Coping With Epilepsy Lennox-Gastaut Syndrome Foundation
Free Advertisement
 

Go Back   Epilepsy Forum > Our House > Back Fence



View Poll Results: How long have you had Epilepsy?
Since Birth 27 6.01%
Less than 1 year 41 9.13%
1-5 years 86 19.15%
6-10 years 52 11.58%
11-20 years 83 18.49%
21-30 years 63 14.03%
31-49 years 82 18.26%
50+ years 15 3.34%
Voters: 449. You may not vote on this poll

Reply
 
LinkBack Thread Tools
  #21  
Old 10-20-2007, 06:05 PM
maureen's Avatar
Joined the Party
 
Join Date: Oct 2007
Location: Belleville, Ontario, Canada
Posts: 97
Thanks: 40
Thanked 9 Times in 6 Posts

Question How Long have you had epilepsy?


I was about to do the poll but didn't really know what to say.

I had a head injury in 1979 and had a few seizures, was on Dilantin for a year or so, then nothing.

I had a seizure in January 2005, they couldn't find a reason - you're not likely to have one again...had one in August 2005. Went on medication, think it's over, go 2 years, nothing....September 2007 have a seizure

I don't really know when the start date is. Is it epilepsy or something else?
Reply With Quote
  #22  
Old 10-21-2007, 08:53 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,513
Thanks: 768
Thanked 2,283 Times in 815 Posts
Hi maureen, this poll isn't scientific, so you can answer it any way you feel most appropriate.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Reply With Quote
  #23  
Old 10-21-2007, 01:26 PM
maureen's Avatar
Joined the Party
 
Join Date: Oct 2007
Location: Belleville, Ontario, Canada
Posts: 97
Thanks: 40
Thanked 9 Times in 6 Posts
Thanks Bernard,

I don't feel particularly 'dumb' asking questions here. You've all probably heard them before or have had them yourselves.

Thanks to all for listening.

Maureen
Reply With Quote
  #24  
Old 10-21-2007, 04:06 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
That's the way I feel here too, Maureen.
Reply With Quote
  #25  
Old 10-28-2007, 10:08 PM
Joined the Party
 
Join Date: Oct 2007
Location: Byron Bay, NSW, Australia
Posts: 50
Thanks: 0
Thanked 0 Times in 0 Posts
Send a message via MSN to Tate
I have had E since I was 15 I am now 29,
I started with t/c only while asleep with out any indication whilst i was awake...

At first they assumed i was having seizures due to an accident i had some months before, which has now been ruled out.

I the started having partial and complex partials during the day when I was about 19, and auras at that time started to increase,

about 3 years ago I started having tonic clonics whilst awake but they usually ten to be in the evening or not long before I go to bed, medication and fatigue has been ruled out for causing them at these times.
Reply With Quote
  #26  
Old 10-29-2007, 12:23 AM
Byron's Avatar
Getting Comfortable
 
Join Date: Oct 2007
Location: Ripon, ca
Posts: 14
Thanks: 0
Thanked 0 Times in 0 Posts
I was born with it. Through time it has grown and developed into a larger case, that has know been under control for a couple years.
Reply With Quote
  #27  
Old 11-18-2007, 01:55 PM
TeeTees's Avatar
Esteemed Pillar of the Community
 
Join Date: Oct 2007
Location: UK
Posts: 919
Thanks: 3
Thanked 7 Times in 6 Posts
38 years and 2 months.....not that I'm counting
Reply With Quote
  #28  
Old 11-26-2007, 04:53 PM
Weaving the Community Fabric
 
Join Date: Nov 2007
Posts: 206
Thanks: 1
Thanked 18 Times in 18 Posts
Well I said 21-30 years because I had my first seizure when I was 14months old. I have had it most of my life but I don't know if i'd say I was born with it. I guess I probably always was susceptible to seizures since birth and who knows if I had smaller seizures that were never identified beforehand.
Reply With Quote
  #29  
Old 12-27-2007, 02:57 AM
paradise survivor's Avatar
Weaving the Community Fabric
 
