Kate
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Okay, as most of you know I am being admitted into the IU Medical Center (three hours away from my home) on the 18th of February. There is another site that I am a member of, and have been a member of since I was 13 years old. It's a G-rated website, and generally everyone is really friendly. I grew up knowing most of these people, and they have helped me along with so many issues in my life. They have stood by me through my accident, my illenesses, finding out I have E, etc.
I always update them when I find out something new, so today I made a post updating them about me going into the hospital, and asking for a prayer request that my mom is able to get the room we are on the waiting list for at the Ronald McDonald House. Well... This lady got VERY angry at me. She does not think epilepsy is a big deal. She doesn't see why I even need to be hospitalized for testing, and she says it is very rude of my mom to use the RMH while I am staying in the hospital. She made me feel HORRIBLE.
First of all, I have had more than one seizure that has lasted long enough to be considered life threatening, so it IS a big deal. My epilepsy came on suddenly and it came on hard, and with all my allergies to most E meds it is important we find out what is causing it.
I just couldn't believe this lady. She thought my Mom should just get a hotel downtown or something. We are going to try to get one at a reduced rate if possible, but she doesn't realize how much money we already have had to pay just because of this. My neurologist, as well as the nearest hospital, is an hour away. The ambulance rides to the hospital are not totally covered by our insurance. The gas going home from the hospital (at least 10 times in the last few months) and than the doctors appointments.. I could go on and on. My parents are teachers! Everyone knows that teachers choose their job because they love it, not for the money.
I am 19 and not making ANY money. My parents are paying for THEIR car payments and they had to take over MY car payment when I couldn't work anymore. They don't complain, but we need to save money when we can.
I'm just in tears now. Am I a bad person? Should I call and cancel and get my mom off the waiting list to stay at the RMH? It's connected to the hospital and I just know I'll feel better having her so close.. I don't mean to be selfish, I don't want to take a room from another family who may need it.. but I need it too..
*sigh*
I tried to explain to this woman SUDEP and that epilepsy can be life threatening. I tried to explain to her that seizures (like some I have had) that last so long can be fatal, but she still says I'm being inconsiderate. It's almost like she's setting out to intentionally hurt me. She's just being SO cold and rude. I couldn't imagine ever treating or talking to someone the way she is talking to me!
Maybe it's my medicine making me emotional? I just don't know what to do. All I know is we need to save money wherever we can, and even though there is a Days Inn near that gives a reduced rate to family members of patients, it's more than three times as much as we would be paying at the RMH, plus my mom would have to pay for parking every day, which is awfully expensive in Indy.
Also, one more point.. if my mama shouldn't stay at the RMH, than why was the lady so sweet and friendly and understanding on the phone about getting her on the waiting list? If I didn't qualify, or something, they would have told me.
Okay.. so opinions please?
Am I just getting upset too easy?
Wouldn't this hurt your feelings too?
I always update them when I find out something new, so today I made a post updating them about me going into the hospital, and asking for a prayer request that my mom is able to get the room we are on the waiting list for at the Ronald McDonald House. Well... This lady got VERY angry at me. She does not think epilepsy is a big deal. She doesn't see why I even need to be hospitalized for testing, and she says it is very rude of my mom to use the RMH while I am staying in the hospital. She made me feel HORRIBLE.
First of all, I have had more than one seizure that has lasted long enough to be considered life threatening, so it IS a big deal. My epilepsy came on suddenly and it came on hard, and with all my allergies to most E meds it is important we find out what is causing it.
I just couldn't believe this lady. She thought my Mom should just get a hotel downtown or something. We are going to try to get one at a reduced rate if possible, but she doesn't realize how much money we already have had to pay just because of this. My neurologist, as well as the nearest hospital, is an hour away. The ambulance rides to the hospital are not totally covered by our insurance. The gas going home from the hospital (at least 10 times in the last few months) and than the doctors appointments.. I could go on and on. My parents are teachers! Everyone knows that teachers choose their job because they love it, not for the money.
I am 19 and not making ANY money. My parents are paying for THEIR car payments and they had to take over MY car payment when I couldn't work anymore. They don't complain, but we need to save money when we can.
I'm just in tears now. Am I a bad person? Should I call and cancel and get my mom off the waiting list to stay at the RMH? It's connected to the hospital and I just know I'll feel better having her so close.. I don't mean to be selfish, I don't want to take a room from another family who may need it.. but I need it too..
*sigh*
I tried to explain to this woman SUDEP and that epilepsy can be life threatening. I tried to explain to her that seizures (like some I have had) that last so long can be fatal, but she still says I'm being inconsiderate. It's almost like she's setting out to intentionally hurt me. She's just being SO cold and rude. I couldn't imagine ever treating or talking to someone the way she is talking to me!
Maybe it's my medicine making me emotional? I just don't know what to do. All I know is we need to save money wherever we can, and even though there is a Days Inn near that gives a reduced rate to family members of patients, it's more than three times as much as we would be paying at the RMH, plus my mom would have to pay for parking every day, which is awfully expensive in Indy.
Also, one more point.. if my mama shouldn't stay at the RMH, than why was the lady so sweet and friendly and understanding on the phone about getting her on the waiting list? If I didn't qualify, or something, they would have told me.
Okay.. so opinions please?
Am I just getting upset too easy?
Wouldn't this hurt your feelings too?
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