Coping With Epilepsy Epilepsy Research Program
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools
  #1  
Old 11-20-2009, 04:22 PM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update
 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,651
Thanks: 705
Thanked 475 Times in 320 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889

Possible side effect?


Hello everyone,
Havent started a thread in a while, but I have a question for those who have or are taking Lamictal or the generic version Lamtrigine. I am on 100mg now *have been since monday, but missed tuesday and wednesday doseage* of Lamotrigine and think I am experiencing a strange side effect. This is my first anti-epileptic drug, and I have not ever taken the brand name, as my neurologist and pharmacist seems to that there is absolutely no difference between the 2.

So anyway I am experiancing shortness of breath. particularly on the exhale or deep breath in. I get a feeling like its a little tight or i should be coughing *but no feeling of flem or liquid*

I dont have a fever, chills, or stuff nose etc that usually follow flu or cold. No sore throat either. But when I try to make the feeling pass *repeating deep breaths or exhale8 I go blue in the lips and finger nails and then feel lightheaded

this is what I found on Lamictals website:

"LAMICTAL is the brand name of a prescription medication called lamotrigine.

LAMICTAL is used together with other medicines to treat certain types of seizures (partial seizures, primary generalized tonic-clonic seizures, generalized seizures of Lennox-Gastaut syndrome) in people 2 years or older or alone when changing from other medicines used to treat partial seizures in people 16 years or older.

It is not known if LAMICTAL is safe or effective when used alone as the first treatment of seizures in adults.

LAMICTAL has been proven to help control seizures.

LAMICTAL ODT is another form of LAMICTAL. LAMICTAL ODT is pleasant-tasting and easy-to-swallow.

LAMICTAL and LAMICTAL ODT offer effective treatment for certain types of seizures to meet your changing needs.

If you've been taking a different medication for your seizures but are unsatisfied with your treatment, ask your doctor if LAMICTAL or LAMICTAL ODT is right for you."

It also does not mention this in the side effects area. Just wondering if someone has experiance with this, as I didnt see it when I searched either.

Thanks
Rae
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
Reply With Quote
  #2  
Old 11-20-2009, 04:39 PM
TempusFugit's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2009
Location: Kent, UK
Posts: 243
Thanks: 120
Thanked 62 Times in 42 Posts
Send a message via MSN to TempusFugit
When I was on Lamictal (10 or so years ago) I certainly didn't have any side effects like that.

Your first port of call would definitely be to call your doctor. Best to err on the side of caution - especially with symptoms such as this.

*hugs*
Reply With Quote
The Following User Says Thank You to TempusFugit For This Useful Post:
Rae1889 (11-22-2009)
  #3  
Old 11-20-2009, 05:32 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,491
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
Hi Rae --

While Lamictal was originally introduced as an adjunct drug for epilepsy, it is now routinely prescribed as a standalone drug -- the website you checked doesn't seem up-to-date in that regard. That aside, if you are experiencing shortness of breath you should definitely call your doctor. It may or may not be related to the missed doses, but more importantly it could be a sign of an allergic reaction, and you should take it seriously.
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
Rae1889 (11-22-2009)
  #4  
Old 11-20-2009, 07:40 PM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update
 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,651
Thanks: 705
Thanked 475 Times in 320 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889
Hi
it is from Lamictal.com
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
Reply With Quote
  #5  
Old 11-20-2009, 08:08 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,491
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
This is from the medication guide at drugs.com:

"Lamictal is used alone or in combination with other medications to treat seizures in adults and children who are at least 2 years old. It is also used to delay mood episodes in adults with bipolar disorder."

Lamictal is definitely fine for monotherapy, don't worry about that! Worry about the shortness of breath -- are you still experiencing it?
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
Rae1889 (11-22-2009)
  #6  
Old 11-20-2009, 08:23 PM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update
 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,651
Thanks: 705
Thanked 475 Times in 320 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889
Yes, but it hasn't gotten worse. I have fainted only once. But I am trying to keep myself busy, take my mind off it.

