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  #41  
Old 03-26-2014, 07:57 AM
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Stephen Johnsons syndrome goes away when you stop taking the medication that caused it. You will never be able to take that med again, which is why you could say it never goes away, but it's an allergy and only happens when you are in contact with the thing you're allergic to. You should not ever have it again--your doctor should make sure of that. I 'have' it, and my neurologist is very careful about the meds he gives me, so I haven't had a reaction for four years. Ideally, you'll wear an alert bracelet, too.
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  #42  
Old 03-26-2014, 08:22 AM
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When I got Stephens Johnson Syndrome it put a giant puss bubble blister on my left arm. They did a biopsy to figure out thats what it was. The thing I do know about SJS is that If I take naproxen it makes my arm itch and then it flares up. I usually have to take doxycycline to fight it.
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Old 03-26-2014, 08:55 AM
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Stephen Johnsons can be fatal. You need a doctor you will figure out what's causing it and you need to stop taking things that cause flare ups. If your doc is regularly trying to control flare ups with antibiotics instead of trying to get to the bottom of the cause, your doc is risking your life and you need to find another one.
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Old 03-26-2014, 09:03 AM
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Thank You Kirsten
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