Coping With Epilepsy Matthew's Friends
Free Advertisement

Go Back   Epilepsy Forum > Peer Support > Surgery Central

LinkBack Thread Tools
Old 03-10-2015, 07:58 AM
Getting Comfortable
Join Date: Jun 2014
Posts: 21
Thanks: 7
Thanked 10 Times in 8 Posts

Need support??

After some PM-ing, I know a few of you, out "there", are going down the path to surgery. Keep us updated, we're here to help and lend support...
Reply With Quote
The Following 2 Users Say Thank You to photoguy For This Useful Post:
Kgartner (03-10-2015), KnightsGirl (05-16-2015)
Old 03-10-2015, 10:48 AM
Belinda5000's Avatar
Account Closed
Join Date: Sep 2007
Location: Georgia
Posts: 2,241
Thanks: 429
Thanked 596 Times in 474 Posts
You have my support and I hope you have a very successful surgery.
I'm behind anyone who can get there seizures under control or stopped all together.
Reply With Quote
Old 03-10-2015, 11:31 AM
Weaving the Community Fabric
Join Date: Sep 2013
Location: Philadelphia
Posts: 273
Thanks: 46
Thanked 183 Times in 110 Posts
Thanks photoguy! After visual field testing tomorrow, my daughter will have completed the first steps in her surgery evaluation. She completed neuropsych testing at the end of February, and we will be meeting with them in 2 1/2 weeks for the report from those tests. At that point her neurologist will be re-presenting her case to the surgery team.

So hopefully we will have news in just a few weeks!
Reply With Quote
The Following User Says Thank You to Kgartner For This Useful Post:
Belinda5000 (03-11-2015)
Old 03-10-2015, 11:34 AM
Getting Comfortable
Join Date: Jun 2014
Posts: 21
Thanks: 7
Thanked 10 Times in 8 Posts
We'll be praying for your daughter, and you! God bless!!!
Reply With Quote
Old 03-10-2015, 03:01 PM
suebear's Avatar
Esteemed Pillar of the Community
Join Date: Sep 2008
Location: IA
Posts: 905
Thanks: 378
Thanked 283 Times in 226 Posts
After left temporal lobe removal in 95 I had 2 more surgeries - I have surgeries and original dates listed in my signature.

I can proudly say the seizures can now be managed with low medicine dosage and maintenance of the two stims.
Left Temporal Lobe 1995
VNS 2008
DBS for Epilepsy 2011
Reply With Quote
The Following User Says Thank You to suebear For This Useful Post:
Belinda5000 (03-11-2015)
Old 10-03-2015, 06:01 PM
KnightsGirl's Avatar
Getting Comfortable
Join Date: Jan 2014
Location: Orlando, FL
Posts: 14
Thanks: 11
Thanked 6 Times in 6 Posts
Had RTL surgery at the end of March.
So far so good!!
No seizures and I was able to return to work after about 8 weeks.
No driving yet, but hoping to get my license back next year.

I have some other details in my profile.
Basically, my short term memory isn't like it used to be, but it's still good enough for me to continue working and be awesome at my job. I just use a few more sticky notes.
I lost some upper peripheral vision.
I hadn't even noticed until the doctors started waving their hands in front of me at one of my follow-up appointments.
It's nothing that will have an impact on everyday life.

Swelling after surgery was an issue, but the doctors gave me great pain and anti-nausea medication while I was in the hospital. I think it subsided within a week of my surgery.

Good luck to anyone considering surgery.

Reply With Quote
The Following User Says Thank You to KnightsGirl For This Useful Post:
BIGMAN131307 (10-04-2015)

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

Similar Threads
Thread Thread Starter Forum Replies Last Post
Spouse with Epilepsy - sometimes the support needs support too sarahc The Foyer 17 08-02-2012 10:13 AM
New here and Looking for support missapril The Foyer 3 01-03-2012 08:48 PM
Utah Epilepsy Support Group / or any support group Bluesbrkr The Kitchen 0 08-19-2011 05:06 PM
I need some support Superman1988 Lemonade Stand 11 02-03-2011 07:17 PM
New...and in need of support wendy The Foyer 7 07-10-2009 05:42 PM

All times are GMT -5. The time now is 03:51 PM.

Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.