Its wheezie and laboured. But not completely impossible to ignore and deal with. When I can't handle I'll go.
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
Reply With Quote
  #7  
Old 11-20-2009, 09:57 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,491
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
It doesn't sound great, be careful okay?
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
Rae1889 (11-20-2009)
  #8  
Old 11-21-2009, 12:06 AM
Crystal11's Avatar
Esteemed Pillar of the Community
 
Join Date: Jan 2009
Location: Austin, TX
Posts: 712
Thanks: 23
Thanked 70 Times in 61 Posts
I am taking Tegretol XR and Keppra XR and we just added Lamicatal/Lemotragine yesterday. I am taking 25mg pill at night for the first two weeks then 25mg twice a day for another two weeks. The process is real slow and this is to keep side effect down.
So far I don't notice anything- but its only been two days of taking it.

It sounds like you're having a mild allergic reaction. It should never cause breathing troubles. I would definitly call the doc or go to E.R. to have it changed or stopped.

Be safe
Crystal
Reply With Quote
The Following User Says Thank You to Crystal11 For This Useful Post:
Rae1889 (11-22-2009)
  #9  
Old 11-21-2009, 12:15 AM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update
 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,651
Thanks: 705
Thanked 475 Times in 320 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889
Yes, I actually started out at 25mg every second day for 2 weeks, then 25mg every day for 2 weeks. then 25mg twice a day for 2 weeks (50mg total) and now I am at 50mg twice a day (100mg total) Funny thing is that I took the pills at noon today, started feeling my breathing was off at about 1pm ish, and I am supposed to take them again right now, at midnight, but the breathing is slightly better than it was 12 hours ago.

I am going to take them again and then see if it happens again.

I will let you all know how things work out. If for some reason I cant get on, I'll text Chris515 and he might be able to update y'all.

Crossing fingers that it wont happen again. otherwise I am off to emergency (again!) I really hate going, and will attempt to avoid it if at all possible *no major seizures yet today either! Only one absence this morning in which I missed my bus stop, and the 6 after it *
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.

Last edited by Rae1889; 11-21-2009 at 12:18 AM.
Reply With Quote
  #10  
Old 11-21-2009, 03:01 AM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is
 
Join Date: Oct 2007
Posts: 3,777
Thanks: 103
Thanked 302 Times in 251 Posts

I've not


had this type of reaction to Lamictal, either......in either instance of being on it. I've been on it twice now. I would say take yourself to the ER, and be checked for an allergic reaction, or some type of asthmatic attack. It seems to be one of those two things.
Reply With Quote
The Following User Says Thank You to Meetz1064 For This Useful Post:
Rae1889 (11-22-2009)
  #11  
Old 11-21-2009, 06:07 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
Rebecca's reaction to Lamictal was body aches all over. To the point that she wanted to stay curled up in a ball and not move. She did begin to get some bumps as I recall and the medication was stopped.

From my information, this med is not suggested for anyone under the age of 16.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Reply With Quote
The Following User Says Thank You to RobinN For This Useful Post:
Rae1889 (11-22-2009)
  #12  
Old 11-21-2009, 08:09 AM
joan's Avatar
Weaving the Community Fabric
 
Join Date: Jul 2008
Location: NJ Shore
Posts: 469
Thanks: 2
Thanked 11 Times in 9 Posts
My son on lamictal since 2006. It works great for him. Its the only drug hes on. Ive noticed it effects his sleeping and eating.

Jena got the lamictal rash and was off lamictal within 3 mos.

Ive never heard of it causing shortness in breath. Id go to the Drs to be sure you arent having an allergic reaction.

Lamictal tends to be a good drug, just seems few can tolerate it.

