Coping With Epilepsy Epilepsy Research Program
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > Surgery Central



Reply
 
LinkBack Thread Tools
  #1  
Old 06-21-2012, 09:03 PM
Weaving the Community Fabric
 
Join Date: Jul 2010
Location: California
Posts: 178
Thanks: 69
Thanked 71 Times in 51 Posts

Can't wash my hair.


Just got done having surgery. You know it's bad enough when you lose hair and now I can't wash my head for another week and a half. Ick.
Reply With Quote
The Following User Says Thank You to Cordero For This Useful Post:
julie wishes (06-21-2012)
  #2  
Old 06-21-2012, 10:14 PM
CQ:)'s Avatar
Venerable Voice of CWE
 
Join Date: Aug 2007
Location: Aussieland
Posts: 3,818
Thanks: 1,852
Thanked 1,309 Times in 938 Posts
When did you have your surgery Cordero?
When I had my surgery I was in hospital for 5 days, I could have a shower but couldn't wet my hair. I washed my hair for the 1st time the day after I got out of hospital (6 days after my surgery) & it was good to finally be able to wash it. When I had my surgery the specialists all told me to use baby shampoo on my hair after the surgery while the scar was healing as it's more softer on your hair than regular shampoo & doesn't sting.
__________________
I know the meaning of LIFE ... Laughter Is Freaking Essential!

One small positive thought in the morning can change your whole day

Last edited by CQ:); 06-22-2012 at 03:39 AM.
Reply With Quote
  #3  
Old 06-22-2012, 10:17 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,472
Thanks: 948
Thanked 7,332 Times in 5,415 Posts
Bring out the silly hats!
Reply With Quote
  #4  
Old 08-06-2012, 01:07 AM
AngelwithDentedHalo's Avatar
Esteemed Pillar of the Community
 
Join Date: Jul 2012
Location: Oregon
Posts: 581
Thanks: 160
Thanked 175 Times in 125 Posts
Yeah, when I had my surgery, I couldn't wash my hair for a week either. Not as bad as being in the hospital for 3 weeks and not being able to take a full bath for two weeks. Did get sponge bathes though.
Reply With Quote
  #5  
Old 08-06-2012, 12:32 PM
Weaving the Community Fabric
 
Join Date: Jul 2010
Location: California
Posts: 178
Thanks: 69
Thanked 71 Times in 51 Posts
CQ,
Sorry for not answering your question sooner. I didn't realize I had posts on this thread. I had surgery June 18, 2012. People had told me about a shampoo that dries the oils out of your hair. I wasn't able to get some ,though, because I can't drive and I have to rely on everyone to take me to the store.. It really sucks


Nakamova,
I did end up getting a silly hat and had never felt so dorky before.

AngelwithDentedHalo,
They said that it was okay to take a bath as long as my head didn't get wet. But it really stunk because our bathtub is broken so I couldn't take one unless I was at family members' houses. I ended up catching a bladder infection. I hate surgery.
Reply With Quote
  #6  
Old 08-06-2012, 01:36 PM
AngelwithDentedHalo's Avatar
Esteemed Pillar of the Community
 
Join Date: Jul 2012
Location: Oregon
Posts: 581
Thanks: 160
Thanked 175 Times in 125 Posts
That may have contributed to my urinary tract infection second time in hospital but I suspect it was more the cathetor they put in
Reply With Quote
  #7  
Old 08-06-2012, 04:03 PM
CQ:)'s Avatar
Venerable Voice of CWE
 
Join Date: Aug 2007
Location: Aussieland
Posts: 3,818
Thanks: 1,852
Thanked 1,309 Times in 938 Posts
Originally Posted by Cordero View Post:
CQ,
Sorry for not answering your question sooner. I didn't realize I had posts on this thread. I had surgery June 18, 2012. People had told me about a shampoo that dries the oils out of your hair. I wasn't able to get some ,though, because I can't drive and I have to rely on everyone to take me to the store.. It really sucks
No worries Cordero,
I hope your recovery has been going well.
__________________
I know the meaning of LIFE ... Laughter Is Freaking Essential!

One small positive thought in the morning can change your whole day
Reply With Quote
  #8  
Old 08-08-2012, 07:43 PM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
are you guys talking about the surgery to control your seizures? Did you have any side effects afterwards? like memory problems?

good luck to all of you
Reply With Quote
  #9  
Old 08-09-2012, 06:01 AM
CQ:)'s Avatar
Venerable Voice of CWE
 
Join Date: Aug 2007
Location: Aussieland
Posts: 3,818
Thanks: 1,852
Thanked 1,309 Times in 938 Posts
Originally Posted by katzy View Post:
are you guys talking about the surgery to control your seizures? Did you have any side effects afterwards? like memory problems?

good luck to all of you
Hi Katzy,

There are a couple of members on here who have had brain surgery to help control their seizures but each person is different. I had brain surgery (scarring removed from my left front temporal lobe) in March last year & for me it has been a success so far. But there are other members on here who it hasn't been so successful for.

