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  #1  
Old 01-22-2019, 11:17 AM
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Worst side effect?


What's the worst side effect you've ever had? The med that caused it?

Mine was caused by Topomax. I took it and was later asked by a nurse a few questions. When asked, I couldn't remember my name for a few seconds. I will never take it again.
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Old 01-22-2019, 03:47 PM
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I am on topamax - I don't have any memory issues, but I definitely have the tingly fingers/feet from it. Sometimes the tingling is soo intense that it feels itchy.
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Old 01-22-2019, 07:04 PM
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Hi finalpoet,

The worst seizure med I was on was Neurontin the drug caused me to have absence status seizures which I never had in my life and this in turn caused more brain damage for me because I would be out of it for 30 min. - 1 hour if not longer. I later found out that the drug can cause seizures for people who have never had a seizure in their life and while watching NBC Dateline 2 employees were interviewed who turned the drug co. in because they knew it could cause epilepsy for people who never had a single seizure in their life. Now the drug co. has over $240 million in lawsuits for what the drug has done to people. Here's wishing you only the best of luck and May God Bless You!

Sue
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Old 01-22-2019, 08:36 PM
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Topamax made me meaner than a snake. Keppra did too. Depakote worked well but my neurologist said it was damaging my liver. My current combo of Lamictal and Oxcarbazibine makes me sleepy and gives me a drunk feeling which as a recovered alcoholic I hate. Sometimes I get so so dizzy I can't do much. I actually went to the emergency room twice after starting it. But it works well and now that I'm used to it I just lay down and take a nap. It sure does mess up my sleep patterns. If that sounds bad, like I posted once I adjusted to it it's no big problem.
The main reason I went to the hospital is I read all the side effects and when I wasn't thinking clearly (after I had taken the pills) I scared myself into thinking something terrible was happening.
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Old 01-23-2019, 07:41 PM
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[It's a toss up between Neurontin and Tegretol.
With Neurontin I gained a lot of weight and slept all day.
With Tegretol I could barely stand up.
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Old 01-23-2019, 09:16 PM
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truegrit's post reminds me I forgot about Phenobarbital that made me sleep all day.
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Old 01-24-2019, 01:26 AM
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Neurontin is the med that I really hated which I was on from nov 2009 - Nov 2010. It made me tired, moody and I’m sure it affected my memory. If I didn’t have a sleep in the day I’d have a seizure. When I told my neurologist at the time of the issues I was having with the neurontin he increased it which made it worse.
At the time I was about to start pre surgery testing. When I had my video EEG I told the epiologists about the neurontin , 1st thing they did was take me straight of it and made note not to put me back on it.
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Old 01-24-2019, 09:18 AM
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I wondering if 2 accident I had due to meds broken cheek and rip menicus
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Old 01-24-2019, 12:08 PM
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Originally Posted by seagull View Post:
I wondering if 2 accident I had due to meds broken cheek and rip menicus
Oh my goodness, how long ago did that happen? How is your cheek and knee feeling now?
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Old 01-25-2019, 02:01 AM
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Lamactol can cause children skin problems well last week I been scratching my arm no. Stop until it bleeds.See have been see the mater and scabies in the oldies home.it would. Be typical of mother give me scabies.or is it the meds half hoping scabies cure that.not my weeks
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Old 01-26-2019, 12:59 AM
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Old 01-26-2019, 02:55 AM
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The worst I had was when I was taking tegrotol and lamotrogine together. I was so dizzy that I couldn't even walk in a strait line some days and my vision was sometimes blurry

Last edited by Sonia.g; 01-26-2019 at 02:58 AM.
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Old 01-26-2019, 11:04 AM
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OK where do I start?
1. Dilantin made me break out in a massive skin rash. Looked like a giant zit.
2. Phenobarbital made me go to sleep for 2 years. (BARB-it-tal.. Get it? Barbituate??)
3. Keppra made me lose weight to the point that I hardly ate anything and spazzed out all over the place.
4. I'm finally taking Trileptal and Vimpat, but the Vimpat is at a lesser dose than what my doctor originally prescribed me at. After trying and trying and trying to get a hold of the guy because I was dizzy and had some sort of vertigo, I took about 300mg less of the stuff, and now I'm perfect. Gotta love it!
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Old 01-26-2019, 12:12 PM
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Vimpat made me dizzy also. They never could find the right dose for me.
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Old 01-26-2019, 03:53 PM
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I never started being dizzy until I took this crap....
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Old 01-26-2019, 09:53 PM
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Originally Posted by truegrit View Post:
[It's a toss up between Neurontin and Tegretol.
With Neurontin I gained a lot of weight and slept all day.
With Tegretol I could barely stand up.
I'm not sure which meds caused these things for me but with one I ate anything I saw. I'd even eat a gallon of ice cream each day, not a joke, and a ton of other things. I don't know how much weight I gained.

There was another one I had no energy, just laid in bed all day long. I wouldn't eat a thing either, my mom pretty much had to force feed me and she had a really hard time doing it.
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Old 01-28-2019, 07:38 AM
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I have several side effects from the combination of Keppra and Vimpat that I take such as occasional dizziness and some facial numbness at times. Both are tolerable but I suffer one that is tolerable but extremely frustrating.
I am allergic to all citrus fruits except for lemons and limes. I was amazed to find out how many foods have orange in them such as A-1 sauce. It is very odd and at first many people don't believe it but it is true.
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Old 01-30-2019, 10:20 AM
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The worst side effects for me were from the drug Felbatol, which isn't prescribed much now. I had miserable migraines for weeks and deep, deep depression from this drug. The 2nd worse was from Sabril, which made me suicidal. I was only on that drug for a very short time. And then there was Topamax. When I initially started Topamax years ago, it made me anorexic. I had absolutely NO appetite. I lost 20 lbs. while taking it. It also made my aphasia much worse.
Now I take 3000 mgs.of Keppra and it is what works for me. I can deal with these side effects; tiredness, thirst, others....
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Old 01-30-2019, 11:23 AM
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Old 01-30-2019, 11:35 AM
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Originally Posted by C0urt View Post:
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