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We went over to my parents house with the kids for dinner tonight. After we were done eating, my mom and I were talking about calling the nurse tomorrow to inform them on the time I was taken off my meds, and went for the 11 days without a seizure. At the time, i wasnt on Keppra, but she tells me its best if they do know I went that long without having a seizure for when I get my VEEG done.
I told her I would call the nurse tomorrow to tell her and also ask them if they have my records from my pediatrition neuro. I know we had all of my records from them forwarded to the first dr I saw, which he resigned, and I am now seeing his partner. So I would think they would just hand my file over to him? But I want to make sure just incase they dont have them.
Im telling my mom I will do all of this and she explains to me that if they do take me off my medication for the VEEG, she said she's afraid I will have seizures that wont stop! Thats the last thing I want to hear out of my mother's mouth!
I want to get the VEEG done, but I dont want to picture myself having seizures non stop! Ive never had a VEEG done before, and I dont know if they would want me to come in on all my medications, or wean me off before I come in. But she doesnt have to scare the crap out of me!
Now all I can picture in my mind is me having seizures non stop!
I told her I would call the nurse tomorrow to tell her and also ask them if they have my records from my pediatrition neuro. I know we had all of my records from them forwarded to the first dr I saw, which he resigned, and I am now seeing his partner. So I would think they would just hand my file over to him? But I want to make sure just incase they dont have them.
Im telling my mom I will do all of this and she explains to me that if they do take me off my medication for the VEEG, she said she's afraid I will have seizures that wont stop! Thats the last thing I want to hear out of my mother's mouth!
I want to get the VEEG done, but I dont want to picture myself having seizures non stop! Ive never had a VEEG done before, and I dont know if they would want me to come in on all my medications, or wean me off before I come in. But she doesnt have to scare the crap out of me!
Now all I can picture in my mind is me having seizures non stop!