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  #81  
Old 04-20-2017, 10:58 AM
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keppra worked great for me in regards to seizure control.........Just anger and mood swings were not bearable......For my wife.

Ive talked about going back to a low dose and she already wants to get divorce papers ready cuz shes not going to do another 12-20 month period of me on Keppra.




GL all, good drug aside the sides.
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  #82  
Old 04-20-2017, 11:02 AM
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Not much good reported about Keppra. My libido has flat lined with all these drugs, anybody else had this problem?
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  #83  
Old 04-20-2017, 01:23 PM
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A lot of the seizure meds seem to have effects on libido, keppra included. Everyone reacts differently of course... Feel free to start a new threads on this topic...
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  #84  
Old 06-13-2018, 12:40 AM
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Originally Posted by bridge View Post:
I have been on Keppra since like November, I had a seizure about a week before my wedding in September, I was put on Dilantin. I was lil loopy, but ok for the most part. He switched me to Keppra, generic brand, I couldn't afford the name brand, but he switched me and I started feeling way down about life. That Newton Elementary School shooting happened and that really made me depressed. I haven't been better since. Some days are ok, but I am not my happy go lucky girl I used to be. I went to see him about a month after I started the meds, about a week after the shooting, I am in California, so it was all over the news. I told him that I had been feeling a little down, but also that had happened,he said, so the whole country would be sad and down, right? I brushed it off, and decided to stick with it. Now it is April, I have been in a downward spiral. I am now in this deep dark hole and cannot get out I take what people say so extremely personal I flip out. I have no patience, I am angry upset down I have no sense of humor.
I have been married 7 months now and feel like I have been the worst wife ever, I get upset with everything he does, and he is an amazing man. I am so lucky to have him. I have an amazing family, no kids yet for us, but my Mom and Dad, bros and sisters, are the best, I love my inlaws.... But I seem to not get that. I cry all the time, and when I try to tell myself how great of a life I have, all I can think about are negative bad things...
Yesterday I didn't go to work, I was so upset, just talking with my husband, he said he had to go, and I got upset and blew up because he didn't have enough time for me. What am I talking about, he always makes time for me. But I flipped out and I don't know, just ended up driving around upset, I ended up writing down how I was feeling, and last night my husband read it. He never drives my car, but he did last night for some reason and he read it... He walked in with tear in his eyes and asked me if I was really feeling like that. I wrote that I felt that I didn't want to be here anymore. I wish I would just go to sleep and never wake up, and that would make everybody's lives so much better, I would no longer be anybody's burden. I have never ever in my entire life ever felt any feelings even close to these. I don't know who I am anymore. My husband finally saw what was going on and today, again, having a pathetic sad day, crying, I left work early... My husband made me go to my doctor and tell him. I finally went, I was crying uncontrollably and talked with him. He is a huge Keppra fan, bigtime, but after I talked with him just a little finally he told me to get off.

I went and saw him about a month ago, I had already told him I wanted off of Keppra, but he said I needed to get on something else before I could, so I am now on Dilantin and he told me today I could quit Keppra cold turkey. He said I should start feeling better in a few days. I am praying so deeply praying that it is the medicine and not me. I hope I can be me again. I hope these seizures haven't made me this way...
Hi Bridge, i dont know how you are these days, because i havent read the entire forum yet, but I am starting to think maybe the keppra might be messing with my head too (i have had epilepsy for 6 years and have been prescribed antidepressants heeeeeaps of times) in January i freaked out hardcore went to my gp couldnt even tell him how i felt because i was crying so bad (life felt like it was s*** in everyway possible) i took it that day. Next morning at 1am my niece called me to tell me mum had passed away so i had to fly back to australia, and only had one or two tablets of the antidepressants because everyone said alcohol and meds are a big no-no). I started finally taking antidepressants after taking a day off work (i was on the way to work on the train, lucky i happened to be talking to a mate at the time, because i flipped i couldnt go cos everything was bad bad bad planning suicide etc) annnnnnnnnnnnnd i told my bestest best friend ever and she was like yea that definitely a panic/anxiety attack start taking your meds now!!! She said it wouldnt work straight away probably a week or two- and she was right i am heaps better now. Scary thing is though i am only a month and a half into it, and i can feel it creeping back. Lol so is this keppra or anxiety/panic attacks hahaha maybe just crazy in general good ol' temporal lobe

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  #85  
Old 06-13-2018, 09:21 AM
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Yes, I have the same issue now that they've increased my dose and added Depakote to the mix.
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  #86  
Old 06-13-2018, 11:24 AM
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Keppra WILL mess with your your head Google "Kepprage." Many of us here have had that problem.

I did and told my neurologist. He didn't seem surprised and took me off of it. Talk to your neurologist.

