So I had a crazy week last week as some of you know.
I was declared as being in status epilepticus but I guess it would have been only in a partial state. I could hear what was going on initially but not respond or move.
They ativaned me up and no response.
Then they sedated me and intubated me...I guess a medically induced coma? Yes/no? I have no memory of this because I was sedated and intubated for a whole day because it was only way they could stop me from seizing.
I was always open with them in my medical history that some doctors think I have epileptic seizures and some do not. I've been to this very same hospital to help me through clusters.
I can't feel betrayed because only people who know you and love you can truly betray you. They don't know me.
But for them to turn around and state that I am purely psychogenic are they retracting their diagnosis of status epilepticus?
Why did they put me and my family through that then? I've been co-operating. I think they thought I was agoraphobic (fear of crowds) because I prefer smaller gatherings and sometimes feel overstimulated in large noisy crowds and avoid them. I thought I was just introverted.
I am told now to stay home and just use ativan for clusters. They were very firm about this. They must think I have panic attacks but I am not afraid during them. I don't like them though. I may cry a bit afterwards.
Should I be worried? Ativan didn't stop them before?
Am I being too nice and patient?
I feel pretty detached from it all now.
Is this an extreme case or does this happen alot?
Just looking for answers that won't come. I'm keeping my head above water though. My family is lovely and understanding as always and I'm putting them through hell I think. Anyways, same old story, same gal.
I was declared as being in status epilepticus but I guess it would have been only in a partial state. I could hear what was going on initially but not respond or move.
They ativaned me up and no response.
Then they sedated me and intubated me...I guess a medically induced coma? Yes/no? I have no memory of this because I was sedated and intubated for a whole day because it was only way they could stop me from seizing.
I was always open with them in my medical history that some doctors think I have epileptic seizures and some do not. I've been to this very same hospital to help me through clusters.
I can't feel betrayed because only people who know you and love you can truly betray you. They don't know me.
But for them to turn around and state that I am purely psychogenic are they retracting their diagnosis of status epilepticus?
Why did they put me and my family through that then? I've been co-operating. I think they thought I was agoraphobic (fear of crowds) because I prefer smaller gatherings and sometimes feel overstimulated in large noisy crowds and avoid them. I thought I was just introverted.
I am told now to stay home and just use ativan for clusters. They were very firm about this. They must think I have panic attacks but I am not afraid during them. I don't like them though. I may cry a bit afterwards.
Should I be worried? Ativan didn't stop them before?
Am I being too nice and patient?
I feel pretty detached from it all now.
Is this an extreme case or does this happen alot?
Just looking for answers that won't come. I'm keeping my head above water though. My family is lovely and understanding as always and I'm putting them through hell I think. Anyways, same old story, same gal.