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  #1  
Old 03-10-2015, 07:58 AM
Getting Comfortable
 
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Need support??


After some PM-ing, I know a few of you, out "there", are going down the path to surgery. Keep us updated, we're here to help and lend support...
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Kgartner (03-10-2015), KnightsGirl (05-16-2015)
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Old 03-10-2015, 10:48 AM
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You have my support and I hope you have a very successful surgery.
I'm behind anyone who can get there seizures under control or stopped all together.
Belinda5000
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Old 03-10-2015, 11:31 AM
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Thanks photoguy! After visual field testing tomorrow, my daughter will have completed the first steps in her surgery evaluation. She completed neuropsych testing at the end of February, and we will be meeting with them in 2 1/2 weeks for the report from those tests. At that point her neurologist will be re-presenting her case to the surgery team.

So hopefully we will have news in just a few weeks!
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Old 03-10-2015, 11:34 AM
Getting Comfortable
 
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We'll be praying for your daughter, and you! God bless!!!
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Old 03-10-2015, 03:01 PM
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After left temporal lobe removal in 95 I had 2 more surgeries - I have surgeries and original dates listed in my signature.

I can proudly say the seizures can now be managed with low medicine dosage and maintenance of the two stims.
__________________
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
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Old 10-03-2015, 06:01 PM
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Getting Comfortable
 
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Location: Orlando, FL
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Had RTL surgery at the end of March.
So far so good!!
No seizures and I was able to return to work after about 8 weeks.
No driving yet, but hoping to get my license back next year.

I have some other details in my profile.
Basically, my short term memory isn't like it used to be, but it's still good enough for me to continue working and be awesome at my job. I just use a few more sticky notes.
I lost some upper peripheral vision.
I hadn't even noticed until the doctors started waving their hands in front of me at one of my follow-up appointments.
It's nothing that will have an impact on everyday life.

Swelling after surgery was an issue, but the doctors gave me great pain and anti-nausea medication while I was in the hospital. I think it subsided within a week of my surgery.

Good luck to anyone considering surgery.

Knightsgirl
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