Has anyone ever been successfully weaned off their epilepsy meds?
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worth a look into?
KarenB
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over 6 months seizure free
Jonathan is now 6 months seizure free. Weaning off the Dilantin and Keppra actually seemed to help with seizure control. He continues on Zonegran and the Ketogenic diet.
About 1 month ago, we made the decision to slowly taper down the Zonegran. He is on a high dose, and we constantly have issues with metabolic acidosis and aggression. He was on 250 mg/day, and the taper is .25 mg every 3 months. It'll take 2 years to completely wean, at which time he'll just be on the Ketogenic diet. We're not sure if he'll be able to do a complete wean or not. But hopefully getting down to at least a lower dose will give seizure control without so much side effects. So, he's been down to 225 mg/day for the past month, with no seizures.
Jonathan is now 6 months seizure free. Weaning off the Dilantin and Keppra actually seemed to help with seizure control. He continues on Zonegran and the Ketogenic diet.
About 1 month ago, we made the decision to slowly taper down the Zonegran. He is on a high dose, and we constantly have issues with metabolic acidosis and aggression. He was on 250 mg/day, and the taper is .25 mg every 3 months. It'll take 2 years to completely wean, at which time he'll just be on the Ketogenic diet. We're not sure if he'll be able to do a complete wean or not. But hopefully getting down to at least a lower dose will give seizure control without so much side effects. So, he's been down to 225 mg/day for the past month, with no seizures.