justPassing
New
- Messages
- 53
- Reaction score
- 0
- Points
- 0
Hi,
Instead of feeling depressed and anxious by my last fall on my face I was wondering how to transform that into a positive discusion.
Helen has started a wonderful thread about humouring ourselves. But it does not cut it for me this time.
So how did the people you love reacted the first time they saw you flat on your back spiting blood and clearly not answering any more? Past the first shock how went the following days?
In my case they got it a bit on the had side since I am starting to have TC with very little previous noticeable seizure history. So for them before last September epilepsy was something very remote, in November they learned that I was having epileptic seizures but only last week did they get to see it in full action.
It is still fresh and I will probably update this later on.
My oldest seems at this stage to feel responsible for the seizure, he was with me and I had just sent him to go play outside while waiting to the invitee to arrive. He was to one to warn the others. While the crisis went he was ready to call 911, having got from a discussion in the morning that over 5 mins it was dangerous.
My youngest is only 5 so at the time of the crisis she was seemingly the most terrified but seems to have accepted it has a normality.
My wife is getting this a bit as a surprise, she was in the middle of too many things before Christmas, and still his, to easily find time to lookup some subject that are a bit scary like that. I think that now she is trying to handle her emotions but its very hard for her. Looking at the risk part the most. It seems normal, we never want to look at what might be destroying someone you love. We tend to mask it by an overbearing need to see that we can control it for them.
So you see it is all about letting the situation be on their part and managing the risks in an ostentatious way on my side. It is a fundamental change in our relations and I am wondering how we will handle it. On my part it is one of the many small changes that I have to integrate. I am wondering about that also.
Cheers,
Instead of feeling depressed and anxious by my last fall on my face I was wondering how to transform that into a positive discusion.
Helen has started a wonderful thread about humouring ourselves. But it does not cut it for me this time.
So how did the people you love reacted the first time they saw you flat on your back spiting blood and clearly not answering any more? Past the first shock how went the following days?
In my case they got it a bit on the had side since I am starting to have TC with very little previous noticeable seizure history. So for them before last September epilepsy was something very remote, in November they learned that I was having epileptic seizures but only last week did they get to see it in full action.
It is still fresh and I will probably update this later on.
My oldest seems at this stage to feel responsible for the seizure, he was with me and I had just sent him to go play outside while waiting to the invitee to arrive. He was to one to warn the others. While the crisis went he was ready to call 911, having got from a discussion in the morning that over 5 mins it was dangerous.
My youngest is only 5 so at the time of the crisis she was seemingly the most terrified but seems to have accepted it has a normality.
My wife is getting this a bit as a surprise, she was in the middle of too many things before Christmas, and still his, to easily find time to lookup some subject that are a bit scary like that. I think that now she is trying to handle her emotions but its very hard for her. Looking at the risk part the most. It seems normal, we never want to look at what might be destroying someone you love. We tend to mask it by an overbearing need to see that we can control it for them.
So you see it is all about letting the situation be on their part and managing the risks in an ostentatious way on my side. It is a fundamental change in our relations and I am wondering how we will handle it. On my part it is one of the many small changes that I have to integrate. I am wondering about that also.
Cheers,