lovetypething<3
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Hello everyone it's been awhile! Things have gotten crazy lately so how's an update sound?!
So I had my first vns placed in 2010 things had been going well, the next year I was able to start classes for nursing but that brought on stress which made seizures happen so I had to quit. Things went back to normal, but I wasn't completely seizure free. So here I was at the doctor June of this year, they say the battery of the vns has died & it's time to replace it, fast. My family & I can definitely start to tell it stopped working, my seizures were getting worse, I had one where I couldn't talk at all, even for an hour after my dad says. I was just off in wonderland & I don't remember anything! So 2-3 weeks later I had the surgery to get it replaced. I've been going back to the doctors office each month to update the vns. And now here we are, seizures are still the same, not controlled, I'll have atleast 3-4 each month before I go back to the doctor. So at the appt the other day they say they don't like that my medicine or vns isn't doing anything for me. It's time to see if I'm a candidate for brain surgery...temporal lobectomy. My mom & I were just shocked. Just something we weren't expecting to hear! So I've been doing some research & watching videos on YouTube & such. And this just happened Wednesday. I'm just in the beginning of the process so I still have to go through both phases. I'm kinda nervous. Afraid of getting my hopes up. Supposed to get a call today to schedule the video eeg this month but that didn't happen. Any advice? Books to read? Etc? Sorry about the rant!
So I had my first vns placed in 2010 things had been going well, the next year I was able to start classes for nursing but that brought on stress which made seizures happen so I had to quit. Things went back to normal, but I wasn't completely seizure free. So here I was at the doctor June of this year, they say the battery of the vns has died & it's time to replace it, fast. My family & I can definitely start to tell it stopped working, my seizures were getting worse, I had one where I couldn't talk at all, even for an hour after my dad says. I was just off in wonderland & I don't remember anything! So 2-3 weeks later I had the surgery to get it replaced. I've been going back to the doctors office each month to update the vns. And now here we are, seizures are still the same, not controlled, I'll have atleast 3-4 each month before I go back to the doctor. So at the appt the other day they say they don't like that my medicine or vns isn't doing anything for me. It's time to see if I'm a candidate for brain surgery...temporal lobectomy. My mom & I were just shocked. Just something we weren't expecting to hear! So I've been doing some research & watching videos on YouTube & such. And this just happened Wednesday. I'm just in the beginning of the process so I still have to go through both phases. I'm kinda nervous. Afraid of getting my hopes up. Supposed to get a call today to schedule the video eeg this month but that didn't happen. Any advice? Books to read? Etc? Sorry about the rant!
I hate saying that because I don't want to jinx it either!