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Old 11-21-2018, 01:59 PM
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Comfort in life?


A question for epileptic people (same as me). What do you think is more important, less seizures or your comfort in life?

I take Vimpat which causes memory loss, extreme difficulty sleeping, it makes me very tired (30 min post), many dental problems (dry mouth). Well I will see my neurologist soon and tell her I'm going to stop taking it. But my father says that I must take it because he must take me the hospital. But he's unaware that there is a limit for every epileptic person and the meds they're willing to take.
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Old 11-21-2018, 06:13 PM
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comfort in life
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Old 11-22-2018, 01:18 PM
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Hi finalpoet,

I would have to say comfort in life. Wishing you only the best and May God Bless You!

Sue
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Old 11-24-2018, 02:41 PM
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Yeah quality of life is key. People define it in different ways of course. And what the parameters are can change over time, at least they have for me.
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Old 11-24-2018, 04:25 PM
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Definitely quality of life is most important.

How I would have answered this 9 years ago when seizures started, however, would have been "control of seizures is most important" because at that time I felt my quality of life depended on seizure control.
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Old 11-24-2018, 07:13 PM
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Jen, I am almost exactly the same. My seizures started about 9 years ago but mine started very mildly, it took a while before I had a tonic clonic. And I began the same, I wanted control over my epilepsy. But I see the meds have some harsh side effects and I realized it's really a balance. The least or easiest side effects with the least seizures.
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Old 11-26-2018, 07:11 PM
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comfort in life. I've had epilepsy nearly 40 years. After trying every med combo
including Vimpat I'm getting ready to make the final decision on surgery. After having it for so long I've grown accustomed to it. Will having surgery change my quality of life for the positive nobody can say for sure? What I know from doctors are they want to make your life the be the best it can be. I'd trust your doctor and ask him if there is another med combo you can try.
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