Like most people with epilepsy I have had issues with my memory, there have been some times where my memory was worse which I put down to the meds I was on at the time combined with the seizures. My memory isn't so bad at the moment, although I still have times where i forget things.
__________________
I know the meaning of LIFE ... Laughter Is Freaking Essential!

One small positive thought in the morning can change your whole day
Reply With Quote
  #10  
Old 08-09-2012, 08:05 AM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
Originally Posted by CQ:) View Post:
Hi Katzy,

There are a couple of members on here who have had brain surgery to help control their seizures but each person is different. I had brain surgery (scarring removed from my left front temporal lobe) in March last year & for me it has been a success so far. But there are other members on here who it hasn't been so successful for.

Like most people with epilepsy I have had issues with my memory, there have been some times where my memory was worse which I put down to the meds I was on at the time combined with the seizures. My memory isn't so bad at the moment, although I still have times where i forget things.
That's wonderful that yours has been a success

Me too suffer from memory loss, but I think that was from the lamotrigine I was taking
Reply With Quote
  #11  
Old 08-09-2012, 05:05 PM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 900
Thanks: 371
Thanked 281 Times in 225 Posts
Originally Posted by katzy View Post:
are you guys talking about the surgery to control your seizures? Did you have any side effects afterwards? like memory problems?

good luck to all of you
The surgeon and your neurosurgeon should state to you that there have been issues with short term memory after this type of surgery takes place because of what is cut into.

I am a prime example of it. What I can tell you interestingly enough, I had a Temporal Resection on 1995 and was given fair warning about short term memory issues from both doctors because of what would be done with the hippocampus. I can recall what was stated is due to statistics everyone differs in length of time for short-term memory difficulty because no person has the same brain-time recovery.

I can agree to that for sure. What I am noticing is my short term memory is improving big time and we're not sure what is doing it. We don't know if it's from the drop in medication, the DBS for Epilepsy in 2011, the length of time or a combination of all three. I have researchers here in Omaha, NE jumping up and down with excitement because of this positive activity.

Heck, I am really getting into it because of what my short term memory is doing; it's improving after all this time! We don't have all the answers yet but I am doing my best to help the researchers find answers.
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011

Last edited by suebear; 08-10-2012 at 12:52 AM.
Reply With Quote
  #12  
Old 08-09-2012, 05:12 PM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
Oh wow .. I didn't even know there was something called DBS. Glad to hear everything's coming together for you. So you're seizure free now?

I was worried about having seizures while driving, but hearing what some of you have gone through, I don't think I should be complaining.
Reply With Quote
The Following User Says Thank You to katzy For This Useful Post:
suebear (08-10-2012)
  #13  
Old 08-09-2012, 06:32 PM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 900
Thanks: 371
Thanked 281 Times in 225 Posts
Originally Posted by Cordero View Post:
Just got done having surgery. You know it's bad enough when you lose hair and now I can't wash my head for another week and a half. Ick.
I went through this when I had the DBS for Epilepsy done. Grant it they only shaved the back lower corner where my neck is but it still was enough for me not to wash my hair. Actually, as it was worded to me, the neurosurgeon chose that I not wash my hair as it would allow the area to begin healing easier which made total sense to me. The other thing the neurosurgeon mentioned was he did not want me walking or standing up for fear he did not want me to fall and get hurt which made very common sense. I didn't mind staying in bed during the six day recovery. I was glad to go home after being in the hospital for a week though.

I was frustrated enough as I was on limitation. Oh and trust me, I still have a tender spot; it's nowhere near as bad but there are certain things I will do and will not do even now.

There is something at the local Walgreens or CVS that can be found to comb through your hair to wash it. I recall it comes in a clear bottle and has a purple logo on it. From what I recall, I was given the left over item used during my stay at the hospital. So my guess is they should of done the same thing in your case. If not, I would ask the question why not then make a phone call to your doctor's nurse and ask if you can be helped on this matter. She might be able to help you under these type of circumstances since the hospital did not assist you as they should of and the hospital assistants will be questioned why they did not provide you with those items before you left.

As a patient, you have the right to ask the question, why you were not given help from the hospital care takers and provided with a take home bag. This is a question to ask the doctor's nurse. I would start there and see what type of help they can provide. Be nice when speaking to the nurse and just let them know you are in need of getting something that will allow you to safely clean the incision area. Good luck and keep us updated!
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
Reply With Quote
  #14  
Old 08-09-2012, 06:55 PM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 900
Thanks: 371
Thanked 281 Times in 225 Posts
Originally Posted by katzy View Post:
That's wonderful that yours has been a success

Me too suffer from memory loss, but I think that was from the lamotrigine I was taking
Surgery and the mix of medication will cause memory issues (not right away either) because anti-epileptic drug medications have severe side effects. There are some medications that impact the memory so badly it is very difficult to handle.

I had serious issues with Lamictal over time, Felbatol and Banzel were two major ones as well.
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
Reply With Quote
  #15  
Old 08-09-2012, 08:02 PM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
Originally Posted by suebear View Post:
Surgery and the mix of medication will cause memory issues (not right away either) because anti-epileptic drug medications have severe side effects. There are some medications that impact the memory so badly it is very difficult to handle.

