epilepsy on Facebook, and other sites of interest

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Shelley

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Hi, everybody. Was browsing facebook, and I found some groups if anyone is interested. It is more secure than myspace, but there's no place like home (here).
http://www.facebook.com/
http://www.facebook.com/s.php?ref=search&init=q&q=epileptics
If you do a search, you can find some groups that may be of interest.
my new fav...http://www.facebook.com/group.php?gid=2227704294
(anyone who makes fun of seizures or people should be shot.:soap:
http://www.medicalnewstoday.com/articles/70460.php
http://www.medicalnewstoday.com/articles/114859.php
 
I'm on facebook all the time

Actually I found my cousin on facebook and we commucate all the time (that's as far as I go on it)
 
Thanks

I figure, the more places we are seen, the more people will understand and not treat us like freaks.
 
I found out about CWE from Facebook.
I have posted a few times on one of the groups (Epilepsy Support and Awareness), and "met" a person who emailed me pictures during my VEEG to keep me entertained. She was a source of comfort during that time since she had been there, done that five times.
 
Just when you think you are safe ....

I am already there ...

:roflmao:

I've been on facebook too long!

:?

If one wanders around and finds me
they will also find tons of Epilepsy
Groups (yes CWE too :tup:), and plus
many others there as well ...

:pop:
 
I had just changed my status to :

"...blessed that she found out about EEG Neurofeedback."

I questioned whether or not I wanted that on my page, but decided it was how I felt so I hit POST. I then did a search for Kurt Othmer to see if he has a Facebook page. He does, so I made him a friend. He posted that he just had joined about an hour ago.
That is what I call synchronicity.

He also put up a link to Coping With Epilepsy.
 
Awesome Robin!
Keep spreading the word!

:tup:
 
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