Coping With Epilepsy EEG Institute
10% off neurofeedback training for CWE members - Woodland Hills, CA
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Our House > Back Fence



View Poll Results: If you have had an EEG, what were the results?
Normal 25 39.06%
Abnormal 35 54.69%
Inconclusive 4 6.25%
I've had more than one EEG 29 45.31%
Multiple Choice Poll. Voters: 64. You may not vote on this poll

Reply
 
LinkBack Thread Tools
  #21  
Old 06-13-2014, 08:08 AM
Weaving the Community Fabric
 
Join Date: May 2014
Location: Greenville, PA
Posts: 130
Thanks: 13
Thanked 34 Times in 28 Posts
I'm on 750 mg twice daily now. And of course my luck the pharmacy could only get enough in for two weeks and may not be able to get it in again.
Reply With Quote
  #22  
Old 06-14-2014, 07:52 PM
Weaving the Community Fabric
 
Join Date: Apr 2010
Location: orlando FL
Posts: 237
Thanks: 8
Thanked 71 Times in 57 Posts
So I got the results this week from the ambulatory EEG and it turns out that I was was having several generalized seizures on my EEG that I was not even noting myself they were so fast but the machine was picking up. So now the Nuero wants to see me every month becasue he thinks it is so serious it is worth noting and wants to run another one in another 2 months or so. Maybe this next one will be a video one and wlll be a longer study.

Tina
Reply With Quote
  #23  
Old 06-17-2014, 05:56 AM
Weaving the Community Fabric
 
Join Date: Apr 2010
Location: orlando FL
Posts: 237
Thanks: 8
Thanked 71 Times in 57 Posts
WalkerJM3,
The Pharmacy could only get only get in only get in 2 weeks of your drugs? I have had that happen before several times. In fact where I get my drugs they have to order in my drugs special becasue my generics that I take Mylan brand they do not stock on a regular basis (keppra and topamax) I do better with the mylan than the other 2 brands they do stock I have seizures with the others they also do not stock Vimpat so they have to order that one also for me. Lucky for me they like me and I keep them stocked with Nike friends and family coupons when I have them casue I work there. It never hurts to be nice to the pharmaicist they help to keep you well after all.

Tina
Reply With Quote
  #24  
Old 06-18-2014, 05:02 PM
Account Closed
 
Join Date: Jun 2014
Posts: 251
Thanks: 77
Thanked 80 Times in 74 Posts
Originally Posted by lindsayschu2 View Post:
If you've had and EEG, what were the results? I'm curious how many EEGs actually result in an abnormal result, even when people are still diagnosed with epilepsy. I know out of two EEGs I've had, one was normal, one was abnormal. You can choose more than one option if you've had multiple EEGs.
Hello lindsayschu2,
I've had quite a few EEG's over the years which have come back abnormal through sleeping with the test but my lastest one recent came back normal as they said my brain didn't properly shut down instead I went into a partial seizure where I felt like I was sleeping
Reply With Quote
  #25  
Old 06-18-2014, 05:41 PM
Weaving the Community Fabric
 
Join Date: May 2014
Location: Greenville, PA
Posts: 130
Thanks: 13
Thanked 34 Times in 28 Posts
Originally Posted by tinathesingergirl View Post:
WalkerJM3,
The Pharmacy could only get only get in only get in 2 weeks of your drugs? I have had that happen before several times. In fact where I get my drugs they have to order in my drugs special becasue my generics that I take Mylan brand they do not stock on a regular basis (keppra and topamax) I do better with the mylan than the other 2 brands they do stock I have seizures with the others they also do not stock Vimpat so they have to order that one also for me. Lucky for me they like me and I keep them stocked with Nike friends and family coupons when I have them casue I work there. It never hurts to be nice to the pharmaicist they help to keep you well after all.

Tina
yeah. They told me to call in 4 days before I need it to see if they can get it in. If not, I have to switch pharmacies. I'm honestly thinking about using a mail order pharmacy since I can through my insurance.
Reply With Quote
  #26  
Old 06-19-2014, 05:06 PM
Weaving the Community Fabric
 
Join Date: Apr 2010
Location: orlando FL
Posts: 237
Thanks: 8
Thanked 71 Times in 57 Posts
The pharmacy I use is CVS and every script I have with them except the Vimpat is on what they call Auto refill now the only reason the Vimpat is not on auto refill is becasue it is a controlled substance and requires ID at pickup. Oh and my emergency meds. So that makes 5 scripts in total I have with them at present all are on a monthly basis now. With every 5th fill I get a $10 reward coupon too. I belive that walreens has a similar program as well but they were further away. CVS is within walking distance to work and home.

As far as my EEGS go all of mine as late are abnormal and they are planning another one in September.

