Coping With Epilepsy VNS Message Board
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools
  #1  
Old 11-16-2008, 01:18 PM
TeeTees's Avatar
Esteemed Pillar of the Community
 
Join Date: Oct 2007
Location: UK
Posts: 919
Thanks: 3
Thanked 7 Times in 6 Posts

Do you feel that sometimes you're your own worst enemy ?


Thought I'd ask this one due to the following :

Now, I tend to analyse situations too much - I'm too much of a 'thinker' in all aspects of life. For instance, I was down the gym this afternoon, haven't had a seizure for two weeks (woohoo), no reason for feeling 'off', when all off a sudden I'm sat on the bike and BAM...I get a rise in body temperature and the 'oh no, I think I know what could be coming next' feeling....then 'the voice' comes into my head saying 'It's time to make a move' (which is kinda like my alarm clock giving me a prompt to get to the toilet so that I can have my seizure in privacy)....

....BUT, I chose to ignore it for a split-second (and I mean split-second), and nothing happened.

Well, after that I started to 'think' about it...kind off 'analysing' it. Why didn't it happen ?.....or more importantly, what brought this on ?....

...and then I feel it MIGHT be coming on again. I mentally kick myself and stop thinking about anything relating to seizure's and focus my imagination elsewhere....again, it doesn't happen. The more I focus elsewhere, the better it gets.

So. Am I my own worst enemy, as the more I tend to try and work out what the possible reasons are for my seizure's, or aura's, the more likely it seems to be that they can, and will happen ?

Whaddya think ?
Reply With Quote
  #2  
Old 11-16-2008, 01:35 PM
Weaving the Community Fabric
 
Join Date: Oct 2008
Location: Kansas
Posts: 377
Thanks: 1
Thanked 7 Times in 7 Posts
Well I'm probably less an expert than most people on this forum because I'm new to this but it makes sense to me that dwelling on it could bring one on as stress can certainly be a trigger. Thinking about it might cause stress and then bring one on? Maybe! We'll see what the real experts have to say.
Reply With Quote
  #3  
Old 11-17-2008, 06:57 AM
josieb's Avatar
CWE Supporter
 
Join Date: Sep 2007
Location: Pennsylvania
Posts: 238
Thanks: 2
Thanked 5 Times in 5 Posts
TeeTees, I know with myself, that when I have too much alone time, my mind tends to automatically think about the "bad things" and try to analize everything going on. I'm still in the process of learning to deal with it myself. But I've found that if I keep myself busy and focused on other things, I seem to not only feel better, but also don't have the continuous thoughts of worrying about one coming on or something being wrong. I hope that makes sense to you. I wish you well.
Sincerely, Josie
Reply With Quote
  #4  
Old 11-17-2008, 08:54 AM
Belinda5000's Avatar
Account Closed
 
Join Date: Sep 2007
Location: Georgia
Posts: 2,241
Thanks: 429
Thanked 596 Times in 474 Posts

Post


I've been told plenty of times I'm my own worst enemy.

But when it comes to my seizures increasing all the time .
IIf I stayed bt myself I might not have any seizures.

I refuse to put my life on hold.

Belinda
Reply With Quote
  #5  
Old 11-17-2008, 09:02 AM
TeeTees's Avatar
Esteemed Pillar of the Community
 
Join Date: Oct 2007
Location: UK
Posts: 919
Thanks: 3
Thanked 7 Times in 6 Posts
Originally Posted by josieb View Post:
TeeTees, I know with myself, that when I have too much alone time, my mind tends to automatically think about the "bad things" and try to analize everything going on. I'm still in the process of learning to deal with it myself. But I've found that if I keep myself busy and focused on other things, I seem to not only feel better, but also don't have the continuous thoughts of worrying about one coming on or something being wrong. I hope that makes sense to you. I wish you well.
Sincerely, Josie
Josie,

I've found that too.....the quieter the room, less active the time, the more likely I'll ponder on things, and hey presto...seizure time!