Legal Disclaimer: My opinions: Again talk to your neurologist.
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  #87  
Old 06-14-2018, 05:16 PM
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My daughter is slowly being weaned off Keppra and having it replaced with lamotrigine. She used to have crying episodes regularly and almost always felt angry, plus she hated everything about herself. She said she never 'felt herself' and that was worse than having the odd seizure but now she's reached the dose of 250mg per day and upped the lamotrigine she feels a whole lot better.

The only thing she noticed with the change was she'd have a headache almost every day - last weekend she had her ear pierced in a part said to be a pressure point for headache relief, she'd read a lot about it and watched YouTube tutorials. Now whether it's a placebo effect or not she hasn't had a headache since, not even after having a focal today when she always ends up with a headache. She can't believe the change and neither can I but I know pressure points exist and just maybe this thing actually works.
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  #88  
Old 09-14-2018, 01:17 PM
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if it works for you that's all that matters..THE CHINESE used pressure points for thousands of years so billians of Chinese got something right
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  #89  
Old 09-14-2018, 03:19 PM
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Hiya anyone reading this out there am on Lamitrogine now (100% off Keppra for just over a month because I was weaned off it) and I am feeling a MILLION times better!!!! I can't believe it, like honestly I am so thankful for all the good things, I find it sooooo much easier to handle problems, I am having fun with my kids and husband, really enjoying life.
I get sad a bit to think that i was on this crud Keppra for 6 years and i didnt realise it was the very thing that was bringing me down.
My husband says he can totally tell the difference too
But it's awesome now, I am actually enjoying life- letting go of harder situations like a feather!
(Hehehe and no I am not currently on any illegal drugs at the moment)
I hope you all go well x best of luck

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  #90  
Old 09-15-2018, 07:38 AM
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Finding the right med, is like finding the right key to open a door. I'm glad to hear the lamotrigine has made a difference.
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  #91  
Old 09-15-2018, 10:42 AM
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Great to hear that. I remember the difference getting off Neurontin made.
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  #92  
Old 09-15-2018, 05:07 PM
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It really is unbelievable, up until now I have "spurts of happiness" is what people feel when they are spiking on ecstasy or cocaine or some other drug. But now I feel normal, settled, easier to comprehend- work through and just be thankful it wasnt this chaos that i have had for over 6 years!
Just a message for anyone who is going through this or has a loved one, family member or a friend:::
I just want you to know that change IS POSSIBLE!!! never give up

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  #93  
Old 09-16-2018, 07:43 PM
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I'm on Lamictal as well. Fell much better. Of course it has it's side effects. Was supposed to take it in the morning but my neurologist let me "fudge" it a bit after I told him that I can't do anything because usually it knocks me out for 3 hours.
I feel very sleepy and kind of dizzy.
Maybe that's why I sometimes feel chilly (different thread).
I had a hard time getting used to it. I'm a recovered alcoholic and it made me feel drunk. Maybe its the Topamax I'm also on. Are you on anything else (for seizures)?
When I take it before bed I sleep about 3 hours and have a hard time getting back to sleep.
I saw some things about "Kepprage" and even as messed up as I was I knew I had to try something else.
Neurologist switched me no problem.

There is some new drug called Aptiom supposed to cause that sleepy feeling but it just recently came on the market. No generic and expensive.
http://www.aptiom.com/anti-seizure-medication.html
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  #94  
Old 09-23-2018, 04:50 PM
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Hi Topcat, wasnt sure if you were asking me about being on something else for seizures or not, but I am not taking anything else. I was only on the keppra plus the lamicital for a couple weeks while they were weaning me off it (the keppra). And i was pretty crazy then too.
To be honest i dont get tired or dizzy from the lamicital. Where as with the keppra i did- i freakin hated it too especially when it was morning because for me it was like being stoned, no amount of coffee would help- but then i ended up getting so used to it at night, that i couldnt get to sleep without it except if i had drunk lots of alcohol- so it was basically impossible for me to forget taking it at night because it felt like i had drunk 6 coffees or redbulls.
The only logic i seem to find from these forums is that everyone gets different side effects because our body/build/brain/stress/immune system/stress handling is all different- as well as all of us having different forms of epilepsy. And i am the guessing the neuros dont know too much more than us- because l i have read and experienced is the "hey take these meds theyll fix you" and if get a seizure again they'll up your meds or add a new one
Bit of a guessing game.... lol i didnt even realise that nocturnal epilepsy EXISTED before i found this forum- and when i suggested it to my neurologist after my 3rd seizure his reaction "oh yea, youre right, well then just stop taking your meds in the morning" lol i mean wtf is that?!?!?? So Dr Google IS better than paying for a Neurologist????
If you dont mind me asking- how long ago did you stop drinking? How long/what type of seizures do you have?

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