GOod luck and be well
joan*
Reply With Quote
The Following User Says Thank You to joan For This Useful Post:
Rae1889 (11-22-2009)
  #13  
Old 11-21-2009, 08:17 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,524
Thanks: 775
Thanked 2,298 Times in 820 Posts
Quote :
Call your doctor at once if you have any of these serious side effects:
  • the first sign of any skin rash;
  • fever, sore throat, and headache with a severe blistering, peeling, and red skin rash;
  • chest pain;
  • pale skin, easy bruising or bleeding;
  • fever, chills, body aches, flu symptoms;
  • muscle pain, tenderness, or weakness with fever or flu symptoms and dark colored urine; or
  • nausea, stomach pain, low fever, loss of appetite, dark urine, clay-colored stools, jaundice (yellowing of the skin or eyes).
Less serious Lamictal side effects may include:
  • dizziness or drowsiness;
  • blurred vision;
  • mild nausea, vomiting, diarrhea, upset stomach;
  • headache;
  • lack of coordination;
  • weight loss;
  • sleep problems (insomnia), unusual dreams; or
  • runny or stuffy nose.
This is not a complete list of side effects and others may occur. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.
http://www.drugs.com/lamictal.html

Here's a fun page that you should discuss with your doctor:

http://familydoctor.org/online/famdo...mptom/521.html
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
The Following User Says Thank You to Bernard For This Useful Post:
Rae1889 (11-22-2009)
  #14  
Old 11-21-2009, 01:21 PM
Rach_nc1984's Avatar
Joined the Party
 
Join Date: Jan 2009
Location: Austin, TX
Posts: 78
Thanks: 1
Thanked 2 Times in 2 Posts
I am currently taking Lamictal 500 mg and Keppra XR 2000 mg...Although my seizures are not totally under control, I am doing better than I was before taking the combination of the two. This is my second time on Lamictal. I was on Lamictal by itself for 2 years from the time I was 10-12. I was then weaned off meds and was seizure free on no meds for two tears without any meds I had a grand mal when I was 14 and was put on Topamax. This kept me seizure free for 7 years. So I usually say that I was seizure free for 9 years, because 1 grand mal in 9 years really doesnt matter that much. ANYWAYS...I never had a reaction to Lamictal at all. I like the Lamictal. As far as what joan said I have to disagree. My neurologist told me when putting me back on it that almost all of his patients that are taking Lamictal or were taking Lamictal have great success with it. That said...Just because it is not a listed side effect does not mean that is impossible to have that problem with it. Everyone is different. My nephew who has autism was on Lamictal and it did nothing for him. So even within the same family reactions will be different. It is important that you call your neurologist and tell him/her before it gets too serious and you NEED to go to the ER. Your neurologist should be able to make a competent descision about what to do. ie switch to a different med or change his approach in dosages. It doesnt seem to me that missing doses would cause breathing problems, but then again I am not a neurologist. Call or e-mail your neurologist to let him/her know what is going on and that you have concerns about a possible side effect. Your neurologist may tell you to keep taking it or he may want to schedule a visit with you. How long have you been experiencing breathing problems? Did it start out soon after you start Lamictal or recently? Any initial side effects usually should disappear withing 1 maybe 2 weeks. Anyway, I hope that what I have said makes sense to you. Hope all goes well. Let us know what your neurologist says.
Reply With Quote
The Following User Says Thank You to Rach_nc1984 For This Useful Post:
Rae1889 (11-22-2009)
  #15  
Old 11-22-2009, 04:34 PM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update
 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,651
Thanks: 705
Thanked 475 Times in 320 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889
Hi all,
Just an update. So I went to emerg at about 6pm last night. it got too uncomfortable to bear anymore. They told me that it wasnt the scary rash forming in y throat or lungs, so I was safe on that part.

They also couldnt tell me if this was an allergy or an asthma attack *have been tested for it in the past, but never got the results, and never medicated* He said if it was an allergy, it wasnt causing anaphylactic shock so it was not serious, and if it was asthma, I was struggling with it for a while, so it is not serious either.

