus is eliminated by temporal lobe surgery.
Reply With Quote
  #3  
Old 05-03-2012, 08:40 AM
qtowngirl's Avatar
CWE Supporter/E Hater
 
Join Date: Jun 2011
Location: northern British Columbia
Posts: 2,557
Thanks: 1,102
Thanked 1,946 Times in 1,048 Posts
Originally Posted by P-Funk View Post:
I really found this part of the article comforting.
Here's mine:

Quote :
In general, the psychological and social consequences of disabling complex partial seizures that develop over time in many people with epilepsy have a much more negative impact than any adverse effects of surgical treatment.
This however didn't feel so good. Have my druthers about being in the 10 per cent.

Quote :
Because temporal lobe epilepsy with mesial temporal sclerosis is refractory to antiepileptic medications in more than 90% of patients with the condition.
Reply With Quote
  #4  
Old 05-03-2012, 08:51 AM
P-Funk's Avatar
Venerable Voice of CWE
 
Join Date: Apr 2012
Location: New England
Posts: 1,173
Thanks: 532
Thanked 1,108 Times in 618 Posts
I assume they were able to find a focus in your temperal lobe. If so, how many eegs did it take and/or how much monitoring time.
Reply With Quote
  #5  
Old 06-01-2012, 09:43 AM
qtowngirl's Avatar
CWE Supporter/E Hater
 
Join Date: Jun 2011
Location: northern British Columbia
Posts: 2,557
Thanks: 1,102
Thanked 1,946 Times in 1,048 Posts
Hey P-Funk, just noticed I never answered this.
Well, they've determined the left hippocampus is damaged but to get an exact location is what the video unit is for, going in a few months.
All these years it wasn't the eeg's that picked it up, it was from my last (and 8th) MRI. It was a different radiologist who did a few different slices than any others ever had, and it showed possibility of MTS. Has since been determined by a few specialists that this is the case. Devastated.
Reply With Quote
  #6  
Old 06-01-2012, 12:28 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,489
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
I still say, give neurofeedback a shot someday if you can. MTS may be refractory to medications, but there haven't been any studies showing whether or not it's refractory to NFB. The brain is so plastic, it's amazing what it can be taught to do.
Reply With Quote
  #7  
Old 06-01-2012, 12:47 PM
Cint's Avatar
CWE Supporter
 
Join Date: May 2008
Location: Denver, CO
Posts: 5,507
Thanks: 1,153
Thanked 3,165 Times in 2,056 Posts
Originally Posted by Nakamova View Post:
I still say, give neurofeedback a shot someday if you can. MTS may be refractory to medications, but there haven't been any studies showing whether or not it's refractory to NFB. The brain is so plastic, it's amazing what it can be taught to do.
That's probably because neurofeedback isn't covered by insurance, whereas brain surgery is. As you know, I have refractory epilepsy and had a left temporal lobectomy that made seizures worse for me. I certainly can't afford NFB now. Who covers the cost of NFB?
__________________
"The Golden Rule is that there are no golden rules."
~George Bernard Shaw
Reply With Quote
  #8  
Old 06-01-2012, 12:50 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,489
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
I know it's not an option for most unless you've got the extra cash on hand. NFB seems to be covered in some cases (like for treating ADD/ADHD), but unless there's a big push from the mainstream health groups, and lots of data, it will take a while before it's covered for epilepsy treatment.
Reply With Quote
  #9  
Old 06-01-2012, 07:33 PM
DayDreamer's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2009
Location: Earth
Posts: 197
Thanks: 9
Thanked 75 Times in 56 Posts
http://clinicaltrials.gov/

I like to keep my eye on clincal trials and any new options available. NFB or something similar may be studied and available to us.
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Suddenly not considered psychogenic! LJ-Bain The Foyer 19 08-13-2012 04:06 PM
Surgery triller The Kitchen 7 11-09-2011 03:37 PM
Has Anyone Considered Surgery? Flex Herns The Kitchen 8 07-30-2011 03:36 AM
How long does it be considered free from seizures? Nicholas The Kitchen 5 07-27-2008 02:44 PM


All times are GMT -5. The time now is 09:29 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.