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Scary - and true & factual story!
I have Nocturnal, Complex and Absence;
and now the Simple. When I had video
EEGs - the Epileptologist himself had told
my mom and I that I was seizing every 5-7
seconds; it was worse at nights, but he did
not go into too much details. But once I
obtained the report (v E E G) - I was shocked
to see just ONE night report, it was completely
mind-blowing and to imply that I have absolutely
NO KNOWLEDGE of anything of such event
whatsoever? That's absolutely scary!
------------------------------------------
Then comes this - I know I've posted this before,
but, I had an appointment with the Epileptologist,
however, I was fine when I left the house, then
halfway there (I was driving), I had auras and did
not feel right. Here I was - in the middle - half way
to his office and half way from my home. It was
either go to his office or turn around and go home,
I couldn't even think straight, and I was fighting it!
I'm still not 100% sure how I got there, because all
I can remember is parking in the parking garage, that
is ALL I can remember. The next thing I knew is being
in the ER on an ambulance stretcher, sort of half in
and half out. When I saw the clock I went into a dire
panic, because I just remembered I was supposed to
be in the Doctor's Office! And they kept telling me that
they just TOOK ME OUT OF THERE! I was freaking out!
And I must had fallen back asleep, for the next thing
I knew I was in a room, and that was when the Nurse
told me I had multiple Absence and Complex Partials
in the Epileptologist's Building and he sent me over here.
I had no idea where it all happened! But I was pretty
confused, and just dozed right back to sleep again,
out cold! Then the Epileptologist woke me up, and I
scared him, because he told me it was all scary. He had
witnessed the whole entire thing right before him. And
asked what I could remember and what happened, and
it was like a complete blur. But I told him I was fine, but
he was having some more tests done, and apparently
I did have seizures, from the lab work, was going in for
EEG, and if all was well, I could go home. I was still in
somewhat of a daze. Then another Nurse came in, who
also worked in the building, and told me about what had
happened, a little more in details. I was so embarrassed!
I never had anything like this in the office, and I apologized
and she kept saying "NO, that was GOOD that you did have
one!" (GOOD??)
Well, I had my EEG done, and it was abnormal, and I had
to stay awhile in the ER while they relayed info to the
Epileptologist before they released me. However, they gave
me food and drink, and it helped a lot - because I was one
literal starving horse, but I didn't finish it, and the Nurse
made me eat it up (or I wasn't going home). I must had been
in there for I think another hour or so, because they were
talking about having me admitted, then the Epileptologist
decided to have me scheduled up for other tests (Scans)
first, but unfortunately, I ended up having the 1st video
EEG before the Scans were done.
But trust me - I was apologizing to everyone, even to the
Epileptologist!
Even to this day - I STILL do not know where I had the
seizures, but I do know that it was in the office, but I
don't know where in the office (waiting, hallway, bathroom,
etc).
However, when they discharged me, they permitted me
to walk out the door, because I was up and walking and
talking and besides, my car was across the street (the
Doctor's Office was across the street). Here comes the
"fun part" ... I got really confused: "Exactly where was
my car?" I couldn't find my car! I began to panic! I had
no memory at all where I even parked it and worse, I
actually forgotten what my car looked like; and worse,
I couldn't even remember if I drove mine or my son's?
:embarrassed:
So here I am wandering in the parking garage, feeling like
a "total idiot", but still in a complete daze. Then I saw a
familiar vehicle, but didn't recognize the tag, so I tried the
key and see if it fit, and it did, and I then recognized the
stuff inside of it and was relieved that it was my car. Then
I began to drive home, and here's the weird part. I sort of
"forgotten" how to get home (and I'm a native of this area?)
and no matter how carefully I drove, I stayed in the residential
areas, and looking for familiar "grounds" (Landmarks), and
everything looked so 'strange' to me. It was like all a 'dream'
to me, but I don't know if I was still in a postictal mode and
not completely all out of it, but I did manage to get home,
and once I did, I went to sleep and did not wake up until
the next morning and only to find out that my Epileptologist's
Office had phoned twice - the Doctor wanted to book me.
And they also wanted to know how I was feeling; I was
fine that morning, but the other day .. "Uh Uh".
Today, I still feel that the Hospital discharged me a little
too early, if they had let me sleep a little longer, I might
have been okay and would have been safe to drive. I
really consider myself extremely lucky that day!