Join Date: Oct 2007
Location: I live on the island of Oahu in Hawaii
Posts: 310
Thanks: 4
Thanked 45 Times in 32 Posts
Merry Christmas everyone-I've been sick and off line for awhile but I wanted to chime in. I had my first blackout in '97. I have a doc who is brilliant and an _ss. I did the whole hospital gig and every mri/cat scan till i glowed. He told me I was an enigma and that my mri looked more like classic ms. Then he said he still wasn't convinced that the espisodes (including incontinence durring the blackouts) were seizures, maybe I am stressed. We played the med game and things were worse. Plus I HATE the side effects!!! So I go along for a while and then it hits me like a truck. The last big episode lasted close to 20 minutes and then several more after that. The eeg show abnormal activity in both the rt and lft temporal lobes...he's just not sure. Now I ask the group, am I losing my mind?
Reply With Quote
  #30  
Old 12-27-2007, 09:23 PM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,601
Thanks: 266
Thanked 149 Times in 122 Posts
Well, I'd like to give a specific timeframe and age, but frankly, a generally subjective value seems appropriate:
way, way, way too long!!!!!
Reply With Quote
  #31  
Old 02-03-2008, 02:19 AM
keyna's Avatar
Joined the Party
 
Join Date: Feb 2008
Location: Hurley, NY
Posts: 79
Thanks: 0
Thanked 0 Times in 0 Posts
I wasn't sure how to answer the poll, so I went with my most recent period of epilepsy. I had epilepsy as a child 70-100 petit mal sezures a day, then about 12yrs old they just seemed to stop. Between 12 and 30 I had about 5-6 seizures, but nothing that seemed to concern any one. Then when I was 30 I had a big grand mal that lasted over 5 min., when I came out of it I didn't know who anyone was, including my son who was only 6yrs old. I was so terrified that I punched the cop twice, and theambulance guy once before they got me sedated. Nothing has been the same since, It's been a LONG 5 years!!
Reply With Quote
  #32  
Old 02-29-2008, 10:33 PM
New Here
 
Join Date: Feb 2008
Location: Beaumont, Texas
Posts: 3
Thanks: 0
Thanked 0 Times in 0 Posts
my epilepsy started when i was in 3rd grade...im 25 now..but nobody knew it was epilepsy yet for a long time..on random days i would go to school feeling sleepy and everyone thought i was on something..it was so bad that it affected my work...it made me really slow....i would talk funny like i was drunk or something lol...and nobody really knew what caused it...and unfortunately i dont think any of my family did anything about it at first...so up until 7th grade id repeat the same problems when i went to school..it was embarrasing..i remember in 5th grade on picture day i had this problem...so in my school picture i loook really sleepy! finally in 7th grade i lived with my grandma and she took me to the doctors in houston..after finally doing catscans and eegs ...they said it was epilepsy that i had...
the first medicine i took for my epilepsy was zarontin..one day i came home from school and ran out so my grandma gave me one of her dilantins.....that night i had my first real grand mal seizure...i was 14 years old...shortly after i was put on klonopin...that didnt last very long.sometimes when id be talking to someone i would space out for like 2 seconds without even realizing it..but the other person would notice of course....then after that i was put on depakote...and once again i had another seizure...i was 17 ...actually i had 3 seizures in one day!! how crazy is that!! so i stayed in the hospital for 3 days...they upped my dosage...and ive been ok ever since...except the fact that i dont take my medicine everyday like i should and sometimes i have withdrawals and get really sleepy and i still blank out when im talking to people...so i usually sleep it off...

