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Old 12-04-2017, 04:25 AM
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Kyle Hope-Parry


Hello,
This is my first time posting. I lost my son Kyle on the 31/10/17, he was an SAC Medic in the RAF. He was found in his room, in bed. Kyle only ever had 2 other fits one in 2010 and one earlier this year in March whilst in the Lebanon with the RAF. I feel totally broken hearted and struggling to understand what has happened. Just felt the need to talk to someone with a similar link, loss!
Not even sure if this is the right room to come too. sorry.
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Old 12-04-2017, 08:34 AM
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Penny, please feel free to post as much as you would like, wherever you would like. I hope CWE members can provide the support and help that you need as you grieve.
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Old 12-04-2017, 08:51 AM
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Sorry for your loss Penny. Thanks for sharing Kyle's story with us (yes, this is the correct forum room).

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Old 12-04-2017, 11:36 AM
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Thank you for replying. Im just lost at the moment and struggling to understand what has happened to my lad.
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Old 12-04-2017, 11:53 AM
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Penny --

You may find this website helpful as well: http://sudep.org/
They are a UK charity that specializes in supporting and involving people bereaved by epilepsy. Their services include bereavement support and counselling. You can contact their support team on 01235 772852 or email support@sudep.org
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Old 12-04-2017, 11:55 AM
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Bless you , thank you so much . x
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Old 12-04-2017, 01:57 PM
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Penny,

I am very sorry to hear of your loss.

Several years back, I met a lady who lost her daughter at 17 years of age due to Sudden Unexplained Death in Epilepsy.

She created the "Chelsea Hutchinson Foundation" here in Colorado to raise awareness to this awful thing. Although it happened here in the U.S., we know it is a worldwide thing. Here is a link to the youtube:

https://youtu.be/-oGJP0k2tVE


Many {{{{HUGS}}}
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