I have Nocturnal, Complex and Absence;
and now the Simple. When I had video
EEGs - the Epileptologist himself had told
my mom and I that I was seizing every 5-7
seconds; it was worse at nights, but he did
not go into too much details. But once I
obtained the report (v E E G) - I was shocked
to see just ONE night report, it was completely
mind-blowing and to imply that I have absolutely
NO KNOWLEDGE of anything of such event
whatsoever? That's absolutely scary!
------------------------------------------
Then comes this - I know I've posted this before,
but, I had an appointment with the Epileptologist,
however, I was fine when I left the house, then
halfway there (I was driving), I had auras and did
not feel right. Here I was - in the middle - half way
to his office and half way from my home. It was
either go to his office or turn around and go home,
I couldn't even think straight, and I was fighting it!
I'm still not 100% sure how I got there, because all
I can remember is parking in the parking garage, that
is ALL I can remember. The next thing I knew is being
in the ER on an ambulance stretcher, sort of half in
and half out. When I saw the clock I went into a dire
panic, because I just remembered I was supposed to
be in the Doctor's Office! And they kept telling me that
they just TOOK ME OUT OF THERE! I was freaking out!
And I must had fallen back asleep, for the next thing
I knew I was in a room, and that was when the Nurse
told me I had multiple Absence and Complex Partials
in the Epileptologist's Building and he sent me over here.
I had no idea where it all happened! But I was pretty
confused, and just dozed right back to sleep again,
out cold! Then the Epileptologist woke me up, and I
scared him, because he told me it was all scary. He had
witnessed the whole entire thing right before him. And
asked what I could remember and what happened, and
it was like a complete blur. But I told him I was fine, but
he was having some more tests done, and apparently
I did have seizures, from the lab work, was going in for
EEG, and if all was well, I could go home. I was still in
somewhat of a daze. Then another Nurse came in, who
also worked in the building, and told me about what had
happened, a little more in details. I was so embarrassed!
I never had anything like this in the office, and I apologized
and she kept saying "NO, that was GOOD that you did have
one!" (GOOD??)
Well, I had my EEG done, and it was abnormal, and I had
to stay awhile in the ER while they relayed info to the
Epileptologist before they released me. However, they gave
me food and drink, and it helped a lot - because I was one
literal starving horse, but I didn't finish it, and the Nurse
made me eat it up (or I wasn't going home). I must had been
in there for I think another hour or so, because they were
talking about having me admitted, then the Epileptologist
decided to have me scheduled up for other tests (Scans)
first, but unfortunately, I ended up having the 1st video
EEG before the Scans were done.
But trust me - I was apologizing to everyone, even to the
Epileptologist!
Even to this day - I STILL do not know where I had the
seizures, but I do know that it was in the office, but I
don't know where in the office (waiting, hallway, bathroom,
etc).
However, when they discharged me, they permitted me
to walk out the door, because I was up and walking and
talking and besides, my car was across the street (the
Doctor's Office was across the street). Here comes the
"fun part" ... I got really confused: "Exactly where was
my car?" I couldn't find my car! I began to panic! I had
no memory at all where I even parked it and worse, I
actually forgotten what my car looked like; and worse,
I couldn't even remember if I drove mine or my son's?
:embarrassed:
So here I am wandering in the parking garage, feeling like
a "total idiot", but still in a complete daze. Then I saw a
familiar vehicle, but didn't recognize the tag, so I tried the
key and see if it fit, and it did, and I then recognized the
stuff inside of it and was relieved that it was my car. Then
I began to drive home, and here's the weird part. I sort of
"forgotten" how to get home (and I'm a native of this area?)
and no matter how carefully I drove, I stayed in the residential
areas, and looking for familiar "grounds" (Landmarks), and
everything looked so 'strange' to me. It was like all a 'dream'
to me, but I don't know if I was still in a postictal mode and
not completely all out of it, but I did manage to get home,
and once I did, I went to sleep and did not wake up until
the next morning and only to find out that my Epileptologist's
Office had phoned twice - the Doctor wanted to book me.
And they also wanted to know how I was feeling; I was
fine that morning, but the other day .. "Uh Uh".
Today, I still feel that the Hospital discharged me a little
too early, if they had let me sleep a little longer, I might
have been okay and would have been safe to drive. I
really consider myself extremely lucky that day!