Their best recommendation was to see my neurologist, to get his final opinion on whether to switch meds, or to treat for asthma first. I dont get to see Dr. Fast for a month, *december 15* so I am supposed to handle this the best I can they said. If it gets worse I should come back to emerg and they will contact my neurologist directly and see what he thinks should be done.

so I get to be smurf for a while then *I still go blue*

Thanks for all the info tho guys
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
Reply With Quote
  #16  
Old 11-22-2009, 06:05 PM
marion's Avatar
Weaving the Community Fabric
 
Join Date: Jan 2008
Location: Connecticut
Posts: 106
Thanks: 4
Thanked 10 Times in 10 Posts
I've taking lamictal for 4 months, starting very slowly, and it's my first and only seizure med. Like you, I have a side effect that's not listed anyplace and that no one seems to know what to do about. I don't know how the drug companies decide what side effects to list. It seems that there must be a lot of others that occur even less often then those they list as rare, and that they just don't mention, but of course, I don't know that. Does anyone know how that works?

Will your doctor talk to you on the phone?
Reply With Quote
  #17  
Old 11-22-2009, 06:47 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,491
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
Rae, I'm very glad that it's not "serious", but I hope you get it figured out soon. It's not a great time of year to have asthma. I guess there's never a good time, but breathing cold air is hard on the system.

Marion, I agree, even some of the common side effects are barely mentioned by the drug companies, and/or by our prescribing neurologists. I wish there were some easy hotline to call so the drug companies would have to keep an accurate tally of all the reported side effects, but I think for the most part they aren't required to after the drug is okayed by the FDA and unleashed onto the unsuspecting public. I think only extremely dangerous side effects get attention after the initial trial phases.
Reply With Quote
  #18  
Old 11-23-2009, 08:31 AM
BuckeyeFan's Avatar
Super Moderator / Grandpa
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 1,907
Thanks: 13
Thanked 152 Times in 84 Posts
On Lamictal (generic) for 9 months now. No breathing issues, but may be experiencing some weight gain. The weight could also be from eating way too much.

The blue lips sound more like hyper-ventilating. Try to breath normal during these times and not long and deep. The light headedness, fainting, blue lips, etc... are all signs of hyper-ventilating. Try to relax during these spells. I know that is easier said than done when you feel like you can't breath.
__________________
Character is doing the right thing when no one is looking.
Reply With Quote
  #19  
Old 11-23-2009, 09:13 AM
Chris515's Avatar
CWE Supporter
 
Join Date: Feb 2009
Location: Winnipeg, Manitoba, Canada
Posts: 550
Thanks: 99
Thanked 211 Times in 100 Posts
It might be hyper ventilating. I've had the breathing problems to with lamictal. It gets worse in the fall but has only started since I started lamictal in 2004.

It is hard to relax when you feel you can't breathe properly - and that makes it harder to breathe. It's a tough cycle to break.

I've almost gotten used to it now. I've done all the allergy tests, breathing tests, etc and it's all come up normal, so what else could it be apart from the drugs.. So maybe this is a rare side effect of lamictal?
Reply With Quote
  #20  
Old 11-23-2009, 09:25 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,491
Thanks: 950
Thanked 7,341 Times in 5,421 Posts
Hyperventilating and hiccups are listed as rare respiratory side effects of Lamictal:

http://www.rxlist.com/lamictal-drug.htm#ad

(you have to scroll down a bit to get to it).
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
Bernard (11-23-2009)
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
2 questions- side effect & seizure? kimba The Kitchen 5 09-10-2009 01:36 AM
Very Odd Side Effect? TempusFugit The Kitchen 3 09-08-2009 04:40 PM
Dilantin Side-Effect (twitching) NaderH The Kitchen 11 03-15-2008 06:37 PM
keppra side effect? angel The Kitchen 7 02-06-2008 08:36 PM
Side effect/Profuse sweating RanMan The Library 3 06-13-2005 02:15 PM


All times are GMT -5. The time now is 12:59 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.