chop456
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I just need to get it out. After 2.5 years into her JME diagnosis, numerous med increases, MAD diet for over a year, and many mornings of myoclonics ... Paige had her 1st tonic clonic seizure. She had been at school camp for 3 days with less than 7 hours of sleep each night and woke up this morning without giving herself 15-20 minutes of laying and slowly waking up. The kids were frantically packing and she popped up to pack. Within minutes the jerks got bad, she felt her heart beating fast, hit stressed and anxiety filled, and became very tired so she sat down. Boom. It happened. Sad I was not there to be with her. I drove up to get her right away. She was fine by the time I got there - 1.25 hours away. She slept all afternoon but insisted on going to cross country practice and is racing tomorrow. I was surprised she did not have a headache or body ache. I guess her arms jerked first and then her legs started. Breathing was labored. But no biting the tongue. Lasted 2-3 minutes. We were on a good roll. She's upset about no driving for 3 months but understands. Send good vibes for her race tomorrow! She's not one to let get E get her down. I certainly hope she kicks some a$$!