So I finally got to see my epileptologist today after 6 months and not really knowing his opinions or getting much feedback from him.
Even with all the local neurologists in my area stating I have psychogenic seizures his gut feeling is that they are epileptic but that he still wants me to see the neuropsychiatrist to cover all bases. I thought for sure he had written me off but I guess I didn't give him enough credit!
He thinks that most neurologists are not trained properly about epilepsy. Which is really a very scary statement...
He is putting me on Vimpat now. By itself though which is interesting since I have been almost all but weaned off Keppra. Although I better doublecheck that! I understand Vimpat is usually a secondary drug.
He thinks my seizures may be originating from my brainstem and that he is placing me in an epilepsy monitoring unit where I stay in the hospital for a week or so.
Just trying to digest this all. This has been quite a rollercoaster ride! Thanks all for the support. I'm sure the ride is not over yet!
The MRI results that have been referred to mysteriously by other docs were just the same as always. Right frontal lobe scarring, incidental pituitary gland cyst and no suspected epileptiform lesions. So nothing too serious thankfully! Just no obvious answers.
But at least there is a plan now!
Even with all the local neurologists in my area stating I have psychogenic seizures his gut feeling is that they are epileptic but that he still wants me to see the neuropsychiatrist to cover all bases. I thought for sure he had written me off but I guess I didn't give him enough credit!
He thinks that most neurologists are not trained properly about epilepsy. Which is really a very scary statement...
He is putting me on Vimpat now. By itself though which is interesting since I have been almost all but weaned off Keppra. Although I better doublecheck that! I understand Vimpat is usually a secondary drug.
He thinks my seizures may be originating from my brainstem and that he is placing me in an epilepsy monitoring unit where I stay in the hospital for a week or so.
Just trying to digest this all. This has been quite a rollercoaster ride! Thanks all for the support. I'm sure the ride is not over yet!
The MRI results that have been referred to mysteriously by other docs were just the same as always. Right frontal lobe scarring, incidental pituitary gland cyst and no suspected epileptiform lesions. So nothing too serious thankfully! Just no obvious answers.
But at least there is a plan now!