So yeah, that makes COMPLETE sense to me

Thanks
Reply With Quote
  #6  
Old 11-17-2008, 09:04 AM
sixpack's Avatar
Weaving the Community Fabric
 
Join Date: Oct 2008
Location: Western New York
Posts: 130
Thanks: 0
Thanked 2 Times in 2 Posts
Yes I'm often my own worst enemy and I don't have epilepsy. lol.

IMO, if you dwell on something, you could definitely increase your anxiety, thus increase your chance of triggering a seizure.
__________________
Sixpack---mom to 6 kiddoes including Lindsay. Lindsay has unilateral schizencephaly, septo-optic dysplasia, optic atrophy, and seizures
Reply With Quote
  #7  
Old 11-17-2008, 11:13 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
I think this is the awareness of kindling happening. I find you are a lucky duck to be able to divert it. You just need to find more ways to do this. Sounds like you are trying to "test" your theory as it is happening.

In the book Epilepsy: A New Approach this is discussed, and ways to avoid the pattern from continuing. Sounds like you need a vision where you can escape, each time the feeling is in the pit of your stomach.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Reply With Quote
  #8  
Old 11-17-2008, 12:45 PM
Joined the Party
 
Join Date: Aug 2007
Posts: 93
Thanks: 15
Thanked 8 Times in 7 Posts
I'm my own worst enemy. I am also like you, think think think. If there is one thing I wish I could do is turn off my brain. I do not have seizure but my son does. I find myself thinking and figuring out what I would have to do if one happened.

Whether it is at the store or beach, my mind wonders about what I would do. In a odd way i do believe thinking about it will bring one on. NOW THIS IS NOTHING but who I am, no research or anything like that. Just my own thoughts.

I do not even have my son talk about his auras anymore in fear that it will bring a seizure on. But like I said this is just me, not right or wrong its how I deal.

You are in my thoughts...
Reply With Quote
  #9  
Old 11-17-2008, 01:24 PM
TeeTees's Avatar
Esteemed Pillar of the Community
 
Join Date: Oct 2007
Location: UK
Posts: 919
Thanks: 3
Thanked 7 Times in 6 Posts
Originally Posted by RobinN View Post:
I think this is the awareness of kindling happening. I find you are a lucky duck to be able to divert it. You just need to find more ways to do this. Sounds like you are trying to "test" your theory as it is happening.

In the book Epilepsy: A New Approach this is discussed, and ways to avoid the pattern from continuing. Sounds like you need a vision where you can escape, each time the feeling is in the pit of your stomach.
^^ I think you've hit the nail RIGHT on the head there Robin. I'm forever looking for solutions, and trying to work out if the 'problem' is still there.

It's kind of like when you know you have hurt your elbow, but still touch it to see if the pain's gone.

Maybe one day I'll be able to switch of the constant thinking that my mind tends to do.

I'll have to keep trying to find somewhere to send myself to (mentally) when I get these 'near-misses'
Reply With Quote
  #10  
Old 11-17-2008, 02:28 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: California
Posts: 2,339
Thanks: 2
Thanked 45 Times in 36 Posts
At times, I'm my own worst enemy. I tend to get stressed out over stuff like bills easily. and when I'm stressed over that, I tend to seize.....or if a kid gets me really upset at school .
Reply With Quote
  #11  
Old 03-06-2009, 10:52 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
The book I referred to is here:
http://www.amazon.com/Epilepsy-New-Approach-Adrienne-Richard/dp/0802774652/ref=sr_1_1?ie=UTF8&s=books&qid=1236355225&sr=8-1Folks, this book is $3.00 I think it is time that you all did something nice for yourself and read this. I think we will start a book club with this one.

