My child's neurologist has suggested surgery

[talley_valley]

This time last year, my little girl had never had a seizure. Memorial Day night she went into status epilepticus and we spent a week in the children's hospital. Since then it has been doctors and more doctors and poor seizure control and a little girl that has little to no quality of life because she is so tired from the meds a seizure activity. She does not have grand mals. In fact, during her seizures she can communicate with you. I have been denying they were even seizures until she had one in her pediatrician's office today. He said he had ever seen anything like it. It really freaked me out that an episode that I now see as so common place concerned this doctor so much. I really never thought of my daughter's condition as that serious until now. Our neurologist (who is wonderful, he has made sure on several occasions that we have his personal cell phone number) feels strongly that we go back to our specialist at the Cleveland Clinic and find out if she is a candidate for surgery (we have been told several times that is she probably will be). Are we going down this path too quickly? I understand that the surgery could do wonders for her as she has a small lesion on her temporal lobe, but they are still talking about cutting out a piece of her brain. I don't know what I am expecting to get out of this post, maybe just to let everything out. Can't really talk to many other people about it without having them freak out. I guess I just want to know if I am a bad mother for considering surgery, or I am a bad mother for it wanting to put her threw more med changes and blood work and break threw seizures to keep her head in one piece.


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