Tina
Reply With Quote
  #27  
Old 01-23-2015, 03:07 PM
AlohaBird's Avatar
Venerable Voice of CWE
 
Join Date: Jan 2015
Location: Molokai Hawaii
Posts: 1,920
Thanks: 705
Thanked 1,055 Times in 738 Posts
Send a message via Skype™ to AlohaBird
Originally Posted by Dolores View Post:
I've had multiple EEGs and all of them have shown seizure activity even though my seizures are controlled.
I've had multiple EEGs all of which showed perfectly normal even though my seizures were not under good control at that time.
Why do we pay neurologists again?
Reply With Quote
  #28  
Old 01-29-2015, 01:44 AM
Getting Comfortable
 
Join Date: Mar 2012
Location: Manchester UK
Posts: 14
Thanks: 20
Thanked 2 Times in 2 Posts

Question


Ohhh, I've had 2 EEG's & one where I had to wear some kind of EEG headgear every day for 3 days. All of those came back normal, even though I've been (at that time) having full-on grand mal seizures. I now have only partial seizures. I'm on sodium valproate & Keppra, which do nothing if I'm tired, weak with illness or shocked by something (i.e. a car beeping....it sets off a partial in my leg....tut!).
Reply With Quote
  #29  
Old 01-30-2015, 03:40 PM
Abynorml's Avatar
Weaving the Community Fabric
 
Join Date: Jan 2009
Location: southern nevada, about an hour outside of Las Vegas
Posts: 247
Thanks: 16
Thanked 37 Times in 29 Posts
I had many EEGs tying to prove I wasn't crazy, the first EEG was by a neurologist that suspected seizures as I had myoclonic jerks, I didn't believe him and switched to a different doctor, a year later I had a tonic clonic in bed alone, the second doctor didn't like how I described it and dismissed it, gave me an EEG that came back normal, I switched doctors more EEGs and MRIs, still nothing, except he noted slow waves on one test. Then after being at an airport for 12 hours I took a ride on a plane and as soon as we took off my body locked up and I knew I was having a Partial, a month later we tested again and finally the doctor was concerned and said I had epilepsy, he was shocked at how happy I was to hear this, I finally had proof. The only bad thing is this happened in the spring of 2012, by November 2012 I fell 15-30 feet and sustained a moderate to severe traumatic brain injury and went status in the E.R. I finally had documented witnesses, but since I now had an established history of seizures my epilepsy has mostly been left out of the court cases. It is well controlled, though I may still have minor seizures in my sleep sometimes, I live alone so who knows? The Myoclonic jerks use to wake up people I was sleeping with.
Reply With Quote
  #30  
Old 02-08-2015, 03:37 PM
New Here
 
Join Date: Jan 2015
Posts: 8
Thanks: 0
Thanked 4 Times in 3 Posts
I had an eeg in December and that's how my epelipsy was diagnosed. Prior to that I had attributed my symptoms to a long list of other causes such as stress, coronary artery disease, etc. It was only due to the eeg that I was referee to a neurologist and the cause of the seizures determined.
Reply With Quote
  #31  
Old 02-12-2015, 07:16 AM
Esteemed Pillar of the Community
Recent Blog: Few and Far Between
 
Join Date: Jul 2012
Location: OTP Atlanta, Georgia
Posts: 827
Thanks: 374
Thanked 172 Times in 148 Posts
As far as I'm aware they were normal. I haven't been able to have another doctor read the results. But I've had two, and the doc I had at the time said they were both normal.
Reply With Quote
  #32  
Old 02-12-2015, 03:59 PM
ilexa margareta's Avatar
Joined the Party
 
Join Date: Feb 2015
Posts: 49
Thanks: 28
Thanked 18 Times in 14 Posts
I had a tonic-clonic during my EEG, one so outrageous that the hospital asked me for permission to use the tape in teaching med students. So, abnormal.
Reply With Quote
  #33  
Old 04-07-2015, 07:04 PM
trippergreenfeet's Avatar
Getting Comfortable
 
Join Date: Dec 2014
Location: Port Elliot, South Australia
Posts: 20
Thanks: 1
Thanked 10 Times in 4 Posts
Originally Posted by ilexa margareta View Post:
I had a tonic-clonic during my EEG, one so outrageous that the hospital asked me for permission to use the tape in teaching med students. So, abnormal.
Similar experience, complex partial during EEG, then asked if my result could be used for teaching med students. My heart stops beating during seizures so they figured my abnormal result is a good teaching aid as they don't see that kind of action too often.

I know I freaked the EEG operator out, he'd never had anyone have a seizure and go on the nod during the process before.
Reply With Quote
  #34  
Old 04-27-2015, 01:26 PM
New Here
 
Join Date: Apr 2015
Posts: 6
Thanks: 1
Thanked 4 Times in 1 Post
I have had several EEG's over the years and have all been inconclusive....with all the seizures I've had, the years of having epilepsy, I have never had a seizure during an EEG...oh, well
Reply With Quote
  #35  
Old 05-15-2015, 10:32 AM
Weaving the Community Fabric
 
Join Date: Jul 2014
Location: Northern Indiana
Posts: 164
Thanks: 214
Thanked 63 Times in 53 Posts
I've had several EEGs over the years and all but one was normal. Aid they saw a"fluctuation" in my temporal lobe.
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
What does this lab result mean? lindsayschu2 The Kitchen 15 05-04-2014 09:33 PM
Im back with some result Dalia The Foyer 9 05-08-2013 06:21 AM
finally RESULT !!! .... jayde-101 The Kitchen 19 03-07-2013 11:29 AM
YES! Finally (possible) result on EEG!! Malla The Kitchen 7 12-16-2011 01:13 PM
Doctors result kimba The Kitchen 5 12-02-2008 01:57 AM


All times are GMT -5. The time now is 10:49 PM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.