Kindling:
http://en.wikipedia.org/wiki/Kindling_model
http://homepages.nyu.edu/~eh597/kindle.htm


It seems that if you are aware of the triggers, that you have it in your power to change this. Man has had stress from days when they were hunters, we need to learn that we are larger than it. We need to make changes in our rituals, and schedules so that we have adequate time to deal with the situations in a new way. I personally believe, when there are ways to destress, then the times that we are pushed to our limit, we have enough reserves to draw upon so as not to go over the edge.

Realizing the kindling patterns can help us to learn ways to reprogram our brains.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Reply With Quote
  #12  
Old 03-06-2009, 12:33 PM
Crazy Monkey's Avatar
Playing With Angels
 
Join Date: Jun 2008
Location: Norwich, UK
Posts: 558
Thanks: 3
Thanked 9 Times in 8 Posts
I know that I am my own worst enemy, there is no doubt about it. I drink too much alcohol and caffeine, I work too many hours, I go to bed late, I eat out of routine and I very often eat nothing at all until my evening meal.

But on the other hand I do help myself in other areas. I am very laid back so I keep stress to a minimum, my evening meal normally consists of fresh meat and veg, I eat a lot of fruit so I get my vitamins, I am never off work sick, I avoid strobes/bright lights the best I can.

I know that there are things that need to change in my life, but sometimes it is easier said then done. I find that the caffeine wakes me up in the mornings, the sooner the sleepy feelings stop, the sooner the seizures do. But I have switched to drinking decaf later in the day, so that is a start.

I am unable to adjust the hours I work and I am not allowed to eat at my desk (a new rule) so this means that I just don't eat as I do not have time for breaks. Currently there is no way around this, if I was to have a break then I would have to stay even later at work. I go to bed late because otherwise my life would consist of work only and no time for winding down, doing house things or going out.
__________________
"Be What You Are" - Stiff Little Fingers Lyrics
Reply With Quote
  #13  
Old 03-07-2009, 10:48 AM
Shelley's Avatar
Venerable Voice of CWE
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,604
Thanks: 257
Thanked 205 Times in 161 Posts

The Worst


Right now, I am my own worst enemy, in that I am pushing my self beyond my normal limits, and not getting any rest.
I'm not sure if I'd call it kindling or not, but I know I've had an increase in seizures.
I have also been under the weather, and I have relapsed with another fever.
Although the past month has been fun. I did manage to learn a little about myself.
Reply With Quote
  #14  
Old 03-08-2009, 08:12 PM
Joined the Party
 
Join Date: Feb 2009
Location: Chicago, IL
Posts: 42
Thanks: 0
Thanked 0 Times in 0 Posts

not your own worse enemy


I dont think you're your own worse enemy. I think what you're doing is natural in trying to gain a solid knowledge of your body,mind and self. You should be aware of potential seizure warning signs-sometimes the things we ignore are things that will matter the most. That being said you don't want to stress yourself about what may come or become consumed by them take the appropriate measures (write things down, rest, be still a moment) then move on (I know easier said then done right). Fortunately, for me I never had a moment to dissect any specific situation-either I was too busy or had enough people around me working on my case. Epilepsy is not who you are but a condition that you have (you still need to feel free to live beyond barriers). I pray you find somewhere safe and peaceful to go when your mind starts to wander/ponder on those situations we ultimately have no control over (not only seizures but any aspect of your being). BTW-Congrats on the two weeks seizure free thats huge whoo!!!

You can choose to sit and wait or move and jab-but you choose!!!!
God Bless
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Which AEDs give you the worst side effects? Bernard Back Fence 388 03-01-2019 07:47 PM
worst seizure yesterday that I have had in a good while stringbean The Kitchen 9 08-29-2008 02:08 PM
Seizures and Stress? And the worst night ever.. Kate The Kitchen 14 05-01-2008 03:57 PM
The 20 Worst Foods in America Birdbomb The Lounge 14 12-20-2007 11:08 AM
What's the worst Christmas prezzie you've ever had ?... TeeTees The Lounge 13 12-16-2007 07:43 AM


All times are GMT -5. The time now is 08:28 PM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.