I had serious issues with Lamictal over time, Felbatol and Banzel were two major ones as well.
Yea , what I don't get is why they don't put that on the label. A lot of people I have talked to have issues with their memory after taking Lamictal for a long time. I don't know what it was doing to my brain, but I "developed" ADD and memory loss after taking it.
Reply With Quote
  #16  
Old 08-10-2012, 12:01 AM
Ryan.2288's Avatar
Getting Comfortable
 
Join Date: Aug 2012
Location: Monterey, California
Posts: 18
Thanks: 0
Thanked 9 Times in 6 Posts
I have been on Lamictal for a little over a year and a half. After my surgery in april I stopped smoking marijuana (which I had been for to long). I am currently on 600mg of the Lamictal and am now happy with my memory. Who knows maybe it would be even better without the Lamitcal. But I'm happy with it
Reply With Quote
  #17  
Old 08-10-2012, 12:42 AM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 900
Thanks: 371
Thanked 281 Times in 225 Posts
Originally Posted by katzy View Post:
Oh wow .. I didn't even know there was something called DBS. Glad to hear everything's coming together for you. So you're seizure free now?

I was worried about having seizures while driving, but hearing what some of you have gone through, I don't think I should be complaining.
I am down to one or two seizures a month in comparison to the 20 a month I had been having.. major difference.

The DBS was originally built as something for Parkinson's and it was discovered it also works as a neurological device. The benefits the DBS provides are the amount of settings it can provide in comparison to the VNS. For example, the VNS can only perform 33 settings where as the DBS can perform 48 settings. Not only that, the settings can also be changed and managed in different ways whereas the VNS cannot.

It is difficult to explain and I would rather not give detail since I am not a medical professional but what I can say is since we have chosen to go this route of surgery it has been well worth the time.
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
Reply With Quote
  #18  
Old 08-10-2012, 12:49 AM
suebear's Avatar
Esteemed Pillar of the Community
 
Join Date: Sep 2008
Location: IA
Posts: 900
Thanks: 371
Thanked 281 Times in 225 Posts
Originally Posted by katzy View Post:
Yea , what I don't get is why they don't put that on the label. A lot of people I have talked to have issues with their memory after taking Lamictal for a long time. I don't know what it was doing to my brain, but I "developed" ADD and memory loss after taking it.
From my knowledge.. there had been discovery about Lamictal after the fact. The new information about memory issues came about from patients who had been taking it over a period of time. As to the length I am unsure. The only persons who are aware of that information are medical professionals and persons who work in the pharmacy industry.

That type of side effect is something I would report to the drug manufacturer as well as your neurologist so they are aware of the matter.
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
Reply With Quote
  #19  
Old 08-10-2012, 02:13 PM
katzy's Avatar
Weaving the Community Fabric
 
Join Date: Aug 2012
Location: New York
Posts: 216
Thanks: 54
Thanked 56 Times in 49 Posts
Originally Posted by suebear View Post:
I am down to one or two seizures a month in comparison to the 20 a month I had been having.. major difference.

The DBS was originally built as something for Parkinson's and it was discovered it also works as a neurological device. The benefits the DBS provides are the amount of settings it can provide in comparison to the VNS. For example, the VNS can only perform 33 settings where as the DBS can perform 48 settings. Not only that, the settings can also be changed and managed in different ways whereas the VNS cannot.

It is difficult to explain and I would rather not give detail since I am not a medical professional but what I can say is since we have chosen to go this route of surgery it has been well worth the time.
That's great news

Originally Posted by suebear View Post:
From my knowledge.. there had been discovery about Lamictal after the fact. The new information about memory issues came about from patients who had been taking it over a period of time. As to the length I am unsure. The only persons who are aware of that information are medical professionals and persons who work in the pharmacy industry.

That type of side effect is something I would report to the drug manufacturer as well as your neurologist so they are aware of the matter.
My neurologist didn't believe me at first when I said I'm having memory issues. In fact, she told me Lamictal is sometimes used to improve memory!
Reply With Quote
  #20  
Old 08-11-2012, 01:05 PM
Weaving the Community Fabric
 
Join Date: Jul 2010
Location: California
Posts: 178
Thanks: 69
Thanked 71 Times in 51 Posts
Originally Posted by katzy View Post:
are you guys talking about the surgery to control your seizures? Did you have any side effects afterwards? like memory problems?

good luck to all of you
Yeah. I got a RNS device battery change. The recovery wasn't that bad. But I did get that dandruff or sebaceous acne stuff. I have been noticing that my memory has been getting worse. That might be because of the frequency of the seizures, though. Hopefully the device helps better control the seizures.
Reply With Quote
The Following User Says Thank You to Cordero For This Useful Post:
katzy (08-11-2012)
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Surgery Success? Recommended Drs in Wash DC area? spenceba The Foyer 21 07-31-2010 10:05 AM
Bad Hair Day? mati The Lounge 12 04-06-2010 06:49 PM
Here and there, hair is everywhere Cinnabar The Kitchen 8 09-17-2009 12:38 AM


All times are GMT -5. The time now is 10:26 AM.


Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.