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Old 01-17-2013, 04:31 PM
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Neuropace (rns) surgery candidate.. Anyone have have the procedure?


Hi
I have done over a year of testing & found out that I am not a candidate for a temporal lobectomy. Pretty bummed out... Anyways my doctor mentioned neuropace. It will be up for FDA approval in a couple weeks and he thinks I might be a good fit. I was wondering what the surgery is like specifically. How long do they keep you in the hospital and when they do let you out, is there a recovery time at home?

I was also curious if there were any kind of side effects? Headaches, pain? If so did you have to you use pain meds?

Any input on the day to day after the procedure would be appreciated because I want to plan things with work.

Thanks!
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Old 01-17-2013, 05:45 PM
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Hi nick --

With anything new, it may be tough to know the pros and cons. Below are some CWE threads that mention the Neuropace and may be of interest:
http://www.coping-with-epilepsy.com/...inea-pig-1286/
http://www.coping-with-epilepsy.com/...uro-pace-1253/
http://www.coping-with-epilepsy.com/...al-study-7544/
http://www.coping-with-epilepsy.com/...seizures-6409/
http://www.coping-with-epilepsy.com/...al-study-6308/
http://www.coping-with-epilepsy.com/...europace-2637/
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Old 01-17-2013, 06:23 PM
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Actually I have read most of those ... I just wanted to get more details regarding the actual surgery and recovery period. I know it is not ass severe as a temporal lobectomy but wanted to get an idea of how long I will be in the hospital and out recuperating out of work.

Thanks,
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Old 03-26-2013, 10:37 AM
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From what I've read, you're in the hospital three to four days, and then have a month or two of weekly visits to the hospitals E clinic, followed by every two week and then every four week visits. It sounds like a much less invasive surgery, they drill a small hole and thread a wire down. I think
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Old 03-27-2013, 02:03 PM
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http://www.fda.gov/downloads/Advisor.../UCM340260.pdf

The above is a long enough pdf file but is has the full scenario for surgical procedures. I hope to hear that they have been approved by the FDA as suggested by the panel soon.
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