sorry this was so long...:/
Reply With Quote
  #33  
Old 03-03-2008, 08:21 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: Lakewood, Washington
Posts: 1,914
Thanks: 498
Thanked 230 Times in 165 Posts
I got my epilepsy from the chicken pox when I was 10. I have tonic clonic, myoclonic from an infection in my brain. dejevu, petit mal, lights flashing you name it , I have them. The epileptologist center says you can not beat my case. My son started having myos when he was 6mo. And now my brother is having myos at 40. Epilepsy is so different in everybody. Thats what I have learned. My son has had all the Genetic testing. Nothing showed up. But it is there somewhere.
Reply With Quote
  #34  
Old 03-04-2008, 10:10 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
Did your son have the chicken pox vaccine?
Reply With Quote
  #35  
Old 03-05-2008, 09:00 PM
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: Lakewood, Washington
Posts: 1,914
Thanks: 498
Thanked 230 Times in 165 Posts
Boy you are on top of it Robin! Yes! He did. There was a little girl living in our apt complex that just got over the chicken pox. She was outside playing when she was still able to spread. You have to be careful. That also goes with shingles. Adults need to get that vaccine. My Dr. said it's like the chicken pox viris. It goes to your brain and it does not go away. And it can worsen your seizures.Thank you Robin.
Reply With Quote
  #36  
Old 03-22-2008, 02:31 PM
Weaving the Community Fabric
 
Join Date: Aug 2006
Location: England
Posts: 164
Thanks: 3
Thanked 2 Times in 2 Posts
Send a message via MSN to cool1984

Unhappy


i had E for around 3years now.
__________________
When will life be nice and sweet to us with out epilepsy, i think not for a long time i will be allwyas on meds i been told that by my nureo
Reply With Quote
  #37  
Old 03-29-2008, 10:20 PM
Danielle's Avatar
Joined the Party
 
Join Date: Mar 2008
Posts: 38
Thanks: 0
Thanked 1 Time in 1 Post
I've had epilepsy since age 10. I'm 26 right now, so I have had it for 16 years. It was a very tough experience for me to go through, especially as a child. Although my faith got me through it all.
Reply With Quote
  #38  
Old 03-30-2008, 03:11 PM
BuckeyeFan's Avatar
Super Moderator / Grandpa
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 1,907
Thanks: 13
Thanked 152 Times in 84 Posts

26 years


First tonic-clonic at the age of 20. That was 26 long years ago. Seems weird writing that. I have had it longer now than I didn't have it. Oh well, if I am lucky I will have it for another 50 years, because right now there is only one absolute alternative.

The last 4+ years have been my longest stretch without a full T/C.

I sometimes wonder if I had issues when I was younger since no source was ever found for mine. Looking back over the years, there were weird things that happened that may have been pre-cursors to the T/Cs.

I did have a head injury at the age of 15. However, no lesions or scar tissue have ever appeared on the tests and that was 5 years before my first T/C.

My mother always wondered if it didn't go all the way back to when I was born. They delayed my birth, waiting on the doctor to arrive. The specialist they took me to before I was one thought I may have had a mild case of cerebral palsy. This might explain my poor coordination (especially on my left side) as a kid. I still have a lot of coordination issues.

I just thank God that I am still as functional as I am.
Reply With Quote
  #39  
Old 04-09-2008, 08:05 PM
Moonwolf's Avatar
Getting Comfortable
 
Join Date: Apr 2008
Location: Yorkshire, England
Posts: 12
Thanks: 0
Thanked 0 Times in 0 Posts
10 years and a bit now. I stopped a man from savagely beating a woman, an hour later he turned up and attacked me with a hammer, nearly split my skull in half. Doctor wa amazed that I didn't die.

Third of the brain gone just like that. It still took 'em two years to diagnose,, thought I was going insane.
Reply With Quote
  #40  
Old 04-13-2008, 12:29 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,836
Thanks: 181
Thanked 733 Times in 554 Posts
Send a message via Yahoo to RobinN
As this poll ages, so do the answers.
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long term effects of dilantin RanMan The Library 24 05-21-2014 05:31 AM
Effects of long term use of the meds RanMan The Library 4 01-28-2006 12:21 PM


All times are GMT -5. The time now is 06:37 PM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.